Crazy Hunger Pains??

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New Member

Date Joined Oct 2007
Total Posts : 10
   Posted 10/19/2007 5:33 PM (GMT -6)   
Hi.  I decided to join the forum today because I think it would really help to talk with other dealing with Crohn's...I am feeling so exhausted. I have so many questions for you all but here is one for now :-)
I went through a long period where I barely ate and never had an appitate.  What's wierd now is that I am painfully hungry all the time, no matter what I eat.  Has anyone ever experienced this?

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 10/19/2007 5:41 PM (GMT -6)   
What medication(s) are you taking. Steroids are known to dramatically increase the appetite.

New Member

Date Joined Oct 2007
Total Posts : 10
   Posted 10/19/2007 5:47 PM (GMT -6)   
Colazal, Entocort and Xifaxan. When I told my doctor about the hunger pains he perscribed the Xifaxan. But I don't think its working.

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 10/19/2007 5:50 PM (GMT -6)   
Your Entocort is a steroid. I take regular prednisone and when I was up at 80mg/day I could eat and I would not feel full where as a week before one tenth of what I had eaten would make me feel full.

Veteran Member

Date Joined Apr 2006
Total Posts : 1665
   Posted 10/19/2007 7:54 PM (GMT -6)   
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.

potty pooper
Regular Member

Date Joined Dec 2006
Total Posts : 375
   Posted 10/19/2007 9:45 PM (GMT -6)   
Hi and welcome to HW.  As others have mentioned, if you are on steroids your appetite could be ravenous.  However, I have been off them for a while and I am still finding that I am very hungry all day.  Could be because my diet consists of a lot of carbs and not much fiber which would keep me satisfied longer.  Either way, having an appetite is usually a good sign.

Regular Member

Date Joined Jul 2007
Total Posts : 161
   Posted 10/20/2007 1:30 AM (GMT -6)   
Hi and welcome.

I had intense hunger 24/7 for a few months and an endoscopy showed I had chronic inflammation of the antral gastric mucosa. When I pushed on my stomach there, the hunger sensation would increase. My doctor put me on Protonix 40mg. At the same time I made numerous diet changes so I do not know what helped more. It finally went away but has been back a few times, for less time (thank goodness). might want to be evaluated for gastritis.
36 year old mother of a fabulous toddler. Major symptoms began after her birth, with widespread pain/stiffness and mucus in stool. Had seen blood in stool for years prior but believe (and still suspect) hemorrhoids and/or fissures for this particular manifestation.

Diagnosed with Crohn's July 2007. The only visible areas of inflammation via scope were my stomach, rectum, and somewhere in my colon. Pill Cam, SBFT, CT Scan all normal. I think I may mainly have colitis.


On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman.

Current biggest complaints: LRQ fullness and burning now gone. Gastritis symptoms are also quiet now. What was horrible right hip and low back pain has subsided about 60%. I'm pretty much feeling normal but in no way think I do not have more symptoms in my future.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 10/20/2007 4:37 AM (GMT -6)   
Hi and welcome to HW .You mentioned you are exhausted have you had your B-12 levels checked ?Alot of us CDer's take B-12 so was wondering. Glad you have joined us and ask your questions it really is great to have someone to talk to about CD. lol gail

Regular Member

Date Joined Jun 2007
Total Posts : 210
   Posted 10/20/2007 4:52 AM (GMT -6)   
Both gastritis and steroids make one feel hunger. With gastritis follows pain. With steroids no pain...

Diagnosed CD June 2007. Have been on a minor prednisone medication. Did make a difference while max dosed. Got my problems back when tapering.
Using Low Dose Naltrexone from sept. 2007. See A member in the group "lowdosenaltrexone" at yahoo. A mixed group, members with MS, Crohns, Colitis Ulcerosa, psoriasis, other autoimmune diseases.
Use home made scd yoghurt containing a lot of probiotics - a benefit for the intestines. I don't use white sugar. No yeast in glutenfree, homemade breads.

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 10/20/2007 4:11 PM (GMT -6)   
sounds like your doc thinks you might have an infection...but gastrisis can be assocaited with crohn and can cause wicked hunger pains
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I will find a way, or make one.-Philip Sidney
Make sure your suffering has meaning...

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