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wanderlust
New Member


Date Joined Oct 2007
Total Posts : 10
   Posted 10/14/2007 11:43 AM (GMT -7)   
  I have had CD for over 50 years, for the last 20 years or so, I can always tell when I am going to have a flare up, even befor the pain starts, I get the Night sweats so bad, I have to get up several times a night to dry off, and have to sleep on pads to keep the bed try.  Does any one else experience this...

DarrylP
Regular Member


Date Joined May 2006
Total Posts : 214
   Posted 10/14/2007 11:52 AM (GMT -7)   
wanderlust said...
  I have had CD for over 50 years, for the last 20 years or so, I can always tell when I am going to have a flare up, even befor the pain starts, I get the Night sweats so bad, I have to get up several times a night to dry off, and have to sleep on pads to keep the bed try.  Does any one else experience this...
Yup, i had the same, but for me it was before i was diagnosed and before being medicated. Part of the reason for this though i think was because i had a low grade fever for 3 months before they figured out what it was. When i was on high doses of Pred this was still the case, but once again, since Pred makes your body kick into overdrive, it would explain this. Since i have gotten off the Pred and gone into remission i stopped the sweating
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 10/14/2007 2:16 PM (GMT -7)   
I still sweat on occasion since off pred. Some nights I have to use my heating pad so I turn the AC on and I still wake up drenched. Other nights for no known reason I sweat a lot too.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


reynoldi
Regular Member


Date Joined Aug 2005
Total Posts : 244
   Posted 10/14/2007 3:36 PM (GMT -7)   
i also get night sweats they seem to go along with abcess amounts
"If thou wilt be observant and vigilant, thou wilt see at every moment the response to thy action. Be observant if thou wouldst have a pure heart, for something is born to thee in consequence of every action." -Rumi-
 
CD for 15 years diagnosed at age 11(i get the crohns cycle)


equinelvr
Regular Member


Date Joined Oct 2007
Total Posts : 31
   Posted 10/14/2007 3:45 PM (GMT -7)   
yes, I get the sweats during the day too. I had a hesterectomy so I know it's partly due to hormones but I has them before the surgery. It seems they are worse when I have a flare up. Has anyone talked to their Dr. about it?

bluemeanies
Veteran Member


Date Joined Jun 2004
Total Posts : 1372
   Posted 10/14/2007 5:00 PM (GMT -7)   
Yep. I get them off and on. Sometimes during the day too.
 


