awaiting CT results about my fistula

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dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 10/4/2007 4:13 PM (GMT -7)   
Well I had a CT scan done around 5pm, just personally paged my colorectal surgeon and he doesnt have results yet.  He opted for the CT over the SBFT since I am having severe pain.  I am due for my 2nd dose of humira tomorrow and informed him of that just now so I need to know if there is an abscess so I will know not to inject it.
 
Waiting is sometimes the hardest
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


crohnie42
Regular Member


Date Joined Dec 2006
Total Posts : 371
   Posted 10/4/2007 6:55 PM (GMT -7)   
If I had an abcess, I would inject. My goal is the close them
Michele
~~~~~~~~~~~~~~~~~
 
Female Dx'ed with Crohns Disease in 1992
Been on every med for crohns that exists
Several Fistula surgeries
Dx'ed with Colon Rectal Cancer March 2007
Dx'ed with Stage 2 Vulvar VIN
On Chemo and Radiation for 6 weeks


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 10/5/2007 4:53 PM (GMT -7)   
it showed that theree is subcutaneous air and a fistula which is CD related and not surgery related which can happen in abdominal surgeries for those who dint have CD. My doc feels the humira will heal it up and I dont understand the air thing tho.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 10/5/2007 8:29 PM (GMT -7)   
Wouldn't the air be entering the abdomenal cavity through your fistulous tract? Dragonfly, you have been facing some pretty brutal complications over the last six months. How are you holding up? I know you are trying hard to hold it -- including work -- all together. I'm so sorry that new challenges are continuing to hit you.

I don't have any personal experience with humira but everything I read suggests it is the gold standard for treating a crohn's fistula -- better than surgery or anything else.

Hope you can give yourself the space and time that your body needs to heal. You deserve it.
Belleenstein:

30+ years living with Crohn's.


RxCrohnie
Regular Member


Date Joined Sep 2006
Total Posts : 146
   Posted 10/5/2007 8:41 PM (GMT -7)   
I also am on Humira. I have been on Humira since April and before that Remicade. I have a rectovaginal fistula. Humira is supposed to help close fistulas but with any medications resistance develops. Remicade stopped working for me and since Humira is also a TNF I believe my body is not responding to it. I am sorry for your troubles. They didn't find any of my past or present fistulas during my CT's. A barium enema found one of them and a methylene blue test the other. I hope everything works out.
35 yo--Crohns since 2000, Granuloma cysts in mouth-oral surgery X2 in 2000, Fistula colon 2006, Rectovaginal Fistula 2007, Joint pain. Kidney Stones. Dx with Migraines in 2002 and Ovarian Cysts with Endometrosis 2001.  Dx with Fibromyalgia in 2007.  Now receiving Humira, Topamax 300mg daily, Cymbalta 120mg daily, Prevacid 30mg, Maxalt, Vicodin and Ultram as needed, Fish Oil, and Multivits   
 
RxCrohnie 

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