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survivor49
Regular Member


Date Joined Oct 2007
Total Posts : 241
   Posted 10/14/2007 3:04 PM (GMT -6)   
is it ok not to have responded to the first 2 remicade infusions? i had my 2nd one 5 days ago, and still hurt a lot.

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 10/14/2007 6:02 PM (GMT -6)   
There are people on this list that have taken 3 or more infusions to see results, but I'm not sure what that says about how long you should keep on trying. Maybe someone will see this post who has been through a long response time.
Judy
49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, back on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


Kenny23
Regular Member


Date Joined Aug 2005
Total Posts : 128
   Posted 10/14/2007 6:43 PM (GMT -6)   
i was asking this same question two years ago.

First, my personal experience. I didn't improve instantly like some people do. I had a gradual improvement over the course of several months. I was tapering steroids quickly at the same time, which probably prevented more improvement. After three infusions I was around 35% better, but had a complication which ended up in a resection. So maybe if I kept on Remicade it would have kept getting better.

Now for what I have read. Improvement should be noted at the end of 8 weeks (or the three loading infusions). SO you have been on Remicade for 19 days I'm assuming. You still have a long way to go before giving up. Try to relax and keep a postive attitude.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/15/2007 2:19 AM (GMT -6)   
Hi I have had 5 Infusions now and it healed my fistula around the third. Somewhere along the line I stopped having pain too. Hang in there and see how it goes I find it does take a little time for anything to give good results. Best Wishes lol gail
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