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CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 10/18/2007 8:20 PM (GMT -7)   
any one else ever deal with or is dealing with seemingly spontaneous anemia? i know it aint my crohn's (no real symptoms and not seeing any blood or dark stools) and i dont have those girlie issues. all i can think of that is causing it is the 6-mp. been on it since 1995. i've read it can cause bone marrow suppression. perhaps i'm finally experiencing this? i've had to get blood transfusions in july and september of this year (2 units each time) and now my iron levels are super ridiculously low (yes, i am taking iron supplements and doing other things for this) any one have any other thoughts on what could be causing this? i'm kinda baffled. it has prompted to make the gritty decision to stop the 6-mp to see if this anemia goes away. if i werent feeling this well this would be a much harder decision.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
been on basically every med available, currently on colozal & 6-mp
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon


Spifficial
Regular Member


Date Joined Oct 2007
Total Posts : 33
   Posted 10/19/2007 3:00 AM (GMT -7)   
I was wondering this too, although i HAVE the girlie problems :) I've been anemic since I was 17, found out about the CD when i was 23, and about a month (almost to the day!) after my first hospitalization, I'm back in for a blood transfusion from losing blood (clots as big as my fist!) A DNC fixed that all up, but since my last hospital visit (few weeks ago) I've been "on" again, for an abnormal amount of time. I started taking Yasmin for the anemia when i was 17, and it's works great for me since, but now with the CD, my doctors are fighting over whether i should keep taking it. Anyone else have this sort of situation?

Does CD medicine cause anemia, or is it meds?
Diagnosed CD in Dec 06'
Currently on: Humira, 30 MG Prednisone (decreasing since starting Humira), Yasmin (9 week intervals), multivitamin, calcium +D & magnesium


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 10/19/2007 3:45 AM (GMT -7)   
Hi I would recommend getting into seeing your doctor asap. Especially with the anemia.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Dave D
Regular Member


Date Joined Aug 2005
Total Posts : 404
   Posted 10/19/2007 5:47 AM (GMT -7)   
Find yourself a good Hematologist. They are usually associated with Cancer Clinics. I have had almost perpetual anemia for years. Several years ago I even bought a hemoglobinometer off ebay and started checking it myself. You can poop out the blood without noticing a change in color and the disease may be preventong you from making iron.
I cannot take oral iron since it gives me the big D, so I just call the blood doc and he gives me an iron infusion and boom! I'm ready for the dance. Plus, I'm not getting anyone elses' body fluids. I got an infusion Monday, four days ago and I'm back running already.
Dave D


Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Eye is healing and currently taking Entocort counting on the residual (non-systemic portion) treating the eye. In October if eye is stabilized, will need cataract removal (obviously old steroid associated). Then surgey to the back of the eye to remove scare tissue caused by the detachment. The upside? Right now I only have to clean one side (lense) of my glasses.
Married with 4 grandkids.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 10/19/2007 11:52 AM (GMT -7)   
Crazy Harry talk to your gi before going off your medicine. Hate to see get caught up in a flare. My pulmonary dr back in Jan ordered labs on me, my B12 was low and he says that leads to anemia. So, I am taking B12 shots and I do think they may have helped with my fatigue a little....Susie


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 10/19/2007 10:18 PM (GMT -7)   
i started seeing a hematologist at an oncology center at the first of this month. they just want to monitor my blood...

my b-12 is low, but is improving since i've started to take b-12 supplements. no one thought to check this until i did some research and asked them to check it with my weekly blood work. arg.

i know iron pills can constipate you so i am hesitant to use them, especially after just going through a heck of a battle with colonic inertia. i've tried the all natural way the last few months - more red meat, liver, and natural iron from dessicated buffalo liver and plant iron (floradix) but apparently they are working as well as i had hoped, so i gotta give the iron pills a try. the hematologist didnt want to do iron infusions - he wants me to use the pills first and save the infusions as a last resort. fine...

my GI knows of my plan to get off my meds. he agrees that the 6-mp could be causing this and imho getting off of it is the first step in trying to solve this. i dont want to get a blood transfusion every month or two. sure i am feeling better crohn's wise, but being too fatigued to function is now way to live either. if getting off the 6-mp cause things to go south (which i dont think they will though) the back up plan short term is humira.

thanks everybody!
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
been on basically every med available, currently on colozal & 6-mp
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon


killerzoey
Regular Member


Date Joined Jul 2007
Total Posts : 161
   Posted 10/20/2007 12:56 AM (GMT -7)   
Sorry you are going through this. I know this is probably common knowledge but I wanted to share that I had a bad reaction to taking oral iron. Good luck with dealing with all of this - Jamie
36 year old mother of a fabulous toddler. Major symptoms began after her birth, with widespread pain/stiffness and mucus in stool. Had seen blood in stool for years prior but believe (and still suspect) hemorrhoids and/or fissures for this particular manifestation.

