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goaliegirl484
Regular Member


Date Joined May 2006
Total Posts : 28
   Posted 10/5/2007 5:14 AM (GMT -7)   
Hello all,
I am currently still having a flareup for a month now.  I have been on a high dose of prednisone and budesinide.  Doesnt seem to be working.  Just went to the doc a few days ago and now am on a high dose of Flagyl.  I am not enjoying this.  Since I have started the Flagyl, I have been sick.  Side effects include runny nose, head ache, sinus congestion, congestion, joint pain and increased stomach pain.  I have read that these are some of the side effects, but will they go away soon??  I have to take this for 21 days....thats a long time.

crohnie42
Regular Member


Date Joined Dec 2006
Total Posts : 371
   Posted 10/5/2007 5:21 AM (GMT -7)   
take with food and try to take when going to bed, Drink alot of water with them
Michele
~~~~~~~~~~~~~~~~~
 
Female Dx'ed with Crohns Disease in 1992
Been on every med for crohns that exists
Several Fistula surgeries
Dx'ed with Colon Rectal Cancer March 2007
Dx'ed with Stage 2 Vulvar VIN
On Chemo and Radiation for 6 weeks


Susanknits
Regular Member


Date Joined Sep 2007
Total Posts : 33
   Posted 10/5/2007 5:27 AM (GMT -7)   
I've been on Flagyl for months with no problems other than they taste vile and. The stomach upset is a definite side effect, but the other symptoms sound like you could have come down with a cold or something. If it doesn't clear up in a day or two, and taking it with food doesn't help, you need to talk to your doctor about an alternative.

You can also try taking probiotics to help restore the natural (good) bacteria that the Flagyl is killing along with the bad bugs.

But don't just suffer, talk to the doctor.

Susan
48 year old female, dx with Crohn's 12/04 probably had it for 30 years. On Entecort, Pentasa, imipramine, vitamins. didn't respond to 6MP, Remicade or methotrexate. CT Scan shows several strictures with proximal dilatation and a 12" section that's inflamed.


goaliegirl484
Regular Member


Date Joined May 2006
Total Posts : 28
   Posted 10/5/2007 5:29 AM (GMT -7)   

thanks,

I can take it with food, but I have to take it three times a day....I think it also makes me spacy and hallucinate.  I spent about an hour yesterday looking at the ceiling watching little black lines wriggle all over...weird (couls also be the pred.).

I have had this flare up for a month now, with no change.  How long should I wait until I tell the doctor I want something more drastic in meds if it will take the pain away.  I mean he has extended the time that I am on the high dose of prednisone and now added Flagyl.  I have been in pain since Labor day with no relief.  My next appt is at the end of the month.  The side effects from these meds are not fun.  I'm sure the stronger meds are not fun either, but maybe they would provide some relief from the flare up.

 


Susanknits
Regular Member


Date Joined Sep 2007
Total Posts : 33
   Posted 10/5/2007 5:33 AM (GMT -7)   
are you on pred and entecort together? Isn't that overkill? I'm not a doctor, it just seems like an awful lot of cortisone in your body that could definitely be making you loopy, so to speak.

It really sounds like you need to see the doc sooner rather than later, and don't minimize the pain when you talk to him/her, we women have a way of doing that. Something just doesn'tt sound right.

susan
48 year old female, dx with Crohn's 12/04 probably had it for 30 years. On Entecort, Pentasa, imipramine, vitamins. didn't respond to 6MP, Remicade or methotrexate. CT Scan shows several strictures with proximal dilatation and a 12" section that's inflamed.


goaliegirl484
Regular Member


Date Joined May 2006
Total Posts : 28
   Posted 10/5/2007 9:32 AM (GMT -7)   
yeah, I am on both....they thought that would take care of it....but it didnt, so now they are trying Flagyl with the steroids. It is alot of steroids to be on and I dont really like it.
I dont know if they are trying to be too conservative...or what.
I know there are stronger meds to take and that they have bad side effects, but how long should i wait to see if the Flagyl works? 21 days on this is also a long time.
I would like this to go away. This is the longest flare up I have had. I cant take the percs for the pain because they make me sick, so i spend alot of time just laying on the couch vegging.

JaSanne
Veteran Member


Date Joined Oct 2006
Total Posts : 2044
   Posted 10/5/2007 9:45 AM (GMT -7)   
I agree that the steroids could be causing some of the symptoms other than the nausea. Call your GI about the side effects. Also let him/her know about the pain med problem. He may prescribe phenergan for the nausea and/or try a different pain med. You shouldn't have to suffer.
48 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.


xdeex
Regular Member


Date Joined Sep 2007
Total Posts : 42
   Posted 10/5/2007 10:33 AM (GMT -7)   
Hi Goaliegirl.

I was prescribed Flagyl back in 1999 for a flare or crohn's. I had side effects same as you, and also I started to develop a painful burning/tingling sensation to my hands and feet. It was worse in my feet and the slightest touch was very painful.

I was taken off the Flagyl but still had the pain, and a few months later I had tests to see if it was nerve ending damage. They results came back ok, and no futher treatment was given.........I just had to cope with it.

Even to this day I get the odd tingling in my toes, so obviously some damage was done.

Dont suffer like I did, call your GI.

All the best.
xxxxx
Diagnosed Crohn's 1994, panproctocolectomy with ileo Feb 2006.

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