How long did it take to get Remicade?

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Regular Member

Date Joined Sep 2007
Total Posts : 98
   Posted 10/8/2007 4:28 PM (GMT -6)   
I was just wondering how long it took after you and your doctor decided on Remicade to actually get the drug? My doctor and I made that decision about a month ago and I've gotten all the pre-op stuff done and I haven't heard anything from the doctor or anybody else. I'm really ready to start this so it will hopefully get my life back to semi-normal. I just wanted to know if it normally takes this long and if there is anything I can do to speed up the process.

Veteran Member

Date Joined Apr 2006
Total Posts : 1665
   Posted 10/8/2007 4:31 PM (GMT -6)   
it took me days. is your insurance holding you up?
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.

Regular Member

Date Joined Sep 2007
Total Posts : 98
   Posted 10/8/2007 4:53 PM (GMT -6)   
I have no idea what the hold up is? Is it common for insurance to be hold up?

Regular Member

Date Joined Feb 2007
Total Posts : 33
   Posted 10/8/2007 5:06 PM (GMT -6)   
Took about 6 weeks for me to finally get authorized
by my insurance company. (United Health Care)
Then another 2 weeks before I received my first infusion.
Had to have the TB test done.

58 yr old female
Dx with Crohn's-Colitis January 2007
Meds: Remicade, Aciphex

Regular Member

Date Joined Oct 2007
Total Posts : 106
   Posted 10/8/2007 6:02 PM (GMT -6)   
I got remicade two weeks after my doctor decided for me to be on it. I would try to contact your doctor and your insurance provider to see why its taking so long.

Regular Member

Date Joined Jul 2003
Total Posts : 481
   Posted 10/8/2007 6:05 PM (GMT -6)   
I think it took about a month before I got started. I'm not sure what took so long, if it was the insurance company or just to get an appointment in the infusion center. Can you call your doctor and ask him? He would probably know best what step of the process they are on.

Regular Member

Date Joined Mar 2006
Total Posts : 494
   Posted 10/8/2007 6:11 PM (GMT -6)   
Hmm I am curious as well.  Can you let us know what happens? My current employer just merged with a much larger corporation and we are receiving new benefits.  I am already on Remicade, I wonder what will happen now if I have to switch providers in the middle of treatment? OMG, I can't even think about it.
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf and Remicade.

Veteran Member

Date Joined Feb 2006
Total Posts : 842
   Posted 10/8/2007 8:23 PM (GMT -6)   
It took me 3 or 4 days, if I remember correctly.
Crohn's Disease for a year and counting
Imuran: 150mg
Humira:finally got approval on 9/21, done with loading doses, starting biweekly schedule on 10/10
Dicyclomine and hyoscamine for intestinal cramping and spasms <--This link will be changing, but for now it works!

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 10/8/2007 8:47 PM (GMT -6)   
just a matter of days, for me....

Regular Member

Date Joined Nov 2006
Total Posts : 281
   Posted 10/8/2007 10:35 PM (GMT -6)   
I am in the middle of getting my approval done. I think that what happened in my case is that my doctor forgot to send the stuff on to the people in his office that needed to get it. I called him, asking what the heck was going on, why I was waiting so long and once I got them on it I have gotten them going. I got a call today from my nurse telling me that I should hear from her tomorrow morning about the insurance investigation. They went ahead and scheduled me to start my infusions for 9am on this Friday morning. I'm very excited.

Can anyone give insight into what I should expect, how I should feel after the first time?

Currently 3 x per day 1000mgs Pentasa, Entocort (3mgs), Prilosec, multi vitamin, biotin, Lortab, Librax (for spasms) & VSL#3 (for probiotics) or activia yogurt.

Preparing to start Remicade because I am steroid dependent now.

Forum Moderator

Date Joined Nov 2003
Total Posts : 7055
   Posted 10/9/2007 12:39 AM (GMT -6)   
My GI decided on a Thursday and I got my first infusion on the following Thursday. I could have had it sooner but had to do the TB testing first. Took my insurance 24 hours to give approval.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Regular Member

Date Joined Aug 2004
Total Posts : 24
   Posted 10/9/2007 5:38 AM (GMT -6)   
It would be days, should I decide to take out.  Remicade is one of the cheaper drugs of all the crohns drugs out there, so I would be suprised if insurance is holding it up.  Usually an insurance company wants you to fail at remicade before moving on to one of  the better more expensive drugs.

Regular Member

Date Joined Sep 2004
Total Posts : 229
   Posted 10/9/2007 6:42 AM (GMT -6)   
It took about 2 weeks for me once the doc decided that what I needed and then got insurance approval.

Hindy, I didn't think remicade was one of the cheaper drugs out there. I mean my insurance got charged $4000 dollars for my last infusion, and mine are 6 weeks apart.
Thanks!!!! (Hugs)

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Veteran Member

Date Joined Apr 2004
Total Posts : 1199
   Posted 10/9/2007 10:42 AM (GMT -6)   
I was in the hospital when my gi decided to put me on remicade we did all the testing that day and i had my first infusion that night.

Regular Member

Date Joined Mar 2006
Total Posts : 494
   Posted 10/9/2007 10:54 AM (GMT -6)   
Every time I have received my infusions, I have felt different.  (3 infusions so far) The first time I was fine, and then the next day I had serum sickness for a week and had flu like symptoms.  The second infusion was fine as I had benedryl with it, I got really nauseas during the infusion and just really tired.  The third time, I could barely stand up, and was extremely tired, I slept like 5 hours once I got home.  I know a lot of people say it makes you tired.  The next day I was feeling better though, and more normal.  It may take a few times before you really know how you will react to it. OMG I have to pee like every half hour once they start the infusion, so I can sleep very well during it, all that liquid makes me have to go sooo bad.  Anyone else experience this?
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf and Remicade.

Regular Member

Date Joined Sep 2007
Total Posts : 98
   Posted 10/9/2007 1:02 PM (GMT -6)   
I just talked to my doctors office and they just sent it off to the insurance yesterday. For some reason it took them 2 weeks to make that phone call which irritates me a little bit. This whole time i've been feeling like crap and they just hadn't made a phone call. Ugh! Either way, the people who deal with the insurance at their office said it would probably be one or two days before they got approval so hopefully by the end of this week I will be able to start. I really hope after waiting this long that the remicade actually works! Wish me luck!

Forum Moderator

Date Joined Feb 2003
Total Posts : 13366
   Posted 10/9/2007 4:40 PM (GMT -6)   
I had my Remicade within 3-4 days. No problems at all with the ins comp. Even when I my infusions were every 4 weeks, no problems.


Regular Member

Date Joined Jun 2006
Total Posts : 267
   Posted 10/9/2007 4:50 PM (GMT -6)   
It took me about a month before my insurance company (United Healthcare) approved my Remicade treatment, but once they finally did I had the first infusion within a week. You should contact your Dr. office and ask them what is causing the delay. Good luck!
Marci C.
38 years old, dx with Crohn's disease March 2007, currently on Humira, Entocort and hydrocodone (for pain), and Effexor

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