crohnie42
Regular Member


Date Joined Dec 2006
Total Posts : 371
   Posted 10/14/2007 7:10 PM (GMT -7)   
I seem to have gotten the night sweats since starting Humira
Michele
~~~~~~~~~~~~~~~~~
 
Female Dx'ed with Crohns Disease in 1992
Been on every med for crohns that exists
Several Fistula surgeries
Dx'ed with Colon Rectal Cancer March 2007
Dx'ed with Stage 2 Vulvar VIN
On Chemo and Radiation for 6 weeks


Bulldog Fan
New Member


Date Joined Oct 2007
Total Posts : 15
   Posted 10/14/2007 7:52 PM (GMT -7)   
Strange you should bring this up.  I was just diagnosed with Crohn's on 10/9/07.  I am 37 years old.  I suffered from night sweats about 2 weeks before I had the flare-up that required me to go to the doctor.  Now, I am on predisone and Lialda.  I am STILL suffering from night sweats.  I will have to pay attention in the future to determine if night sweats indicate a flare-up coming on.

Bulldog Fan


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 10/15/2007 12:54 AM (GMT -7)   
I have night sweats to the point that the moisture wakes me up and then my pillow and sheet are drenched.

But I'm not on prednisone, just anti-inflammatories ... does anyone know why I would be waking up drenched every night and waking in the morning shivering cold?

celle
New Member


Date Joined Mar 2007
Total Posts : 5
   Posted 10/17/2007 11:08 AM (GMT -7)   
I am 43.  I get night sweats on and off.  Always before a bad day of d.  I am currently in an active state of chrone's.  On night sweat nights, I am drenched in sweat - my legs to a wet head of hair.  I feel your pain.

belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 10/17/2007 1:45 PM (GMT -7)   
Prednisone is one of the culprits when it comes to night sweats, but I've also noticed it going hand in hand with illness.

Strangely enough, I have found that when I'm in that cycle, the best night garmets are flannel pajamas or nightdresses. They wick the moisture away from my skin but I usually can get away without having to change the sheets. Isn't it just the pits. When you are feeling your worst, you have to get up in the middle of the night -- usually cold in the northern winter -- and strip off you and the sheets. It used to drive my partner absolutely berserk -- until I started soiling the bed. Know if it's just a night sweat he realizes it's a good night.
Belleenstein:

30+ years living with Crohn's.


mnchkn
New Member


Date Joined Jun 2007
Total Posts : 15
   Posted 10/28/2007 11:47 AM (GMT -7)   

devil  I've been on Humira 6 weeks and I'm having horrible night sweats!  Does it mean the Humira's not working?  My joint pain has improved tremendoesly the last two weeks, but the night sweats have gotten worse.  Do I call my GI?

MNCHKN


jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 10/28/2007 4:04 PM (GMT -7)   
I was getting night sweats even before I was on any meds, before I was diagnosed. Now, I'm on prednisone and I'm still getting night sweats and am not able to sleep...
26 year old female  diagnosed with severe Crohn's in Sept. 2007-suspected that I've had it for at least 3 yrs.  Currently taking Pentasa 500mg/8x daily; Entocort 3mg/3x daily; Percocet for pain; Protonix 40mg---was on Flagyl/Cipro for two weeks,(a few weeks ago), was supposed to be on it for three weeks but the cramping and diarrhea it caused made me stop


jla
Regular Member


Date Joined May 2005
Total Posts : 75
   Posted 10/28/2007 5:45 PM (GMT -7)   
yes- on pred. and during a flare up.

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 10/28/2007 6:57 PM (GMT -7)   
Hmmm...never thought of the night sweats being an indicator of upcoming flare. Interesting. I'll have to pay more attention. Had the fever/sweats a lot before dx. For some reason the pred makes my feet sweat. I'd recommend cotton pj's, blankets & sheets for anyone who's waking up drenched. Helps the skin breath, wicks moisture and keeps you warm/cool better. Also, anyone with fungal issues would appreciate the added benefits of cotton.
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 10/28/2007 7:02 PM (GMT -7)   
I have had night sweats for about a year. Never thought they were connected to Crohn's -- assumed peri-menopause. But, I'll check with my GI on this. I still have them pretty frequently. I'm on Pred right now (20 mg).
44 years old, newly diagnosed after an 8-day hospitalization in September 2007 but symptoms for several years before that.
Medications: Pentasa, Prednisone (tapering), Prilosec.
Supplements: probiotics, calcium, vitamin C, vitamin E and a multi-vitamin.
History of hypothyroid (dx 2004, taking Synthroid) and gall bladder surgery (1997).
Single working mom to three wonderful kids, ages 9 to 15.


Lil1EB81
New Member


Date Joined Oct 2007
Total Posts : 13
   Posted 10/29/2007 11:41 AM (GMT -7)   
I actually get night sweats so badly that several times a night i have to get up and change my pillow case because it is drenched- i have had to begin sleeping on the couch because they are so bad, and it was driving myself and my husband nuts that i was drenching the sheets every night.  The night sweats have happened to me all throught my journey with crohn's- I think it is a common issue with CD itself, and then is often exacerbated by meds typically taken for CD
Erin, 26, Pennsylvania


jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 10/29/2007 4:23 PM (GMT -7)   
Right before I have a hugely painful attack where I'm doubled over in immense pain my entire body becomes cold and my face starts sweating like I've been running a marathon. That's always a sign for me to find some place to sit or lie down quickly, because it's going to be bad..
26 year old female  diagnosed with severe Crohn's in Sept. 2007-suspected that I've had it for at least 3 yrs.  Currently taking Pentasa 500mg/8x daily; Entocort 3mg/3x daily; Percocet for pain; Protonix 40mg---was on Flagyl/Cipro for two weeks,(a few weeks ago), was supposed to be on it for three weeks but the cramping and diarrhea it caused made me stop

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