I CANNOT SLEEP AT ALL!!!

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greshna
Regular Member


Date Joined Oct 2007
Total Posts : 30
   Posted 10/14/2007 2:11 PM (GMT -7)   
sad  This is driving me crazy, I have hardly slept a wink since being on these darned Pred, My Doctor has given me Temazepam but said not to take them all the time if I can help it. Well if I dont take the max dose I get absolutely no sleep at all. Night after night I lie awake, I dont know what to do. I am on 20mg daily now, and am hopefully going to get them reduced  again after seeing the consultant on tuesday. mad

crohnie42
Regular Member


Date Joined Dec 2006
Total Posts : 371
   Posted 10/14/2007 2:50 PM (GMT -7)   
what time of the day are you taking them?>
Michele
~~~~~~~~~~~~~~~~~
 
Female Dx'ed with Crohns Disease in 1992
Been on every med for crohns that exists
Several Fistula surgeries
Dx'ed with Colon Rectal Cancer March 2007
Dx'ed with Stage 2 Vulvar VIN
On Chemo and Radiation for 6 weeks


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 10/14/2007 3:57 PM (GMT -7)   
i am the same way! started on the 40mg, yesterday i tapered to 30mg, took vicodin for pain, trazodone for sleep and slept solid for 4 hours. that is the best i have done so far on steroids! usually i can't fall asleep or stay asleep but i also have sleep problems to begin with :/ maybe see if you can get some ambien for now. i also took the advice of people on this board to take them as early as possible.

good luck getting some zzz's.
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
currently taking 30mg prednisone, 4000mg pentasa daily & vicodin for pain


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 10/14/2007 5:07 PM (GMT -7)   
I haven't been able to sleep since I was on Pred also, and I've been off for just over 2 months now. My doctor gave me an Rx for Ambien which I started 1 week ago. I'm sleeping now, and if I do wake up to use the bathroom I can go back to sleep quickly. I asked for and received the one that isn't time released because of poor absorption. Not sure how long I can continue taking it, he never said, but I'm not stopping until he makes me, lol.
Judy
49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, back on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


DarrylP
Regular Member


Date Joined May 2006
Total Posts : 214
   Posted 10/14/2007 5:52 PM (GMT -7)   
as crohnie42 asked above, what time are u taking them? If u arent taking them as soon as u wake up that could be your prob, Pred makes me wired but because i take them at 6am, by the time i go to bed around midnight they have run their course. Also, if u you can, i would suggest u excercise as i found that took a lot of the bite out of the extra energy when i was on 40mg/day
 


Noulls
Regular Member


Date Joined Jun 2005
Total Posts : 106
   Posted 10/14/2007 6:46 PM (GMT -7)   
I can't sleep either. I am on 30 now and I am still up most of the night. I came home from the hospital and felt so completely drained yet couldn't sleep more than a few hours a night. It is not a good way to regain strength. I finally resorted to Benadryl which gets me about four hours. Does anyone know if it is addictive or dangerous with other Chrohns' Meds. I was hoping that when I got down to 25 or 20 that it would improve but sounds like those of you on 20 have problems too. I have been taking half of my dosage of pred in the morning and half in the evening.

greshna
Regular Member


Date Joined Oct 2007
Total Posts : 30
   Posted 10/15/2007 12:35 AM (GMT -7)   
Thanks for all your replies and I am relieved to hear Im not the only one not sleeping!! I am taking the Pred 1st thing in the morning at 7am. I am not too familiar with some of the other meds you are all taking about because I presume you are mainly talking about meds you have in the USA, I am from England and not sure what else to do as my Doc has told me the max dose I can take of Temazepam is 20mg (that is a strong sleeping tablet).
Kerry

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 10/15/2007 12:44 AM (GMT -7)   

Hello, This is Kitt.

Restoril® (temazepam) capsules, 7.5 mg, 15 mg, 22.5 mg, and 30 mg, are for oral administration. We used to give the 30 mg caps with a may repeat once in four hours for sleep in the hospital setting.

You may want to recheck with your physician on the dosing.  However your drugs may be different in strengh and the amount of medication available in the capsules.

Good luck and take care.


Respectfully
Kitt
Moderator Anxiety ~ Panic Disorders
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression 
******www.healingwell.com/donate******
_____________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.” 
~Rosalyn Carter

 


CatMan
Regular Member


Date Joined Jun 2006
Total Posts : 289
   Posted 10/15/2007 3:57 PM (GMT -7)   
While I was on steroids, I was in the same boat...little or no sleep. 10 mg of Ambien didn't even help. I'd be up most of the night reading or just on the verge of going crazy. I finally got an Rx for Klonopin and that was what started to help me get some rest, as well as finally being tapered off the steroids.
Current Medications:

Pentssa, 1000 mg qid
Vitamin B Complex
Trader Joe's Probiotic
Folic Acid
Remicade infusion; every 8 weeks
Klonopin
Ambien, PRN
Seasilver Whole Food Liquid Nutrition


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 10/16/2007 1:13 AM (GMT -7)   
I have been a terrible sleeper all my life. Now with CD , MS symptoms, Restless legs syndrome, I still don't sleep. I am on Clonazepam, Celexa, Sulfasalazine, Pantasol, Tyleno #3 and Gravol, and still only get 2 hours of sleep at a time before pain, or having to pee, or nightmares, or restless legs, or having to poop, or headaches, or ...or...or ....or
