Officially diagnosed: Pain in the buttock

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Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 10/18/2007 4:27 PM (GMT -7)   
A while back I wrote about my hamstring tendon problem from Levaquin. Well, PT treatments weren't all that successful and I continued to have pain in the lower right cheek.
 
Then the pain started up in the left cheek where that hamstring tendon insets. Pain crept up into the butt on both sides and wrapped around to the hips. The pain continued to get worse to where I was waking up at night from the butt pain. My rheumy sent me for a MRI of the pelvis.
 
Among other things the MRI showed that I have fluid between the gluteus maximus and gluteus medius muscle consistent with subgluteus bursitis. Wow! Great! Butt bursitis! LOL
 
The MRI also showed trochanteric bursitis on both sides; tendinopathy/tendinosis of semimembranosus tendons; and that my femoral head avascular necrosis is stable.
 
Waiting for my rheumy to call and tell me how he is going to treat this pain in the butt....... cool
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


killerzoey
Regular Member


Date Joined Jul 2007
Total Posts : 161
   Posted 10/18/2007 5:04 PM (GMT -7)   
Wow - bursitis of the butt...and more? I'm so sorry to learn that, Ides. Best wishes for this info leading to your feeling better soon - Jamie
36 year old mother of a fabulous toddler. Major symptoms began after her birth, with widespread pain/stiffness and mucus in stool. Had seen blood in stool for years prior but believe (and still suspect) hemorrhoids and/or fissures for this particular manifestation.

Diagnosed with Crohn's July 2007. The only visible areas of inflammation via scope were my stomach, rectum, and somewhere in my colon. Pill Cam, SBFT, CT Scan all normal. I think I may mainly have colitis.

STARTED LOW DOSE NALTREXONE SEPT. 26TH www.lowdosenaltrexone.org. Also see: http://www.ncbi.nlm.nih.gov/sites/entrez?db=pubmed&cmd=Retrieve&list_uids=17222320

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman.

Current biggest complaints: LRQ fullness and burning now gone. Gastritis symptoms are also quiet now. What was horrible right hip and low back pain has subsided about 60%. I'm pretty much feeling normal but in no way think I do not have more symptoms in my future.


Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 10/18/2007 8:56 PM (GMT -7)   
Geeez Ides, did not know that was possible. I thought for a minute it could be sciatica, but, nope, you pulled a new one on me. Hope doc has a quick fix for it though...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/19/2007 7:04 AM (GMT -7)   
Yeah Ides thats a new one for me too. Don't you just love being the first on the block to get bursitis in your butt. I just got a lovely steroid shot in my left knee because of bursitis in my knee. That was REAL fun. (not)
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 10/19/2007 2:07 PM (GMT -7)   
I had trochanteric bursitis once. It was not fun. I got a steroid injection which was not painful (I have had them elsewhere with different degrees of pain) and never had a problem since then with that joint. Having it on both sides must be really awful.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/19/2007 2:36 PM (GMT -7)   
Hi Ides sorry to hear about your butt pain. I guess you are litteraly a pain in the butt. Not intended to be offensive . Hope they can help that and gee there sure is a lot of things to contend with at times. Hope you get some sleep.I think I got myself convinced this is not my belly anymore .lol gail

Holly Bear
Regular Member


Date Joined Jan 2015
Total Posts : 24
   Posted 1/15/2015 6:44 PM (GMT -7)   
How do you get someone to diagnose this horrible pain in the butt and hips? What kind of doctor did you see? I have seen everyone and been told many things and tried Ph Th and it just gets worse and worse since the Chrones is getting worse and not being diagnosed correctly. It is like someone is prodding me with a spear in in my rectal area. Throbbing like inflamation in my buttock and lower back. It is hell and pain medication now hurts my stomach!
I am still struggling to be diagnosed with Chrones after six obstructions, red flag symptoms, and a whole host of tests. Things started going downhill after my gall bladder came out in 2008. Blood test comes up suggestive of Chrones. Biopsies came up normal. I have to treat myself as if I have it, or I can not get out of the bathroom, or bear the abdominal pain. Chrones stinks!

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 1/15/2015 6:54 PM (GMT -7)   
I had the most wonderful rheumatologist! He was one of only three at the time in the US using ultrasound to look at tendons, specifically the insertion points. He found severe enthesitis and then sent me for a MRI.

You pain sounds consistent with spondyloarthropathy. SpA has several forms. Enteric arthropathy and ankylosing spondylitis [AS] are both associated with Crohn's. The hallmark sign of AS is inflammation in the SI joints. They are closely aligned with the dimples above the butt cheeks.

You need you doctor to order a MRI. If you don't have a rheumy, get one! If you have one and he won't order the MRI, then get a new rheumy! Good luck!
Moderator Crohn's disease, Osteoarthritis and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

mirowpl
Regular Member


Date Joined Nov 2009
Total Posts : 380
   Posted 1/17/2015 8:17 AM (GMT -7)   
hey Ides!!!! your topic line alone made me laugh!!! thank you for that. i really needed it. I am sorry for all the issues, but sometimes a good laugh helps.

After I had spent the whole night on the toilet, not sleeping, cleaning up accidents in the bed, taking several showers to clean myself up, I opened the forum for some support and saw your topic.
that topic line "Officially diagnosed: Pain in the buttock" was all i needed to make me smile.

Again, not trying to lessen the issues you are having, but wanted you to know you helped me!!!! I do hope you get some relief soon.

thanks for all you do on this forum, including making me smile.

Mirow
crohn's since 1997, resection surgery in 2010, Malignant Hypertension, A-fib, Cardiomyopathy, Left ventricular hypertrophy, difficult to control Gout, Menginoma of the frontal convexity, kidney disease level 1 (thank goodness not worse right now), 12 different prescription medications a day Plus Humira shots every other week, FAILED: 6mp, Cimzia, Remicade and Methotrexate
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