endometritis and crohn's?

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New Member

Date Joined Oct 2007
Total Posts : 3
   Posted 10/7/2007 11:50 PM (GMT -6)   
Ok, I've been through hell for a while and am finally thinking of getting some tests run.  Originally I thought I was having cramping and abdominal pain associated with my menstraul cycle and horrific issues with gas, constipation and then diarreah.  My OBG found a "suspicious" ovary and a cyst in my uterus as well as some significant endometriosis during an ultrasound.  My GI symptoms have continually progressed and I have lost almost 15 pounds in three weeks.  Every meal can make things worse so it is hard for me to want to eat.  Recently I have been having constipation followed by projectile diarreah.  My surgery is this Thursday and I am thinking that I have maybe more going on than just the GYN issues.  I have a grandparent, a parent (though he refuses to go in for official testing), and an aunt with crohn's - so there is definatly family history.  Any thoughts or advice going foreward - anything that they should check into before my surgery?  I kept thinking that this was all just stress and nerves but I have had episodes like this more frequently over the past few years and just recently discovered the family history... 
Is U of Michigan a good facility to be involved with for these issues?  I notice that they have a website but wasn't certain if they were the best in the area (Mid Michigan).

Regular Member

Date Joined Jan 2005
Total Posts : 364
   Posted 10/8/2007 7:37 AM (GMT -6)   

Even though it's not the same as Crohn's, I have a friend who has diverticulitis. She had a bowel resection a couple of years ago, and recently started having some problems again. They dialated her intestine where the resection was done twice in a year, and then finally, her gynecologist did some testing. Turns out she had a "mass" above her uterus and endometriosis. She was concerned about how the surgery would affect the procedures she had already had done. Long story short, she had a hysterectomy, the mass was not cancerous, they removed adhesions and the endometriosis, and she is doing quite well! Finally pain free after about a year and a half of discomfort.

Veteran Member

Date Joined Oct 2006
Total Posts : 1991
   Posted 10/8/2007 1:37 PM (GMT -6)   
I have both diseases, though I've had a hysterectomy and my last surgery found no active endometriosis. I've seen a number of women here mention that they too have endo.

Since both diseases are abdominal, you can have some overlapping symptoms. Endometriosis has a characteristic look to it, so your doctor will be able to positively know through a laparascopy. It's been a long time since I looked at endo. information, but I think it can cause diarrhea and of course pain much like CD.

It sounds like you need to have the surgery for multiple reasons. I'm sure you've let your doctor know about your family history of CD, so he will keep that in mind while doing the surgery. You have to start somewhere, so this is probably the best way to go about finding out what's going on.
48 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.

Regular Member

Date Joined May 2007
Total Posts : 85
   Posted 10/8/2007 2:19 PM (GMT -6)   
I just would like to add a question based on the same question. Has anyone (diagnosed) with endometriosis ever had a ultrasound or sono that showed "fluid" around the uterus? In the process of trying to find out what was wrong with me two separate gyno's found this. The first decided to go in for a laproscopy and found my appendix was ruptured and oozing (her words), we really thought that was where all of the pain came from. Of course by my next period I was in severe pain again and sick as a dog. Months later I ended up at another gyno and had the same scan and found the same fluid, she did not seem concerned enough to do a laproscopy, instead she sent me to my current GI who has been treating me for Crohn's since May 07. I am up to 100mg of Imuran 4000mg Sulfasalazine and can't get down passed 20mg of Prednisone. Ever month like clockwork, 1 week before my period I am back in pain and sick again. This month has been worse, as if I am not on the meds again. I was thinking (after reading this posting) maybe I should consider asking for a laproscopy w/ both doctors involved to see what kind of alien is taking over my abdomen. I havent been able to really eat much since Wednesday (I actually went 2 days with no food) it just hurts. I see my doctor tomorrow. So please reply soon. I know he will want to change my meds or add more, I really hate to do that. Did I mention I hate taking meds?!

I wonder about Crohn's and Endometriosis being somewhat attached because there are so many women on this site with both. What is the deal, like women don't have enough problems already.? mad I am sorry someone else is having to go through it. It is not fun!
Dx w/Crohn's 5/07
Predinsone 15mg/day
Azathioprine 100mg/day
Sulfasalazin 4000mg/day
Flax Oil, Fiber Supplement, Multi-Vitamin

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 10/8/2007 4:06 PM (GMT -6)   
yeah I wonder about it being connected too
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I will find a way, or make one.-Philip Sidney
Make sure your suffering has meaning...

Veteran Member

Date Joined May 2003
Total Posts : 1671
   Posted 10/10/2007 1:03 AM (GMT -6)   
I don't know anything about those places in Michigan, but I hear wonderful things about the Cleveland Clinic if that's not too far for you. I also have a friend who was treated for endometriosis and has cd somewhere in southwest lower Michigan. Maybe Benton Harbor or St. Joseph. She did her research to find the best doc. I would be happy to find out who that was if you would like. I think he specifically treats endo because she saw someone else for cd.

Regular Member

Date Joined Apr 2006
Total Posts : 59
   Posted 10/10/2007 11:56 PM (GMT -6)   
hi there
i have been suffering from endometriosis since i was about 12, (now 24) but it of course went undiagnosed until i was 21. i went through so many tests and different routes natural and medical but it wasnt until i finally had a laporoscopy that i was successfully diagnosed with endo. thank goodness.
i though all my problems were over when 4 months later i was in the hospital with a terrible perianal abscess and then suagnosed with crohns.
i truely believe that they are related and that i've had them both for most of my life.
my endo has been controlled since i went on provera when diagnosed but i do have a new dermoid cyst growing on my left ovary. i had a large one removed from my right ovary back in 2001.
i just feel like its never ending. when my crohns is in remission, my endo acts up, when my endo is in remission, my crohns acts up.
its a never ending cycle.
i've been in remission for a while now since my ressection over a year ago, but last week i suddenly got an abcsess which was drained and now im going back in to have another one drained tomorrow and then hopefully i'll go on remicade next week because thats the only thing that helped my peri-anal crohns calm down.
as for the dermoid, my gyno is waiting to see if it gets bigger or causes me pain and then we'll talk about removing it.
it seems like its just one surgery after the next.
good luck!

Regular Member

Date Joined Oct 2007
Total Posts : 76
   Posted 10/12/2007 12:56 PM (GMT -6)   
I recently had a hysterectomy due to extremely heavy periods, horrible cramps and pain, and spotting in between cycles. The doctor found that I had endometriosis. I mentioned it to my GI on Tuesday, wondering if it was related to the Remicade. She told me that she didn't think it was, but that it was very common for women with auto immune diseases to also have endometriosis, and that's probably why I had it.

Best of luck with your surgery!
Asthma (diagnosed at 12)
Fibromyalgia (diagnosed 9/01)
Crohn's Disease/Colitis (diagnosed 12/02)
Diverticulitis (diagnosed 6/07)
Chronic pelvic pain/endometriosis, leading to hysterectomy (9/07)
Torn rotator cuff/labrum (repair 11/20/07)
Bladder sling (8/06), cholystectomy (2/06), tubal ligation (2/06), failed ablation (3/07)
Taking Lialda, Prednisone, Entocort, Remicade, Bentyl, NuLev, HCTZ, Lisinopril, Cymbalta, Effexor, Xifaxan, Flagyl, and pain meds.

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