I used to pray to God to take a little baseball bat and hit me over the head so I could sleep a couple of days ....a good sound sleep. The only time that has ever happened is when I was in hospital on Morphine and sleeping pills.
I guess this is why so many of us are at the computer at 3 am.
Good luck
You are not alone.
Mary
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


lookin for answers
New Member


Date Joined Oct 2007
Total Posts : 1
   Posted 10/16/2007 2:39 AM (GMT -7)   
I have to agree with the last post.  Why are we on here at 3 A.M. again???  Prednizone for me right now- 40 mg.  Take it in the morning.  Supposed to get Lunesta to aid with sleeping tommorrow.  Don't know if you have access to it or not.  Similar to Ambien they say.  Good Luck.

26 yr. old male, dx 4/2006 Crohn's, dx 10/2003 Hodgkin's Lymphoma, dx 2/2007 fibrosarcoma
Prilosec, Pentasa, Prednizone


bunnypucker
Regular Member


Date Joined Dec 2003
Total Posts : 494
   Posted 10/16/2007 4:44 AM (GMT -7)   

i hope you get some relief. im on 40 mgs pred now and i hardly sleep at all, its been 4 months, and ive tried everytihng either this time or when i was on pred in the past. ambien, lunesta, trazadone, vistoril and i dont know what else. right now they gave me rozerem and that helps but i still only get 4-5 solid hours. my doc says if this doesnt work then ill just have to deal with it casue shes not prescribing me anything else. grrrr

so i know how you feel and i do hope you get some sleep

 

bunny


Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
Bipolar
Probable MS
 
Im 26 years old, and am currently only taking remicade, protonix and evil prednisone for my CD. am on quite the cocktail for my BP however: Geodon, Lamictal, Celexa, Buspar and Klonopin.
Im also on lipitor for high cholesterol caused by a prior BD med. and i take some meds prn for my allergies, asthma, and migrianes.
 
"We are all worms but I do believe i am a Gloworm"
^always makes me smile^
 
 
 


Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 10/16/2007 9:46 AM (GMT -7)   
I think that you won't sleep much if you are on high doses of Prednisone. I have so far refused prednisone because of that. I was going through withdrawals from entocort and put on a new med and they gave me 15 mg of temazepham and i still take it when I need a good night's sleep.  Don't be afraid of it, my GOSH you have to sleep.  It must be impossible with another drug purposely keeping you up. I took it one time and felt like I was on crack.  Will never take again.  I would just take temazepham before bed and then when you awake, take a second one? It can't hurt for a little while until you can lower your prednisone, I would think.
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf and Remicade.


greshna
Regular Member


Date Joined Oct 2007
Total Posts : 30
   Posted 10/16/2007 9:53 AM (GMT -7)   
Thanks for all your helpful replies, My doc has said I can reduce down to 15mg of Pred, and then she says reduce a further 5mg per week till I am on 5mg then stay on 5mg for 2 weeks then I will be off them!! I am tempted to go down 10mg per week to get off them quicker. Last week my GP reduced my dose from 30mg to 20mg which is what I am currently on and I didn't have any probs... any ideas from anyone on here.
Kerry

DarrylP
Regular Member


Date Joined May 2006
Total Posts : 214
   Posted 10/16/2007 11:13 AM (GMT -7)   
Noulls said...
I can't sleep either. I am on 30 now and I am still up most of the night. I came home from the hospital and felt so completely drained yet couldn't sleep more than a few hours a night. It is not a good way to regain strength. I finally resorted to Benadryl which gets me about four hours. Does anyone know if it is addictive or dangerous with other Chrohns' Meds. I was hoping that when I got down to 25 or 20 that it would improve but sounds like those of you on 20 have problems too. I have been taking half of my dosage of pred in the morning and half in the evening.
I would suggest you start taking all of it in the morning, i guarantee that half dose in the evening is the exact root of your sleep problems
 


dens
Regular Member


Date Joined Jan 2006
Total Posts : 29
   Posted 10/16/2007 1:34 PM (GMT -7)   
Hi,

Definately been there done that.  When I was on high doses of prednisone out of the hospital I stayed up for over 48 hours, wide awake and getting very naurotic thoughts.  Called my doc. he RXed ativan (lorazapan???) it worked wonderfully...deep sleep, no dreams.  Unfortunately after I was off the pred. they won't give me Ativan anymore so it must be controlled or something.  I take Ambien now for my sleep with Fibromaylgia.  It helps fall asleep but I still wake up through the night and dream constantly, so I am sooo tired when I wake up.  I hate mornings!

Be careful with Trazadone.  I took it for awhile for Fibro, after a time I noticed I was choking on my food alot.  Read up on the side effects....yep choking on food is one of them.  I won't take Trazadone anymore.

Denise

Dx'd in 2000, currently on 6MP, Asacol, and other stuff for Fibro.  Since I have at least 2 autoimmune diseases my motto is:  "I am allergic to myself"

Skjura
Regular Member


Date Joined Jun 2007
Total Posts : 210
   Posted 10/16/2007 2:25 PM (GMT -7)   
I couldn't stop being active at daytime,


I got hyper active, close to adhd,


worked for 14 hours

fell asleep like someone had thrown a stone in my head...and slept for 8 hours....

I.
 
Diagnosed CD June 2007. Have been on a minor prednisone medication. Did make a difference while max dosed. Got my problems back when tapering.
 
Using Low Dose Naltrexone from sept. 2007. See yahoo.com. A member in the group "lowdosenaltrexone" at yahoo.
 
Use home made scd yoghurt containing a lot of probiotics - a benefit for the intestines. I don't use white sugar. No yeast in glutenfree, homemade breads.

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