Pred Taper Rate?

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Idolwild
Regular Member


Date Joined Sep 2007
Total Posts : 29
   Posted 10/11/2007 2:56 PM (GMT -7)   
I was wondering what all you have experienced in the past as far as taper rate goes. I've been on 40mg for a few months now and my GI Doc is taking me off at a rate of 5mg a week - just trying to get a comparo.

- Darren

Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 10/11/2007 3:12 PM (GMT -7)   
I ttried to stop at 5mg and had adverse effects so i went back on and Im coming off slower.
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 160lbs). On HUMIRA, Prednisone
myspace.com/finalmacgyver


croony
Regular Member


Date Joined Aug 2006
Total Posts : 177
   Posted 10/11/2007 4:32 PM (GMT -7)   
when i was on it this was my weening schedule:
 
5mg down every 2 weeks(60mg. 30 in a.m. 30 in p.m.) until 25mg. stayed at that dosage for a month then the g.i. had me ween down 2.5mg. every 2 weeks.
 
took me 6 looong months to get off.
 
 
38 yrs old male. dx with cd of ileum June 2006.
3 feet of large intestine and 1 1/2 feet of small intestine removed because of complications from diverticulitis (fall '03) i.e. hartman's surgery(starting to wonder if i was misdiagonized and was actually CD)
med. : 100mg imuran ,remicade Dec.06 every 6 weeks
 arthritis in fingers and knees


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 10/11/2007 7:42 PM (GMT -7)   
Tried the 5mg, didn't work well. Doing 2.5 every 2 weeks now. Currently down to the first 10mg week in over a year and a half. Think I'm hitting another wall. Not having the D, but have felt incredibly fatigued and crappy this week. Maybe it's just the withdrawal again.
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


hendersonjames
Regular Member


Date Joined Sep 2005
Total Posts : 89
   Posted 10/11/2007 7:45 PM (GMT -7)   

One doc had me going down 2.5/week after I got below 20 mg. 

This time I was going to try a little faster than 5/week but a different doc said no faster than 5/week.  At the end of my first week at 15 I started to feel some obstruction so I've held at 15 for a  second week.


Kanditron
Regular Member


Date Joined Oct 2006
Total Posts : 148
   Posted 10/11/2007 7:54 PM (GMT -7)   
we're tapering me down 5mg every two weeks. I just started today so, wish me luck!
25 years old
Diagnosed 9/06 with Pancolitis. The diagnosis was changed 9/20/07 to Crohn's disease.
Located in my large intestines, stomach, and mouth.
Asacol 3 3x's a day reinstated 9/20/07
Methylpred 40 mg a day.

myspace.com/kandice789


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 10/11/2007 8:25 PM (GMT -7)   
My first GI had me drop from 60 to 40, and then by 10 mg every 10 days.  The new one put me back on a 40mg and had me drop 10mg per week until I hit 20 and the by 5mg per week.  I drop to 5mg tomorrow, and by this time next week I'll be done taking Pred.  Hopefully.  The last couple of weeks have been rough.  My guts have been OK, but I've been really tired.  Then I started taking my multi-vitamin and a potassium pill at lunch again, and my afternoon energy levels have been great for the last two days.  I'm still a little tired in the mornings, and by about 6:30 or so I'm pretty wiped out.  But I feel great in the afternoon.

dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 10/11/2007 11:03 PM (GMT -7)   
hi darren, i started on 40mgs for 2 weeks, saturday i go down to 30mgs for 2 weeks, then 20, 15, 10, 5, all in 2 week increments. looking forward to tapering that is for sure. went to bed at 10pm, with my sleeping pills and here i am, been up since 12:30am!! hopefully i will feel tired soon. sorry for the vent!
.: stephanie :.
32 y/0 female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
currently taking 40 mg prednisone and 4000mg pentasa daily


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/12/2007 6:42 AM (GMT -7)   
My last taper was down 5mg every 5 days. I started at 30 mg. When I got to 20 mg. I had to briefly go back to 30 mg. but my taper stayed the same.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

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