Diagnosed with Crohn's July 2007. The only visible areas of inflammation via scope were my stomach, rectum, and somewhere in my colon. Pill Cam, SBFT, CT Scan all normal. I think I may mainly have colitis.

STARTED LOW DOSE NALTREXONE SEPT. 26TH www.lowdosenaltrexone.org. Also see: http://www.ncbi.nlm.nih.gov/sites/entrez?db=pubmed&cmd=Retrieve&list_uids=17222320

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman.

Current biggest complaints: LRQ fullness and burning now gone. Gastritis symptoms are also quiet now. What was horrible right hip and low back pain has subsided about 60%. I'm pretty much feeling normal but in no way think I do not have more symptoms in my future.


Skjura
Regular Member


Date Joined Jun 2007
Total Posts : 210
   Posted 10/20/2007 5:33 AM (GMT -7)   
Hi,

Last year I had anemia, with quite low tests, hb at 8.4, but the only answer I got was to use iron pills and eat red meat. This was in june last year, it took me app 8 months to get fine levels again, and ordinary iron pills didn't help a lot, actually it was floradix that helped me in the end. Prior to the anemia I had no visible blood in the BM, and i just saw a little fresh blood on the toiletpaper now and then. Even if you are low in iron it doesn't mean you are bleeding from somewhere, does it? Of course you need to be examined from top to toe, being on such low levels are not healthy and it sure is a reason. The reason is often low B 12 or that the intestines can't take care of the iron within the food passing because there is an inflamational activity. Anyway, I hope you'll get infusions, you can't have a good, functional life having such low levels, you sure have low energy and fatique. Take care!
Hugs
From Ingrid :-)


 
Diagnosed CD June 2007. Have been on a minor prednisone medication. Did make a difference while max dosed. Got my problems back when tapering.
 
Using Low Dose Naltrexone from sept. 2007. See yahoo.com. A member in the group "lowdosenaltrexone" at yahoo. A mixed group, members with MS, Crohns, Colitis Ulcerosa, psoriasis, other autoimmune diseases.
 
Use home made scd yoghurt containing a lot of probiotics - a benefit for the intestines. I don't use white sugar. No yeast in glutenfree, homemade breads.

Post Edited (Skjura) : 10/20/2007 7:04:52 AM (GMT-6)


Mar1anneC
Regular Member


Date Joined Aug 2007
Total Posts : 79
   Posted 10/20/2007 6:45 PM (GMT -7)   
I am anemic. I refuse to take iron pills. When I was pregnant (before CD diagonis) I tried every brand on the market and they all made me consitipated and crampy. My pains were so bad I thought I was having contrations and ended up visiting the hospital. My GI says that the anemia is a symptom of the crohns due to not absorbing nutrients correctly. I guess mine is not bad enough that they do anything in particular about it by my OBGYN always tells me to take iron pills but I will not. Don't care - won't do it.

ElainePearl
New Member


Date Joined Oct 2007
Total Posts : 10
   Posted 10/20/2007 7:50 PM (GMT -7)   
I too constantly fight the anemia battle. When I was first diagnosed my hb was at 7. Over the past few years, even with blood transfusions, the highest its been is 10. Like you, it tends to be rather sporadic. All of a sudden you realize you are way more tired and achy than normal. Just recently, it dropped back down and my hemotologist started giving me the lecture about taking my iron pills. And those iron pills are OH so much fun. She keeps suggesting an iron infusion - Dave D, its nice to hear that it works for someone :-) Crazy Harry, I know the anemia makes you utterly exhausted and frustrated, hang in there. I hope it gets better soon.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 10/20/2007 9:00 PM (GMT -7)   
CH, do you take extra vitamin C? You probably do. Just thought I'd throw it out there. I have read it is imperative for iron absorption.

I sure hope you/your docs get to the bottom of this really soon!! A hematologist told us that when a person is anemic for an extended period, the body uses iron stored in the bone marrow. Likewise, when you begin to replace that iron (if I understood correctly) the body replenishes the marrow's iron first, thus taking a long time to show improvement in a blood test. So maybe you are improving but it is just taking a while to show up.

I am thinking of you! Take care!
EMom

Grateful for everyone's help here!

Mother to 15 year old boy just diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, and a good multivitamin.
Just starting the Maker's Diet.

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