Hello all! My name is Shannon, and I just stumbled upon this site while doing a search about Remicade. The Crohn's is my main issue....between being sick from that and what the medications do to me, it's caused so many problems. I take Lialda, 10mg of Prednisone, 9mg daily of Entocort, 5 vials of Remicade, 80mg of Nexium daily, 40mg of Bentyl a day, HCTZ, Lisinopril, Soma three times a day, Frova for migraines, Nulev for pain, Lomotil for diarrhea, a multivitamin, iron, B-Complex, and Vicodin for pain (which doesn't do a whole lot). I was diagnosed with asthma at 14, started having pelvic pain at 17, began having the first issues with Crohn's after my second child was born. After my third, there was no doubt that I had Crohn's, and was finally diagnosed. I tried lots of different medications, some that did nothing, others, like 6MP, I had allergic reactions too. I started Remicade about 4 years ago, but went off while I was pregnant with my fourth child. I went back 2 weeks after his birth and had serum sickness after the infusion, because of the antibodies my body had made. I ended up tearing my rotator cuff and labrum during this time, probably which struggling with a newborn and 3 other kids with joints that didn't want to move. I had my gallbladder out a few months later, and had my tubes tied at the same time. 6 months later, I had a pubo-vaginal sling put in to hold up my tired, leaking bladder. 5 weeks ago, I had a supracervical hystectomy, and found out that my problems with my period were due to endometriosis. also have diverticulitis, acid reflux, and fibromyalgia.
This discovery about the endometriosis made me wonder if there was any correlation between shutting down your immune system and having endometriosis develop. According to one thing I read, less than 2% of Remicade recipients develop issues like that. I'm still not feeling well after having the surgery, and in fact, I see my GI tomorrow, but I wonderif now my Crohn's will improve with the endometriosis gone? Has anyone else been on Remicade and developed endometriosis? I know I have to discuss this with the GI tomorrow since it seems that every little thing that happens with Remicade has to be reported (being pregnant after being on Remicade, resuming Remicade after a pregnancy, any adverse reactions during infusions, reactions in the days after the infusion), but I wonder how often it actually happens, or perhaps I'm just a freak? LOL
Thank you all for reading!
Chronic pelvic pain/endometriosis
Torn rotator cuff/labrum
Bladder sling, cholystectomy, tubal ligation, failed ablation
SORE SORE SORE, ALL THE TIME!!!!!