Good news...sort of - dx w/ perianal crohns's

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KAnn
Regular Member


Date Joined Jul 2007
Total Posts : 60
   Posted 10/13/2007 10:44 AM (GMT -7)   
It's been a while since I posted about having fistula surgery (end of July)  I also had a CT-enterography to take a look at the small bowel.  Turns out my official dx is perianal (sp) crohn's.  I am so relieved to discover my small bowel is completely unaffected!  Turns out all my problems are in the lower colon and rectum with low lying fistulas.  Of course it's still no picnic.  My fistula surgery/seton placement definitely helped with the infection, but I also had a vaginal fistula track and unfortunately it did not close.  It really stinks to go back for a follow-up and have the surgeon say, "Well, it was a valiant effort."
 
My GI says he HATES steriods and doesn't want to use them - especially since my small bowel is not affected.  After we talked for a little about my worst complaints (rectal pain and arthritis) WE (is was nice having real input in my treatment) decided to try steriod suppositories as needed and he put me on sulfasalzine.  After two days with the sulfasalazine, I have a bit of a headache, but the joint pain is considerably better and no cd symptoms!  Could be coincidence because I've been having mostly good cd days recently anyway.
 
We'll see what happens.
32 yrs old - dx'd w/ Mild CD in 2004 after 5 yrs of IBS (I swear it's from food poisening - bad fish from McD's) 2 fistulas (1 recto-vag).  Asacol for a while at first - now just on a round of Flagyl, diet control and pain meds for really bad days. Getting ready for seton placement. 
 


huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 10/13/2007 5:21 PM (GMT -7)   
I'm glad you're feeling optimistic!

I love the title of your post. Where else but HW would you see being diagnosed with perianal crohn's be listed as "GOOD NEWS!"

:-)
44 years old, newly diagnosed after an 8-day hospitalization in September 2007 but symptoms for several years before that.
Medications: Pentasa, Prednisone (tapering), Cipro, Prilosec.
Supplements: probiotics, calcium, vitamin C, vitamin E and a multi-vitamin.
History of hypothyroid (dx 2004, taking Synthroid) and gall bladder surgery (1997).
Single working mom to three wonderful kids, ages 9 to 15.


SoCalDad
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/14/2007 1:25 PM (GMT -7)   
My first post on this site..

I will start a thread with info on my Daughter when I have more time

KAnn...

Good thing you have no indication of widespread Chrons

..Did your Doc mention any any additional Medication for you to consider..Remicade..Imuran..??..

Post Edited (SoCalDad) : 10/14/2007 11:21:22 PM (GMT-6)

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