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PaulieV
Regular Member


Date Joined Sep 2004
Total Posts : 152
   Posted 10/17/2007 4:20 AM (GMT -7)   
Hey everyone on LDN, how do I approach my doctor into prescribing me LDN? What worked for you?

ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 10/17/2007 9:00 AM (GMT -7)   
I'm buying mine from riverpharmacy.com (which is located in India). This does not require a doctor's prescription, but you can legally only order what is considered a 3-month supply. However, that is based on 50mg pills, and once you cut these pills into 1/12 doses, 90 pills (a 3-month supply at 1 pill per day) would in fact last 3 years. Since you're new to this, you might just want to order 30 pills (that would last 360 days at 1/12 dosage).

The pills are 50mg. Here are instructions for making it into LDN:

http://goodshape.net/HomemadeLDN.html

It's actually easier than they make it sound. First of all, I bought a pill splitter, so I split each pill in half. That way, I only need to cut the half pills into 6 doses. I do this by dissolving the half pill into six teaspoons of water. Then I take 1 teaspoon and put the rest of the mixture into a small bottle and keep it in the refrigerator. I take 1 teaspoon a day for the next 5 days, until it's all gone. Then mix another half pill for another six doses, and so on. Don't forget to shake the bottle before taking a dose.

If you follow the above instructions, each dose will be 4.17mg.

Remember, you are supposed to take it at night, just before bedtime. It's less effective if taken during the day.
Crohn's since 1988
3 resections


Skjura
Regular Member


Date Joined Jun 2007
Total Posts : 210
   Posted 10/17/2007 12:02 PM (GMT -7)   
Hi PaulieV,
I use LDN. Got my diagnos this summer. Used prednisone, but when I tapered, almost all my symptoms returned. Started LDN. Wake up the next day, and had a painfree day. This has continued now for almost 4 weeks. I know it's early to tell anything, this could be placebo or that I was supposed to go in a remission then, but it COULD be that LDN works this well for me. Then it is a little miracle:-)
The medicin must be taken between 9 and 2 p.m. and regularly each night. One often start with 3 mg. Increases the dose after a couple of weeks to 4.5 mg. Don't take more than that, it won't work then! If you are using prednisone, entocort, remicade, pentasa or humira, you can't use LDN. It's contraindicated. LDN won't work then. If u use pain killers (narcotics), you can't use LDN.
Please use yahoos group to get support and information. They can guide you to doctors and pharmacists, if you have trouble with your GI. But please, it's best to ask your GI at first. Copy papers from the gazorpa link below, and read it to learn more about LDN. Then you also are prep for GI visit.




Read more about users considering Low dose naltrexone at this site, here at the forum: (copy and past - if the link don't get active)

http://www.healingwell.com/community/default.aspx?f=17&m=935835

And I suggest that you also read this link; it contains tips "how to tell your doctor about LDN, and how to ask him writing you a rx)....(this is actually neccessary, cause they don't know much about this medication)

http://www.gazorpa.com/PatientGuide.html

To learn even more, you may go to yahoo.com and register. Make yourself an email address at yahoo, and get all the mails from all LDN users around. You will feel very welcome in a group of Crohns, MS, Psoriasis, fibromyalgia, and other groups that use LDN. When registered, search in the box at yahoo for "lowdosenaltrexone".
Good Luck! :-)
From Ingrid
 
Diagnosed CD June 2007. Have been on a minor prednisone medication. Did make a difference while max dosed. Got my problems back when tapering.
 
Using Low Dose Naltrexone from sept. 2007. See yahoo.com. A member in the group "lowdosenaltrexone" at yahoo. A mixed group, members with MS, Crohns, Colitis Ulcerosa, psoriasis, other autoimmune diseases.
 
Use home made scd yoghurt containing a lot of probiotics - a benefit for the intestines. I don't use white sugar. No yeast in glutenfree, homemade breads.


killerzoey
Regular Member


Date Joined Jul 2007
Total Posts : 161
   Posted 10/18/2007 10:22 PM (GMT -7)   
I got mine from Dr. McCandless. She may be in Africa now/she's doing a trial on LDN for HIV in Mali. She did a remote consultation and had her pharmacy in Savannah, GA ship me the drug, already as Low Dose form. If you are persistent, you should be able to find a doctor to prescribe you the low dose form, so that you have control over the filler and don't have to brew your own. It's nice that that is an option, though.
36 year old mother of a fabulous toddler. Major symptoms began after her birth, with widespread pain/stiffness and mucus in stool. Had seen blood in stool for years prior but believe (and still suspect) hemorrhoids and/or fissures for this particular manifestation.

Diagnosed with Crohn's July 2007. The only visible areas of inflammation via scope were my stomach, rectum, and somewhere in my colon. Pill Cam, SBFT, CT Scan all normal. I think I may mainly have colitis.

STARTED LOW DOSE NALTREXONE SEPT. 26TH www.lowdosenaltrexone.org. Also see: http://www.ncbi.nlm.nih.gov/sites/entrez?db=pubmed&cmd=Retrieve&list_uids=17222320

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman.

Current biggest complaints: LRQ fullness and burning now gone. Gastritis symptoms are also quiet now. What was horrible right hip and low back pain has subsided about 60%. I'm pretty much feeling normal but in no way think I do not have more symptoms in my future.

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