Anybody ever had this happen?

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Date Joined Sep 2006
Total Posts : 146
   Posted 10/14/2007 9:30 PM (GMT -6)   
confused  Hello everyone!!! I have a weird question for you.  I have been diagnosed with a rectovaginal fistula about 1 month ago.  I am seeing a surgeon in Nov.  I have been experiencing lots of pressure in my pelvic region and perianal area.  Today when I urinated and wiped it was like a balloon had popped because the liquid (i guess it was urine) soaked up the toilet paper and got on my hand both times when I tried to wipe.  This is gross and graphic but I want to know if someone else has had this to happen because it freaked me out.  Then when I went again it was like that again but not as much.  The pressure has been there awhile now and gets worse when i walk for awhile like shopping.  I have to go more than normal both D and pee. When walking it feels like something is pulling inside of my pelvic area with alot of pain.  My back has also been hurting today.  I took a vicodin today but still the pain (pressure is there).  Does any one think I may have an abcess?  I have never experenced this so would not know... Just wondering due to the increased liquid.  My fistula did not show up on CT scan or barium enema but gyno found doing a methylene blue test?  Please help.  This disease is getting depressing and I am at my wits end.  sad
35 yo--Crohns since 2000, Granuloma cysts in mouth-oral surgery X2 in 2000, Fistula colon 2006, Rectovaginal Fistula 2007, Joint pain. Kidney Stones. Dx with Migraines in 2002 and Ovarian Cysts with Endometrosis 2001.  Dx with Fibromyalgia in 2007.  Now receiving Humira, Topamax 300mg daily, Cymbalta 120mg daily, Prevacid 30mg, Maxalt, Vicodin and Ultram as needed, Fish Oil, and Multivits   

Forum Moderator

Date Joined Nov 2003
Total Posts : 7054
   Posted 10/14/2007 10:46 PM (GMT -6)   
I seriously think you need to see someone SOON. Even if it is just your primary or a doc-in-the-box, someone needs to look and see whats going on. Are you having any symptoms of a bladder infection? That would be the first concern with your type of fistula. Also, the popping sensation reminds me of a cyst breaking. Can you get into see your GYN this week?
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Veteran Member

Date Joined May 2007
Total Posts : 1488
   Posted 10/15/2007 8:09 AM (GMT -6)   
I agree with Ides.  I would also consider maybe a uriologist.  When my CD/inflamation flares I have urinary problems to boot.  No bladder cysts, infection or stones.  The pain you describe is what I lived with 5 years prior to my CD diagnosis. It REALLY hurts.  Also, my bladder would not empty completely each time I went to the bathroom until I shifted to one side on the toilet. (?)
It is VERY important that your bladder empties properly each time you urinate!  Sometimes mine would wait until I wiped and I'd pee on my hand such as you describe.  I also had a CD cyst attached to my ovary which blocked my ureter (spelling?)...the tube from the kidney to the bladder. Just thought I'd throw in my two cents worth....hope you see someone and are feeling better soon! 
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.

Veteran Member

Date Joined Feb 2007
Total Posts : 1010
   Posted 10/15/2007 8:13 AM (GMT -6)   
You have a rectovaginal fistula not a fistula from your bladder, right? I don't understand how a fistula from the rectum into the vagina could cause an uncontrolled release of urine. If it is urine, then perhaps like Ides said you have a bladder infection and the pressure is causing leakage, but you need to determine what is actually leaking. Since you have a rectovaginal fistula, it could be coming from the rectum. Sorry to be gross, but smell could tell you alot. If it is from an abscess it will have a putrid, rotting odour. If it is feces -- well you know what that smells like. Likewise with urine, it has a distinct odour.

Are you running a fever? Do talk about pain and pressure. Is the pressure really bad when you move your bowels? Or is just when you are standing? Have you had children? Is it possible that your uterus is prolapsing? That can cause dreadful pressure when you stand, especially in the lower back and it will result in leakage when the bladder is full.

As you can see, there isn't a simple answer here and none of us are in position to make a diagnosis. You really need to be assessed by a health professional. Before you see them. List your symptoms and when you get them. List what the progression in symptoms has been. What triggers the symptoms and what makes them better. If you are seeking help at a clinic instead of with your GI or gynecologist, write down exactly what you understand your diagnosis to be re: the fistula. And then list the questions that you need answered. That way you are less likely to allow your emotions to take control.

You must be feeling very anxious right now. Don't worry about what your health care providers might think. Even if it isn't something serious, you need the comfort of getting some answers.

Good luck and keep us posted.

30+ years living with Crohn's.

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