I've been on it a few months now and agree it's hard to follow but I think it's worth a try. One of the criticisms I read of the diet is that it is hard to discern on which subset of Crohn's suffers it will work (it seems to work really well on some and not so much on others). However from my limited experience with this disease that is the case for every single treatment/drug out there. So heck yeah - worth a try, especially if it helps so much that it wards off use of drugs that can definitely cause bad side effects.
I wish I had more in the way of results to offer, but as I didn't really have "D" prior to starting it, and that is one of the ways one can maybe tell if something in particular is helping Crohn's, I don't have much to say. I will say that my abdominal pain has pretty much disappeared, but I am already well aware of the cyclical nature of this disease and do not think I can draw any conclusions based on that.
I can say that I strongly suspect I have had a wheat addiction as when I cut out that particular food I had a few really horrible days. I was disoriented, could not think, felt completely awful and had to fight the urge to grab a piece of bread to make it all better. From what I've read, this could mean that my bad gut flora were being well fed by my inability to fully digest complex carbohydrates, and so were thriving on them. Feeding the bad guys can (and this will be a horribly inaccurate summation of what I've read) cause byproducts of the bad bacteria to cause an acidic environment that damages the gut, further impeding carb. absorption and giving the bad flora even more fuel. The leaky gut throws chains of food into your bloodstream that aren't supposed to be there, causing an autoimmune response. It's all very interesting and I don't claim to understand it at all fully, but something rings true about
this approach for me.
36 year old mother of a fabulous toddler named Mara. Symptoms began after Mara's birth, with widespread pain/stiffness and mucus in stool. Had seen blood in stool for years prior but believe (and still suspect) hemorrhoids and/or fissures for this particular manifestation.
STARTED LOW DOSE NALTREXONE SEPT. 26TH www.lowdosenaltrexone.org. Also see: http://www.ncbi.nlm.nih.gov/sites/entrez?db=pubmed&cmd=Retrieve&list_uids=17222320
Diagnosed with Crohn's July 2007. The only visible areas of inflammation via scope were my stomach, rectum, and somewhere else in my colon (was too out of it to hear where, exactly). Pill cam, SBFT, CT Scan all were normal.
TRYING MY BEST TO PRECLUDE FUTURE COMPLICATIONS.
On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).
Current biggest complaints: LRQ fullness and burning now gone. Gastritis symptoms are also quiet now. What was horrible right hip and low back pain has subsided about
60%. I'm pretty much feeling normal since the SCD/Supplements/Naltrexone but the fatigue still occurs and I in no way think I do not have more symptoms in my future.
Post Edited (killerzoey) : 10/9/2007 12:22:24 AM (GMT-6)