Diversion Colitis

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Beverly123
New Member


Date Joined Oct 2007
Total Posts : 1
   Posted 10/8/2007 3:50 PM (GMT -7)   
I have Crohn's and an iliostomy. Colonoscopy of rectal stump revealed diversion colitis....anyone know how this is treated for the long haul?
 
I am on Humira for Crohn's....Remicade gave me Lupus symptoms...
 

Living Not Well
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Date Joined Feb 2011
Total Posts : 3
   Posted 2/16/2011 1:24 PM (GMT -7)   
I have Diversion colitis . No remission since diagnosis in 2oo8 . Did all the conventional Meds and diets. Also have Crohn,s disease in remission since last year. Waiting for surgery. Can anyone tell me about post surgery life .....

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 2/16/2011 3:39 PM (GMT -7)   
What surgery are you waiting for?
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Living Not Well
New Member


Date Joined Feb 2011
Total Posts : 3
   Posted 2/18/2011 10:15 AM (GMT -7)   
Waiting for a Proctectomy... Removal of the rectum and rehook of the sigmoid to my colostomy

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 2/18/2011 12:49 PM (GMT -7)   
I had slightly different surgery in 1999, had panprocolorectomy to remove colon, rectum and anus so was a big op cause of all of the scar tissue from previous flare ups and surgery. Was in hospital for 8 days and abck to work after 5 1/2 weeks (however they did say would be in hospital for 3 weeks and off work for 3 months but then again never taken much notice of those time scales!)

Worst thing was they said to have an epidural for pain relief after surgery and they managed to insert it incorrectly and so didn't work at all but no one would listen so I had no pain relief for 7 days until I demanded they remove it in a more lucid moment. What people don't realise it that the druds in an epidural are opiates and if they push the dose up it scambles the brain and this is why I was in no fit state to insist they remove epidural.

Apart from that it was pretty plain sailing.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3110
   Posted 2/18/2011 6:04 PM (GMT -7)   
Beverly123~sorry I don't have an answer about diversion colitis shakehead

Living Not Well~ you should try the Ostomy Forum here...there are many of us who have had Proctocolectomies and can answer any questions you may have. When is your surgery scheduled?
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Living Not Well
New Member


Date Joined Feb 2011
Total Posts : 3
   Posted 6/3/2011 1:11 PM (GMT -7)   
Recently had a proctectomy for Diversion colitis. Also have Crohn, s disease. Tried many drugs without any improvement. The post op phase was a bit painful but at a month after the operation I am feeling very well . Now lookling forward to a healthier summer in 2011.
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