OT.. LUNG and fever update

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randynoguts
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Date Joined Jan 2003
Total Posts : 6049
   Posted 10/9/2007 8:51 PM (GMT -7)   
ok so today i had my 3 month check up with the pulmonologist. had my CT scan before hand. more nodules in the lungs or i should say "on" the lungs. seems they are on the outer surface to just inside the outer layer of the lungs. a couple dissapeared since june , but some new ones appeared. and the fevers, had a break for a few months and now in the past 3 weeks i have had 2 each lasting 2-4 days at 103-105. so they sent me for a ultra sound of my veins looking for blood clots that may be causing the fevers and the nodules by being very small and going all the way into the smallest vessels in the lungs( to the outer edge) and causing inflamation, which could be triggering the fevers. well the only clot they could find was in my left shoulder and that has been there since the fevers started in sep of '05.  sooo, back to the drawing board. so what a nice way to spend 7 hours at the hospital.  oh and more blood cultures to be done next fever. ( nothing ever grows). the last resort would be a surgery to get a piece of lung to check. but that wont be unless i get a rapid growth of these nodules or i get other symptoms.    cant do a needle biopsy as they are too small.  well thats it. tongue
randynoguts 



     http://www.geocities.com/randynogutsweb/


dunny2
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Date Joined Jan 2007
Total Posts : 3200
   Posted 10/9/2007 8:56 PM (GMT -7)   
On and on it goes Randy, but you always seem to keep your chin up. You're something else....LOL
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 10/9/2007 10:23 PM (GMT -7)   
Geeeeez Rando,,wish I had some idea of what this could be. Alas, I am no golfer either so guess I dont qualify as the medical type. Hope you find out what causes this soon or that it stops buggin you.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


BullfrogKen
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Date Joined Nov 2004
Total Posts : 1351
   Posted 10/9/2007 10:45 PM (GMT -7)   
Randy,

You just catch all the breaks, don't you? I feel for you, buddy.


Too bad you can't go see Dr. House.

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 10/10/2007 12:48 AM (GMT -7)   
BFK, instead of house , how about DR. Feelgood?
randynoguts 



     http://www.geocities.com/randynogutsweb/


Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 10/10/2007 6:28 AM (GMT -7)   
I think Nurse Ratchet,,maybe..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/10/2007 6:33 AM (GMT -7)   
Doesn't it always seem like that is the way it goes. You have all these things going on in your body, you feel them, and they do their tests and find things, but you still have no answers. I hate this disease! Hang in there Randy, hope they can figure out what's going on.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


humboldtmom
Regular Member


Date Joined Jun 2003
Total Posts : 280
   Posted 10/10/2007 9:31 PM (GMT -7)   
Randy, sorry you're still having to deal with this, I SO hope they get this figured out for you. I hear from my daughter you're getting lots of rain. ( I know, duh, it's Seattle) The nice part is, the storms have come down here and we really needed some rain. Best Wishes, Bets

Poopington McToot
Regular Member


Date Joined Jul 2005
Total Posts : 315
   Posted 10/11/2007 9:27 AM (GMT -7)   
as long as it's not that crazy doctor from the Saw movies looking after you.

hope you're feeling better soon.

I remain.....

Poopington McToot
It's easy to grin, when your ship comes in...and you've got the stock market beat.  But the man worthwhile, is the man who can smile, when his shorts are too tight in the seat.


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 10/11/2007 12:21 PM (GMT -7)   
(((hugs))). Your doctors ever ask you if you "enjoy" being difficult??? ;-)
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 10/11/2007 6:00 PM (GMT -7)   
ok, update on the update... Dr called today. the only colt thye could find was the one from 2 years ago. coincidently it was found 1 month after my fevers started. HMM? any how she says, i tcould be that this long lived clot is infected and maybe is the cause of the temps. so to break it up i could go on coumadin for 6 months. we discussed this for a bit and i told her , uh, NO. i have a history of hemorahging in my intestines and i thought thr isk was to big. she said ok it was just a thought. so here i sit with the same no answer.. randy
randynoguts 



     http://www.geocities.com/randynogutsweb/


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 10/11/2007 6:34 PM (GMT -7)   
How about sending your story in to Fox TV for a House episode? Then you could maybe get an answer, some $$ for your story, and you could even play the patient. This would all take about a year, so that won't help much with your immediate problem, but still - House could use some good story lines, it's getting boring.

Seriously tho, I hope you and your docs figure out what's wrong ASAP. It must be so frustrating....
CD dx'd Aug 05. Initially on Pentasa, now on Imuran 125 mg and iron.

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