Specific Carbohydrate Diet

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pollymo
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/8/2007 4:36 PM (GMT -7)   
Has anyone tried it?  It sounds really difficult but the book and testimonials make it sound like it's a cure all. 

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 10/8/2007 9:39 PM (GMT -7)   
My daughter tried it, strict SCD for about 4-5 months, then added rice and potatoes.
 
Because the Entocort already had her in remission, and she never gets D, we couldn't tell whether it was working or not.
 
Before you start the diet, make sure you read the book and check out the www.breakingtheviciouscycle.info website for the list of legal and illegal foods. It's tough to follow, so it's important to fully understand it before starting. No sugar is allowed, including dextrose...which we found in table salt! And the cheese issue is confusing...the author died before she could resolve the issue of whether cheese needed to be aged at least six months, or not (to get rid of the lactose).
 
It's a very healthy way of eating. Can't hurt to try it. The homemade yogurt is one of the best parts.

killerzoey
Regular Member


Date Joined Jul 2007
Total Posts : 161
   Posted 10/8/2007 11:15 PM (GMT -7)   
I've been on it a few months now and agree it's hard to follow but I think it's worth a try. One of the criticisms I read of the diet is that it is hard to discern on which subset of Crohn's suffers it will work (it seems to work really well on some and not so much on others). However from my limited experience with this disease that is the case for every single treatment/drug out there. So heck yeah - worth a try, especially if it helps so much that it wards off use of drugs that can definitely cause bad side effects.

I wish I had more in the way of results to offer, but as I didn't really have "D" prior to starting it, and that is one of the ways one can maybe tell if something in particular is helping Crohn's, I don't have much to say. I will say that my abdominal pain has pretty much disappeared, but I am already well aware of the cyclical nature of this disease and do not think I can draw any conclusions based on that.

I can say that I strongly suspect I have had a wheat addiction as when I cut out that particular food I had a few really horrible days. I was disoriented, could not think, felt completely awful and had to fight the urge to grab a piece of bread to make it all better. From what I've read, this could mean that my bad gut flora were being well fed by my inability to fully digest complex carbohydrates, and so were thriving on them. Feeding the bad guys can (and this will be a horribly inaccurate summation of what I've read) cause byproducts of the bad bacteria to cause an acidic environment that damages the gut, further impeding carb. absorption and giving the bad flora even more fuel. The leaky gut throws chains of food into your bloodstream that aren't supposed to be there, causing an autoimmune response. It's all very interesting and I don't claim to understand it at all fully, but something rings true about this approach for me.
36 year old mother of a fabulous toddler named Mara. Symptoms began after Mara's birth, with widespread pain/stiffness and mucus in stool. Had seen blood in stool for years prior but believe (and still suspect) hemorrhoids and/or fissures for this particular manifestation.

STARTED LOW DOSE NALTREXONE SEPT. 26TH www.lowdosenaltrexone.org. Also see: http://www.ncbi.nlm.nih.gov/sites/entrez?db=pubmed&cmd=Retrieve&list_uids=17222320

Diagnosed with Crohn's July 2007. The only visible areas of inflammation via scope were my stomach, rectum, and somewhere else in my colon (was too out of it to hear where, exactly). Pill cam, SBFT, CT Scan all were normal.

TRYING MY BEST TO PRECLUDE FUTURE COMPLICATIONS.

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).

Current biggest complaints: LRQ fullness and burning now gone. Gastritis symptoms are also quiet now. What was horrible right hip and low back pain has subsided about 60%. I'm pretty much feeling normal since the SCD/Supplements/Naltrexone but the fatigue still occurs and I in no way think I do not have more symptoms in my future.

Post Edited (killerzoey) : 10/9/2007 12:22:24 AM (GMT-6)


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 10/9/2007 2:24 AM (GMT -7)   
Hi I have done this diet and it works. Its not hard. You just have to make the choice to want to
lose weight.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Skjura
Regular Member


Date Joined Jun 2007
Total Posts : 210
   Posted 10/9/2007 8:31 AM (GMT -7)   
teddybearweiser...

I am not sure I understand, ... have you stopped using the SCD diet, since you are on so many different medications?


From Ingrid
 
Diagnosed CD June 2007. Have been on a minor prednisone medication. Did make a difference while max dosed. Got my problems back when tapering.
 
Using Low Dose Naltrexone from sept. 2007. See yahoo.com. A member in the group "lowdosenaltrexone" at yahoo.
 
Use home made scd yoghurt containing a lot of probiotics - a benefit for the intestines. I don't use white sugar. No yeast in glutenfree, homemade breads.


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 10/9/2007 9:56 AM (GMT -7)   
I was on it for 6 months and it totally worked, but I think the idea of coming completely off your meds should not be a short term goal - if ever. The diet can naturally do for the gut what some medicines can't. For me the meds weren't helping because I was in too severe of a flare and the diet helped calm things down enough for my meds to actually work. I never got off my meds, but that wasn't my goal either. I say it's worth a try. Good luck to you!
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