remission, how did you get there?

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poobah
Regular Member


Date Joined Dec 2006
Total Posts : 136
   Posted 10/5/2007 11:48 PM (GMT -7)   
Im on pred (2nd week, 40 mg) and asacol. Felt alot better first week, now im going 2-3/day, with mild abdominal discomfort off and on.

Is this typical? Has anyone here tapered off pred successfully and gone back to just asacol (or no meds?).

I already hate the pred and want off ASAP. Must I be symptom free?

huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 10/6/2007 7:45 AM (GMT -7)   
I'm still having some symptoms about a month into a flare -- but feeling much better than when this all started. I started tapering Pred, but now my GI thinks I should up the dose because of ongoing issues with D on some days (not all). So far, I refuse to do this -- I can't stand the Pred. Am meeting with him on the 15th (if I don't get worse before) to discuss options.

I have the same questions -- is Pred the only way to get totally symptom-free? And, what is the definition of symptom-free? No D, No C, Eat anything? Or, just a manageable amount of symptoms?

At this point, things aren't perfect -- but I'm up and about and working and eating (low-residue, low fiber). Would rather exist at this level (I think) than up the Prednisone.
44 years old, newly diagnosed after an 8-day hospitalization in September 2007 but symptoms for several years before that.
Taking Pentasa, Prednisone (tapering), Cipro, Prilosec, probiotics, calcium and a multi-vitamin -- also Levoxyl for hypothyroid (Dx 2004)
Gall bladder surgery in 1997.
Single working mom to three wonderful kids, ages 9 to 15.

So appreciative to have this forum -- it's all new to me!


huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 10/6/2007 7:47 AM (GMT -7)   
Another thought poobah --

If you're having abdominal discomfort every day, that doesn't seem OK to me....
44 years old, newly diagnosed after an 8-day hospitalization in September 2007 but symptoms for several years before that.
Taking Pentasa, Prednisone (tapering), Cipro, Prilosec, probiotics, calcium and a multi-vitamin -- also Levoxyl for hypothyroid (Dx 2004)
Gall bladder surgery in 1997.
Single working mom to three wonderful kids, ages 9 to 15.

So appreciative to have this forum -- it's all new to me!


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 10/6/2007 3:26 PM (GMT -7)   
Clinical remission is defined as the absence of symtoms. Prednisone is not the only way to get symtpom free. Other meds have induced remission in some people. The trick is for the GI and you to find the med or combo of meds that works for you. Prednisone is intended only for short term use to get a flare under control by quickly reducing inflammation in the gut.

Good luck and relief soon!
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 10/6/2007 3:30 PM (GMT -7)   
Forgot to add that I obtained remission when I started on the Remicade and Imuran combo. Currently taking Humira and Imuran and my guts are still good [unless I eat lettuce]. That's another thing I should have said too - According to my GI, even people with normal guts can have a food or two that sends their guts into overdrive. So the goal is not to be able to eat everything but to be able to eat from all the categories of food with minimal problems.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 

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