New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

nikki0294
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 10/15/2007 6:56 PM (GMT -7)   
Anyone take questran to help diarrhea with crohn's??? I took it for c.diff a year ago and it did help some but the powder makes you very full. 
 
Thanks
Chris

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 10/16/2007 7:04 AM (GMT -7)   
Chris...there are some people who are taking now. i would check some of the old posts as I remember several discussions. I took Questran Light a long time ago and had missed it. It really made a difference for me---going to potty once a day versus every time I ate. The thing is I am changing in symptoms right now and think it would not be a good thing for me.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


potty pooper
Regular Member


Date Joined Dec 2006
Total Posts : 375
   Posted 10/16/2007 7:19 AM (GMT -7)   
I also took Questran light years ago and found that it did help with the D. But it made me very bloated and gassy.

Metallichic
Regular Member


Date Joined Oct 2007
Total Posts : 76
   Posted 10/16/2007 9:18 AM (GMT -7)   
Hi Chris,

I take Questran to help with the large amount of bile running through my system since I had my gall bladder removed. I was getting diarrhea from many foods and was unable to eat much of anything, and it didn't leave my bottom feeling very pleasant. :/

I am actually really bad about taking it because I can't stand the sandy texture. I started out mixing it with water, and couldn't stomach it, so my GI gave me Carafate suspension to mix it with. That makes it a little easier to drink, it lessens the nasty taste and makes the texture a bit better. I mix the Carafate and a little water with a packet of Questran. It really does make a big difference for me; I don't get as sick when I eat something that will bother me, and it seems to fill me up. My only issue is that sometimes it doesn't want to stay down, and I end up vomitting and not eating at all!
Shannon
Asthma (diagnosed at 12)
Fibromyalgia (diagnosed 9/01)
Crohn's Disease/Colitis (diagnosed 12/02)
Diverticulitis (diagnosed 6/07)
Chronic pelvic pain/endometriosis, leading to hysterectomy (9/07)
Torn rotator cuff/labrum (repair 11/20/07)
Bladder sling (8/06), cholystectomy (2/06), tubal ligation (2/06), failed ablation (3/07)
Taking Lialda, Prednisone, Entocort, Remicade, Bentyl, NuLev, HCTZ, Lisinopril, Cymbalta, Effexor, Xifaxan, Flagyl, Lomotil, Frova, and pain meds.


Erik45
Regular Member


Date Joined Oct 2007
Total Posts : 149
   Posted 10/16/2007 9:27 AM (GMT -7)   
I took Questran before as well but i found it bloated me alot and gave me gas all the time so i stop taking it..

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 10/16/2007 10:20 AM (GMT -7)   
If you have issues with the texture you can now get the same med in pill form. But if you have B12 issues you need to be careful. It binds to the B12 so it makes it even harder to absorb the B12. I only take the questran when I have to travel because I can't stand the texture or the side effects (gas, cramping, bloating) but it does do a good job of stopping the constant running to the bathroom. I have the pills now as well as the powder, so at least the texture issue is resolved. But my doctor, not the one who Rxed it, doesn't want me taking it because my B12 is so low.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


nruth
Regular Member


Date Joined Mar 2006
Total Posts : 195
   Posted 10/16/2007 10:24 AM (GMT -7)   
I took it for years, until it began to make me all bloated and I had to stop. It works very well, though.

jdiane
Veteran Member


Date Joined Jan 2003
Total Posts : 1131
   Posted 10/16/2007 10:48 AM (GMT -7)   
I hated the sandy texture when Questran was prescribed to me as well. I switch to Colistid tablets instead. Now, as medications I don't care for either, I'd rather have D as they both push me too far in the other direction, but if I liked what those meds did for me, I'd go with Colistid just to not have to drink that nasty Questran! =o)
 
 


Metallichic
Regular Member


Date Joined Oct 2007
Total Posts : 76
   Posted 10/16/2007 10:56 AM (GMT -7)   
Zanne said...
If you have issues with the texture you can now get the same med in pill form. But if you have B12 issues you need to be careful. It binds to the B12 so it makes it even harder to absorb the B12. I only take the questran when I have to travel because I can't stand the texture or the side effects (gas, cramping, bloating) but it does do a good job of stopping the constant running to the bathroom. I have the pills now as well as the powder, so at least the texture issue is resolved. But my doctor, not the one who Rxed it, doesn't want me taking it because my B12 is so low.

Thanks for sharing that, I will ask about the pills on Saturday when I get my infusion!  I'd love to be able to take that rather than choke down that nasty stuff.  I was unaware of the B12 issue though.
Shannon
Asthma (diagnosed at 12)
Fibromyalgia (diagnosed 9/01)
Crohn's Disease/Colitis (diagnosed 12/02)
Diverticulitis (diagnosed 6/07)
Chronic pelvic pain/endometriosis, leading to hysterectomy (9/07)
Torn rotator cuff/labrum (repair 11/20/07)
Bladder sling (8/06), cholystectomy (2/06), tubal ligation (2/06), failed ablation (3/07)
Taking Lialda, Prednisone, Entocort, Remicade, Bentyl, NuLev, HCTZ, Lisinopril, Cymbalta, Effexor, Xifaxan, Flagyl, Lomotil, Frova, Questran powder/Carafate suspension, and pain meds.


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 10/16/2007 10:57 AM (GMT -7)   
I like the powedered cholestyramine because I can tailor my dose more easily than with pills. Along with a low-fat diet I am able to manage the worst of my diarrhea by only taking a quarter of a packet every two or three days. Maybe it is because i take so little that I don't mind the taste or texture. It has been a life-saver for me, but if i took it as prescribed -- a four gram packet every day, I would be unable to function because of the pain, bloating and distention. Taking it as i do, I almost never have really nasty symptoms. I do find that it occasionally makes me gassy and the gas is the room-evacuator kind. P-U!!!

For all of you wondering about how I can manage on such a low dose, it is important to note that its primary use is to lower cholesterol in patients at risk of heart disease and high blood pressure. It's use for crohn's patients is an off label use. We are using it for a completely different reason than its intended recipients so dosing should be tailored to match symptoms and symptom-control.

For anyone suffering from steatorrhea I would encourage you to play around with the dose. Start with just a tespoon or less and work up or down from there until you find the dose that slows down the diarrhea but doesn't leave you feeling eight months pregnant.
Belleenstein:

30+ years living with Crohn's.

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 1:21 PM (GMT -7)
There are a total of 2,734,851 posts in 301,251 threads.
View Active Threads


Who's Online
This forum has 151361 registered members. Please welcome our newest member, walkinghome.
361 Guest(s), 12 Registered Member(s) are currently online.  Details
PeteZa, Laker7491, walkinghome, ArtAngel, mpost, NiceCupOfTea, joavila92, JackH, gilly2, straydog, multifacetedme, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer