Is everyone with Chron's thin?

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Regular Member

Date Joined Aug 2005
Total Posts : 289
   Posted 10/17/2007 10:06 PM (GMT -6)   
I too saw private practice and  I know there is weight loss but I am by no means thin.  I have always said that with the amount of food I eat I should be much much heavier... like needing a fork lift or something... but it would take an awful lot to keep me from food.  Even when I was having vomiting and diarrhea with cramps/pain I would still eat.  I am like the dumb lab who eats when all other dogs know better.....
So, let me know is everyone with Chron's thin?
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
Meds: Methotrexate 25mg wkly, Arava 20mg, Rituxan infusion, Folic Acid, Fish Oils, Advil, Advair 250/50, Diovan HCT 160mg/25mg QD, Women's One a Day, tylenol PRN.

Elite Member

Date Joined Feb 2004
Total Posts : 20558
   Posted 10/17/2007 10:21 PM (GMT -6)   
No...metabolism still has it's affect on weight for people even with crohns.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Regular Member

Date Joined Oct 2006
Total Posts : 148
   Posted 10/17/2007 10:36 PM (GMT -6)   
I am by no means thin.. what so ever..

But I agree with the amount of food that I eat, I should be bed ridden.. haha.
My weight does yo-yo a ton though... eh.
25 years old
Diagnosed 9/06 with Pancolitis. The diagnosis was changed 9/20/07 to Crohn's disease.
Located in my large intestines, stomach, and mouth.
Asacol 3 3x's a day reinstated 9/20/07
Methylpred 40 mg a day.

Forum Moderator

Date Joined Nov 2003
Total Posts : 7056
   Posted 10/17/2007 10:37 PM (GMT -6)   
When I was first diagnosed with Crohn's I was obese - more than 65 pounds above weight recommendations.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Regular Member

Date Joined Mar 2006
Total Posts : 195
   Posted 10/17/2007 10:37 PM (GMT -6)   
I'm very thin and always have been. The older I get the more weight I lose. I am very embarrassed by the way I look. People do make comments. Most of them seem to think that it's a choice I have willingly made. I have no appetite and eating is basically a chore. It gets mighty tedious.

Veteran Member

Date Joined Jan 2004
Total Posts : 598
   Posted 10/17/2007 11:05 PM (GMT -6)   
I get this all the time and it drives me crazy. It is rude. I can't believe people think its ok to comment on someone's body in a negative way. I work in the health care field and these people should know better and I still get "don't you eat anything? Look at you, you are like a toothpick" No, they don't know I have a medical problem. Does that make it ok? I don't think so. I really think people are envious- not of the way I look but the fact that they think I can eat anything and not gain weight.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft

Regular Member

Date Joined Oct 2007
Total Posts : 149
   Posted 10/17/2007 11:18 PM (GMT -6)   
Don't let those morons get you guys down. They don't have a clue, its whats inside that counts and from what i read in these post you guys are all beautiful people to me. yeah yeah Stay well and take care..
Crohns for 11 years
1 surgery so far
2 times in hospital for blockages
B12 Injections

Regular Member

Date Joined May 2006
Total Posts : 214
   Posted 10/17/2007 11:18 PM (GMT -6)   
Nope, not thin....i was getting there for a short period of time while i was undiagnosed and feeling like i was going to die, but after that i got back in the gym and gained it all back. Now about 245lbs at 6ft 3

Regular Member

Date Joined Apr 2007
Total Posts : 217
   Posted 10/18/2007 12:43 AM (GMT -6)   
no...not thin here 255 ib and 5"2 ....what I hate about ppl is that when I say I have crohn's they reply I didn't know you can have crohn's when you are ignorant
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg 6mg 3    . starting imuran 250 mg had a allergic reaction  can no longer take it .  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidone and lemotrogine.

Regular Member

Date Joined Apr 2006
Total Posts : 164
   Posted 10/18/2007 1:27 AM (GMT -6)   
I am also chunky. I am 160 lbs. 5'1 I love being this size because I know how the opposite is. Thin and really sick OR pleasantly plump and heavily
I am 33yrs. old mother or 2 wonderful kids. I was diagnosed at 23. I have had 2 major flares and am now taking Imuran, pariet, and the occasional Pred. for arthritis.

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 10/18/2007 1:31 AM (GMT -6)   
No Not Thin...fatty here. There was a time when I was "paper thin" as my mother would say. I was drastically underweight and lost even more with each flare. Once I had two pregnancies,2 c-sections I gained a bit....but in the last 4 years, since my "MS" attack, and being confined to cruthches or scooter I have ballooned up to a whopping 225. Mind u I am 5 feet 9 inches tall...but that is a lot of weight for a small boned person....of course, when I tell ppl that I am small boned they laugh at me. (unless they knew me in my "twiggy" days).
Now ppl give me a strange look when I tell them I have CD because the assumption is that you will be bone thin.
I have a tshirt with a pillsbury dough boy on it that says "Poke me and DIE!"LOL
Oh well....the walking is what did it for me....once I stopped walking everyday I just packed it on!!!
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

Veteran Member

Date Joined Oct 2005
Total Posts : 1245
   Posted 10/18/2007 4:35 AM (GMT -6)   
I'm a heavy Crohnie!  5'4" and 218 pounds.  This is the most I've ever weighed in my entire life.  I always get comments such as "you can't possibly have Crohn's.  you should be real thin."  Those comments can be very hurtful.  I don't want to have Crohn's OR be overweight.  My heart also goes out to people with Crohn's who are malnourished and underweight.  They get unecessary comments, too.  This angers me.  Sometimes people are a little too opinionated!  Julie

Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12.5mg a day
Imuran just increased to 50mg
Acidophilus daily
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)

Regular Member

Date Joined Apr 2007
Total Posts : 254
   Posted 10/18/2007 5:20 AM (GMT -6)   

I'm currently 173 lbs - height 5''77.  I'm not fat, but I'm certainly not thin!!!  During my first flare 9 years ago I lost 44 lbs in 2 months.  Now that I'm feeling better I gained 11 lbs in 1 month, and that's not good.  All my trousers are too tight, and I suffer everyday at work, but I still wear them to remind me I should loose weight...

But it's so difficult, because you all know that when we don't feel good, we don't have an apetite for anything and we practically live on rice and crackers (at least I do).  So when we are feeling better, we make up for the lost time (and food).  At least I do!!!!!

greek hugs,

Christina cool

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 10/18/2007 6:35 AM (GMT -6)   
I'm not thin now, weigh almost 190 and am 5'5". I used to be thin, the first 20 or so years of this disease I couldn't keep weight on no matter what I did, at one point I was down to 86 lbs. Then I had a hysterectomy gained over the years and haven't been able to lose weight even when I walk 6 miles a day and didn't lose a pound when I was in the hospital and only on IV fluids for almost a week. Go figure.
49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, back on 6MP for maintenance, hoping for a long remission from this last surgery. 

Veteran Member

Date Joined Jan 2006
Total Posts : 3129
   Posted 10/18/2007 6:56 AM (GMT -6)   
Not thin and never have been---well except when I lost 35 pounds in under 3 weeks when I was first diagnosed. If someone comments on your weight, they are opeing themselves up to hear the gory details of this disease in my opinion. If they ask why you are thin/fat, then give them the grossest images of Cd you can imagine---I found that stops a lot of morons from making further stupid weight comments.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

Regular Member

Date Joined Nov 2006
Total Posts : 304
   Posted 10/18/2007 8:49 AM (GMT -6)   
Well im a thin one, 130 pounds at 5'10, but i used to be 120, so hopefully i am on an upward slide lol, i start my steroids on friday, not pred.....its endecort, then after a month on that i start imuran......they took me off of asecol because of the side effects, and im taking 2000mg of omega 3 fish oils a day as well, it seems to be helping, we will see when i start my steriods, hoping to shut down these flares as they are making my life miserable.....and i want to start on aloe vera juice as well.......
I'm cute. Let's put me in charge.(happy bunny)
 anemia, b12 deficiancy, and malobsorption, moderate joint pain,severe weight loss, gastritis
 started on asacol 400mg 3x a day
 diagnosed with a CT scan

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 10/18/2007 8:58 AM (GMT -6)   
I have always been thin, even before I was diagnosed. Right now I am pretty comfortable. I am 5'5" and weigh 139. Not bone skinny, like when I am sick. I think I am at the stage right now where I like to keep the extra pounds, cause you never know when you will get sick and lose it all again. I think like most of us Crohnies I keep different size clothes in my closet all the time because of the constant up and down in weight.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Oct 2007
Total Posts : 241
   Posted 10/18/2007 8:58 AM (GMT -6)   
depends on the pred dose- before i figured out that eating was what made me hurt i was eating everything on sight because of the pred. now i am headed back to my normal weight. i haven't lost too much, so am a little heavier than normal and really out of shape. working on soon as i gan get out of bed

Mormor Vicky
Veteran Member

Date Joined Mar 2007
Total Posts : 684
   Posted 10/18/2007 9:33 AM (GMT -6)   
I've always been a fatty. I probably just knew enough about Crohn's to get me in trouble to. I was one that had the assumption you had to lose weight when you had Crohn's. I never did so I couldn't have CD, right? And I have never been a big eater either. My metabolism is shot not because of how much I eat but how little exercise I did. I had no energy to even walk to the mail box. After I found out I did have Crohn's and had my resection, I joined the YMCA, started eating better and have lost 60 lbs. Still need to lose another 40 but I'm flaring again and haven't had the energy to do much of anything. That scares me more then anything else. I don't want to go back to that cave I lived in for so long. At least I know that it wasn't because I was a lazy slug afterall.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (26) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor

New Member

Date Joined Oct 2007
Total Posts : 8
   Posted 10/18/2007 9:51 AM (GMT -6)   
I'm a 5'10" male at 195 lbs. I weigh myself everyday. My weight tends to fluxuate in a 20-lb. range (185 to 205). Luckily, I've been in remission for 6 years, but friends remember what I've looked like during the flare-ups. When I was in high school, my mother took me to get a physical because I was so thin. I was given a clean bill of health but was then in the hospital less than a year later after my small intestine ruptured (DX'd with CD). Lost 40 lbs. during each of my first two flare-ups and then lost over 50 lbs. in the 2001 episode! So right now, I wouldn't be considered thin or even suspected of being someone with CD. It's when I start losing a bunch of weight in a short amount of time that everyone (including myself) starts to worry.
Age: 37
Diagnosed in 1987; Flare-ups in 1987, 1994, 2001
Surgeries in 1987 and 1994
Current meds: 6MP, Prevacid, Remicade (every 8 wks)

Regular Member

Date Joined Mar 2006
Total Posts : 494
   Posted 10/18/2007 12:15 PM (GMT -6)   
I weigh 118, and am 38 years old. I used to weigh 112 till I was put on Entocort and now Remicade. I also work out because it makes me feel better but now also because I have gotten osteoporosis from the entocort.
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf and Remicade.

Regular Member

Date Joined Oct 2007
Total Posts : 31
   Posted 10/18/2007 12:38 PM (GMT -6)   
I am so glad you mentioned this. My GI always asks me if there has been any weight loss. As if I have to have weight loss to have CD?! I thought maybe it was me being histrionic. Anyway, I think maybe it's because we don't absorb much nutrition that's why we eat a lot, that with the meds. I eat a lot too. My husband is convinecd that's why I have CD. This last time in the hospital my labs came back as me being malnutritioned and low potassium. But I am in no way means thin. 5' 3' 189 lbs. Thanks for asking about this topic.
37 year old female diagnosed with CD 1 1/2 years ago. On Pentasa, Entocort EC, Prilosec, Promethazine, Vicodin, Ativan and Zoloft.

there's Hope
Regular Member

Date Joined Nov 2006
Total Posts : 145
   Posted 10/18/2007 12:56 PM (GMT -6)   
I was very thin when I got dx, 5'8" and 130lbs.. Then came the steroids and all of a sudden I gained 80 pounds!!! I am now down to 190 and still working out and eating healthy and trying to shed this weight. It is a LOT harder than I imagined, gaining weight is so much easier than losing it!!!
25 year old female. Dx with UC in June 2003. Flare up in June 2006 led to CD dx.
"There's Hope. It doesn't cost a thing to smile; You don't have to pay to laugh; You better thank God for that!"

Regular Member

Date Joined Jul 2007
Total Posts : 137
   Posted 10/18/2007 1:56 PM (GMT -6)   
I'm 5'4" and 215 lbs, lose alot when sick and gain it all back and then some when feeling better.

Dx CD 2003 but probably had it 10 years prior

Dx Primary Sclerossing Cholangitis 2006

GB out '95, Appendix out '96, Kidney stent '02/stone removal '02, Resection '04, fistulectomy '06 2x, tubal '05

Currently on 100mg 6mp-50 mg,  and Remicade every 8 weeks, Ambien, predsnisone, humira 

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 10/18/2007 2:31 PM (GMT -6)   
Thinest was 145 lbs (there abouts... running a marathon) and highest was 293 (bad crohns flare at the time too) female and six feet tall...
Forum Moderator 
I will find a way, or make one.-Philip Sidney
Make sure your suffering has meaning...

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