Before I was diagnosed with Crohn's I just knew something was wrong. My arms and legs were and still sometimes go numb and tingle. I have a lot of memory loss....especially visual memory loss. For example, one time when I was out shopping by myself I couldn't get into my car and drive home because I couldn't bring up the visual image of my key pad. Even though I had my keys in my hand and was shaking them in front of my face I did not recognize them and my keys. Also, I drop things sometimes. It's like the signal to keep my hand grasping an object just gets interupted and the object falls. I have a lot of fatigue as well. Anyway the reason I decided to write this message was that I began these symptoms before going on any Crohn's medication. I also saw a neurologist who ran a CT scan and evaluated me and said that I had no neurological problems. I really think it is the Crohn's causing the problems.
I forgot to mention in my previous message that I, too, am on Lipitor and Prilosec. Maybe some of our neurologic symptoms could be caused by these drugs. What do you think?
marie- it does totally make sense that one autoimmune disorder would overlap onto another, whoch would make sense in this situation.
ides- i see how it could be the crohns thats is causeing all this, especially with all the new stuff that i read. im definitley going to bring it up to my GI so he and my neuro can talk. i just gotta figure out how to do it:) and i feel like i am ready to try something else like humira or something becasue even though i just started doing the double dose of the remicade i dont think its going to work, and it hasnt helped yet. i just have to get off these steroids.
momikins- im sorry that you have these symptoms as well, im sorry that all you guys are having problems. i just get so frustrated becasue i was FINE before i started with this whole CD thing and started on the remicade.
andorable- i have had an MRI of my brain, cspine and thorasic spine and for now they are clear. those are what i have to have repeated every 4 months to check to see if i have developed any lesions. my neuro has settled on possible MS but he cant really pinpoint why but he does say that he would feel better of i was off of the cade.
thanks guys for all your responses, once i fugure out how to talk to the doc and once i get the opportunity to i think ill feel better. im just nervous i dont want to seem like i am questioning him, ya know?
well thank you :)
just bumping to see if anyone else had anything else :)
i tend to get the strangest side effects from meds, and i usually need the hiighest doses to get a theraputic effect so it would be no wonder to me if the remicade did this to me. or it could be prednisone i was on it for almost a year 60 mg for about 8 months then the taper.
i told my GI about it and he didnt seem to think thats what its from but my neuro says he wont be entirely comfortable till im off of it. i think im gonna do a wait and see approach, i see the neuro again in 3 months and if he still wants me off the remicade im going to have him consult with my GI.
thanks for the information, it really does make me stop and think about all this.
ill hope for you that its not neuritis, ill be thinkin of you
WOW! I was just thinking about checking Healingwell to see if anyone was experiencing the MS symptoms, and out popped Bunnypuckers post at the top of the list. Weird.
Anyway, I have had CD for 5 years and recently went to have a CT scan of my brain since I suffer with migraines. They originally thought I had had a stroke, so they called for an MRI and found 3 lesions typical of MS. My doc is sending me to the MS center at Johns Hopkins for an official diagnosis. On top of they, they did a rheumatoid factor test with was 57, so they are sending me to a rheumatologist as well. I know a lot of folks with CD have rheumatoid arthritis, but I was surprised to get a Probable MS diagnosis. I have had bizarre medical issues my whole life, but I didn't think they were connected until now. The eye inflammation (optic neuritis) started earlier this year, along with the numbness and tingling sensations. Is there anyone else on this board suffering from all three (CD, MS and Rheumy) of these auto-immune diseases? I've had just about every extra-intestinal manefestation of CD that you could possibly have. Right now my Crohns is in remission, but the Probable MS symtoms are still there. Please advise.