CD or surgical pain?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 10/16/2007 9:37 AM (GMT -7)   
I have a new symptom that I've never had before.  Pain in the ULQ that radiates to the LLQ and sometimes even to the LRQ.  There is no pain if I don't move, only if I move or lay on it.  Sometimes there's even pain if I breath. It came on slowly over the weekend and by yesterday morning the pain woke me up. 
 
I had blood tests and they all came back in the normal range. We thought maybe pancreatitis because I just started the 6MP again, but levels are normal.  X-rays don't show an obvious blockage (but it doesn't feel like a blockage anyway). 
 
My WBC count is normal, doctor says it shouldn't be an abscess, but I had a chronic abscess before the surgery and my levels never showed it.  Am thinking maybe an abscess from the wound that took 2 months to heal?
 
Never had adhesion pain before, does this sound like that could be it? 
 
I know this disease has morphed over the years for me, my symptoms kept changing so not sure what to think.
 
It's extremely painful to palpation and movement, pain meds take the edge off but hasn't made it go away.  Doctor didn't seem worried, says if it continues to hurt maybe I should go to Urgent care and they'll do a CT scan.  I'm worried as I'm only a few months post surgery.  It really doesn't feel like it's digestion related, but who knows. 
 
I was just thinking how lucky I am to have a doctor that got me into his office right away, but then I also think he should know me well enough by now to know that this needs further investigation, I never call him for small issues.  This DD is sooooo frustrating sometimes.   
 
Judy
49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, back on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/16/2007 12:29 PM (GMT -7)   
Judy I don't think adhesion pain would be so painful. Especially with palpation & movement. I have adhesion pain in URQ often, and while it hurts some, I can take 1/2 pain pill and put heat on it and it eases up. I think I would go for the CT scan. Sure hope you get answers soon.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/16/2007 2:34 PM (GMT -7)   
Hi Judy Perhaps you should get it checked out . Keep in touch . lol gail

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 10/16/2007 7:34 PM (GMT -7)   
I'm waiting for authorization for some kind of special MRI to check my liver and pancrease, I keep hoping I can get that done soon and won't have to go through ER for other tests. I'll at least give it a couple more days and if the pain doesn't go away, I'll have to go in.

As bad as having adhesion pain would be, I was hoping that's what it is. I really don't want it to be the CD already.
Judy
49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, back on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/17/2007 12:50 PM (GMT -7)   
Will keep my fingers crossed for you!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/17/2007 4:16 PM (GMT -7)   
Hi Judy Will be thinking of you and hoping for the best. Judy would it be not good for you to get a CT for now or do you think it would help. Will be looking to to see how you are doing. lol gail

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 10/19/2007 8:32 AM (GMT -7)   
I talked to my doctor last night, they're going to try and schedule me for a CT scan in the next couple days. He thinks it could be kidney stones because he found blood in my urine with the test strip and microscopically? No infection though (no WBC's).  I forget who is the local expert here on stones, Matthew?

My lower back has been hurting, but I would think the pain would be different.


Judy
49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, back on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/19/2007 4:58 PM (GMT -7)   
Hi Judy not sure to hope it is stones or not but glad you are getting some testing done . Not sure who our reigning king is at the moment but you could ask . Best Wishes lol gail

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/19/2007 5:31 PM (GMT -7)   
I think Matthew and Sniper are still fighting for the crown!  LOL  Sure hope you finally get some answers Judy.  Keeping my fingers crossed still.

Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/19/2007 5:50 PM (GMT -7)   
my adhesion pain is terribly painful. really hurts to breath and move.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 10/19/2007 5:53 PM (GMT -7)   
Yogaprof,

Does your adhesion pain hurt if you're NOT moving?
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/19/2007 5:58 PM (GMT -7)   
if I am not moving it still hurts to breath. I literally hold my breath many times a day. the surgeon told me anyone who has had surgery has scar tissue, it just depends where it lands how it works out adhesion-wise.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 10/19/2007 6:03 PM (GMT -7)   
I've always known I had adhesions (the surgeons tell me horror stories), but to my knowlege I've never had pain from them before. How are they diagnosed? Do they ever get better? You're a yoga gal, does something like stretching help?

I'm pretty sure this pain isn't the CD (I hope, I hope, I hope). It may be surgery related, or something (like stones) because of the CD, but I've had this disease for a long time and this isn't digestion related at all. Food doesn't effect it at all.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/19/2007 9:22 PM (GMT -7)   
actually, all the stretching just hurts. the only want to diagnose them is surgically, sadly, so to find them you make more! pain is very common with adhesions and it is a major cause of abdominal pain. yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 6:49 AM (GMT -7)
There are a total of 2,732,021 posts in 300,982 threads.
View Active Threads


Who's Online
This forum has 151148 registered members. Please welcome our newest member, Bui.
253 Guest(s), 5 Registered Member(s) are currently online.  Details
81GyGuy, 0311, Ruey, Traveler, maioeiage


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer