I was just thinking about
the tysarbi post (drug trial periods have been extended. The drug is associated with development of deadly central nervous system disease)
What do you guys think? How much should patients know about
the medications their physicians want them to take? If we know everything are we much less likely to take what's prescribed and will that negatively affect outcomes? Is a little bit of ignorance good for us?
Just this week I was reading a study looking at how the benefits and risks of Remicade are perceived by crohn's patients. Turns out patients over-estimate its therapeutic benefit and vastly under-estimate its risk of a major adverse effect (lymphoma). Even the parents of patients are not well informed, according to the survey. Compared to published literature, patients and parents of patients overestimate the benefit of infliximab and underestimate its risks. For instance fully one-third of respondents were not aware that lymphoma was a risk associated with Remicade, but when asked if they would take a hypothetical new(unnamed) drug that carried a risk ratio equal to the actual risk from taking Remicade nearly 70 percent said they would not take it.
30+ years living with Crohn's.
Post Edited (belleenstein) : 10/18/2007 7:33:53 AM (GMT-6)