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schoolgirl
Regular Member


Date Joined Oct 2007
Total Posts : 35
   Posted 10/10/2007 1:21 PM (GMT -7)   
Hello folks- I'm brand new to this forum and excited to find you folks!  I'm 52 and was just diagnosed late Aug with Crohn's - 5 years after being dx with celiac disease.  Was also dx type II diabetic last winter.  Fortunately, the Crohn's is in a moderate state w/o any obstructions.  I have mixed feelings right now.  The Crohn's explains why I never really got well after eating gluten-free for all those years so there is hope for the future.  The diabetes is mild so no meds needed and hoping it will stay that way.  But I'm a little overwhelmed too.  I can see that I could be a whole lot sicker than I am but from what I'm reading about Crohn's, it could scare one half to death thinking of the possibilities. But I'm a survivor and do not sit down and feel sorry for myself much - well, sometimes. 
 
Actually, I figured out this week that it's time for me to slow down and get healthy and I've informed several people that I will not be taking on any new commitments over the next several months.  A major step for me and one that seems to be well supported so far.  I call myself schoolgirl because I've been a "professional student" for many many years and finally finished with an MBA just last year. 
 
I read the OT thread about the old-man driving - boy can I relate!
 

Dx with Crohn's Aug 2007; celiac sprue July 2002; Type II diabetes Nov 2006.  Current meds: Entocort, Asacol, Levoxyl, Fosomax, various vitamin supplements.


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 10/10/2007 1:44 PM (GMT -7)   
Welcome! You might want to check out a diet designed for patients with Crohn's and ulcerative colitis called the Specific Carbohydraten Diet (SCD). It is based upon the original Celiac diet...which is more than gluten-free...it is grain-free.
 
The author of the book, "Breaking the Vicious Cycle," argued the original celiac diet, grain-free, is more effective than the gluten-free diet.
 
Perhaps the SCD can help you with both celiac's and Crohn's. There are a lot of testimonials on Amazon.com. It might or might not work, but at least it is a healthy diet. And we are big believers in the homemade yogurt part of the diet.
 
 
 

Erik45
Regular Member


Date Joined Oct 2007
Total Posts : 149
   Posted 10/10/2007 2:29 PM (GMT -7)   
Welcome schoolgirl, I'm new to these forums as well. Gool luck and stay well.

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 10/10/2007 3:18 PM (GMT -7)   
welcome . schoolgirl and erik45.
randynoguts 



     http://www.geocities.com/randynogutsweb/


schoolgirl
Regular Member


Date Joined Oct 2007
Total Posts : 35
   Posted 10/10/2007 4:47 PM (GMT -7)   
I've seen references to the special carb diet and had looked briefly at the link you provided.  But at second glance, it looks worth getting the book in order to see the full picture.
 
Thanks for the suggestion.  I see the GI tomorrow for follow up and will see how many of my other questions she answers - or if it just sets off more questions LOL.
Dx with Crohn's Aug 2007; celiac sprue July 2002; Type II diabetes Nov 2006.  Current meds: Entocort, Asacol, Levoxyl, Fosomax, various vitamin supplements.


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 10/10/2007 7:18 PM (GMT -7)   
Welcome to HealingWell! This is a great site for support & info, I'm glad you found us, but sorry you needed too.
Oh well.

Sincerely,
Matthew

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 10/10/2007 7:26 PM (GMT -7)   
Welcome,we are glade to have you.
Curley
.........
 


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 10/10/2007 7:35 PM (GMT -7)   
Welcome. It seems you have done a lot of reading, which is wonderful. Just don't scare yourself. Everything you read is a possibility, not a probablity. There are some people here who have had every worse case scenario happen to them, there are others who have very mild cases. Most of us fall some where in the middle. The best thing you can do for yourself is get educated and you are already doing that. Please ask any questions you have. We talk about everything, after all CD is a disease that involves all the wonderful bodily functions that most toddlers are facinated by, so I guess we are just little kids at heart. I hope you get some answers at your doctors appointment, but if you leave and think of more questions, you know where to come.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/10/2007 8:21 PM (GMT -7)   
Just like to add my welcome. Hope to see you often.
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 10/11/2007 3:34 AM (GMT -7)   
Hi Schoolgirl and Welcome, You are with good friends here.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


mama2jmt
Regular Member


Date Joined Mar 2007
Total Posts : 301
   Posted 10/11/2007 7:53 AM (GMT -7)   
Welcome schoolgirl,it's good to meet you.Take care.
~Jennifer~
Official Crohns DX-march 2004.Pentasa 4000mg,B12,Probiotics
         1 resection
Cardiomyopathy DX-may 2004.Coreg,Altace,Digitek,Lasix,Potassium,very low-sodium diet
          


mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 10/11/2007 9:06 AM (GMT -7)   
yeah  
Welcome to the family! Please ask any questions and respond to questions posted too. We all work together to get the answers and support we need. Best wishes!
 
 
Marci C.
38 years old, dx with Crohn's disease March 2007, currently on Humira, Entocort and hydrocodone (for pain), and Effexor


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/11/2007 12:58 PM (GMT -7)   
Hi and welcome I also am over 50 too , oh for the good old days. I have found much needed info and help here the people are very caring and such a comfort .lol gail

schoolgirl
Regular Member


Date Joined Oct 2007
Total Posts : 35
   Posted 10/11/2007 4:20 PM (GMT -7)   
Thanks for all the warm welcomes! I can tell this is a great bunch of people.

Saw the GI today. She seems to think I'm very "special" having celiac and crohn's I really like this doc and I think we'll work well together with my primary care who is also an internist. My big challenge now is to convince my 2 boys to get tested. The 32 year old started having problems a couple of years ago while the 26 year old has had problems since high school. They are both in denial and avoid discussing it with me. Now that I've talked with the GI, I'm going to get the family to sit down and discuss the whole thing thoroughly. It's one thing to have celiac - crohn's is a whole other matter.

Anyway, I feel good after today's visit. Lots of challenges ahead for sure, but there is still that glimmer of hope!
Dx with Crohn's Aug 2007; celiac sprue July 2002; Type II diabetes Nov 2006.  Current meds: Entocort, Asacol, Levoxyl, Fosomax, various vitamin supplements.


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 10/12/2007 12:19 AM (GMT -7)   
Welcome....this is a great "family" that will support you every step of the way. Glad you found us. Come visit us often.
Mary
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


JUMPER
Regular Member


Date Joined Feb 2007
Total Posts : 74
   Posted 10/12/2007 12:41 AM (GMT -7)   

Welcome aboard as I am sure you are already aware you will find lots of great people here that are fulll of great advice and you can lean on a bit when you are not feeling strong.

 

Stay well

 

Jumper


That which does not kill us makes us stronger.
Friedrich Nietzsche

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