possible fistula?

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rootsmith
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Date Joined Jan 2004
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   Posted 10/20/2007 8:57 PM (GMT -7)   
All the posts about the horrors of fistulas have me worried.I had surgery in January for what turned out to be a "hemorrhagic cyst"  I had been told for several years it was probably a lipoma (lower right groin) and to leave it alone. I watched it grow to the size of a walnut. The last doctor told me not to assume that it was that and have a surgeon look at it. That scared me so I took his advice. The surgeon thought it was a hernia and was definitely not a lipoma. (it was squishy) So I had a hernia repair scheduled and when they went to do it, found out it was this "cyst" filled with bloody fluid.   He said he could see no connection to the inside but then added that it can be very very small. I think he sutured behind it just in case.  I asked if it could be a fistula and he said he didn't think so (I didn't have a diagnosis of IBD  at that point but he knew my story)
 
Ok, had the surgery and the 1 1/2 inch incision healed fine.  I noticed it was a little tender the other day so I investigated and noticed the very end of it had broken open and it was oozing a little blood.  It is starting to heal again but looks kind of purplish, like a pimple that has popped and is healing, with a small depression on the surface.  
 
 Does it sound like anything anyone has had?  I noticed someone posted about their "enterocutaneous" fistula, which is what this would be, and they said sometimes it did not have feces draining from it, just fluid. 
 
I am wondering what is going on and will bring it up when I see the gi in December (unless it gets worse soon).  Has anyone heard of a surgical incision that healed perfectly and then reopened? This is just a very small area at the end of the incision. I don't have a gaping wound.    
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


JudyK89
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Date Joined Dec 2006
Total Posts : 1986
   Posted 10/21/2007 4:56 AM (GMT -7)   
I have a couple laparoscopic scars that get irritated during hot summer months (I think my ostomy pouch rubs against them) and sometimes they ooze. Not feces, not pus, just clear seepage. Funny, I've never had it looked at, guess I didn't want to open another can of worms.

However the "purplish" color sounds an alarm for me. I had an abdominal abscess "pop" and it was a purplish bruise before it did.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


chroniemomx2
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Date Joined Apr 2005
Total Posts : 2346
   Posted 10/21/2007 5:46 AM (GMT -7)   
My fistula that exits by my anus doesn't drain feces.... I guess I would have it looked at just in case.

rootsmith
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Date Joined Jan 2004
Total Posts : 598
   Posted 10/21/2007 6:14 AM (GMT -7)   
Thanks for both your replies. I will definitely mention it when I have my next appt. I wish I had thought of this *before* I had the hernia repair. I guess I wasn't thinking in terms of fluid in this lump.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


dragonfly137927
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Date Joined Sep 2006
Total Posts : 2527
   Posted 10/21/2007 6:34 AM (GMT -7)   
I am the one with the enterocutaneous fistula. Mine drains pus and/or feces. Mine is right along my midline incision from my CD surgeries. Literally right on the scar. Keep an eye our for pus and feces If really concerned I would call your GI and inform them about this and explain the type of drainage you are getting. My fistula made it very tender, it swelled up and part of the skin did turn purplish before I was able to open the area to allow it to drain. It didnt drain feces immediately and it doesnt everyday but there is always pus which in my case is yellow very rarely gereenish.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


Keah
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Date Joined Nov 2003
Total Posts : 7314
   Posted 10/21/2007 7:37 AM (GMT -7)   
RS, I don't think I would wait unti lDec to have someone take a look at what's going on. Of course I'm well known to be a very impatient patient and want to know everything NOW.

IMHO, if what you have is a fistula, waiting 6 to 8 weeks to start treating it doesn't seem like the best course of action. The sooner these things are addressed, the greater the likelihood of closing them and avoiding possible complications such as abscesses, etc.

I'm really sorry that you are facing this and hope you can get it healed quickly.
Keah a.k.a. Wormy
 God helps those who help themselves.
Please help us support this invaluable forum.
Crohn's Forum Moderator


chroniemomx2
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Date Joined Apr 2005
Total Posts : 2346
   Posted 10/21/2007 9:09 AM (GMT -7)   
Good advice, Keah!

gachrons
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Date Joined Mar 2007
Total Posts : 4527
   Posted 10/21/2007 2:19 PM (GMT -7)   
Hi I think a GP can probably tell you what it is .A GP mentioned that is what I had and like dragonfly mine was on the incision scar. If it leaks it could be one how long ago have you had your surgery. They can be scarry but it really helps to have some help from others on here I know my mind found it hard to deal with at the time. There are drugs that help them Rem. and Hum. It might not be one so see a DR. about it. lol gail

broomhilda
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Date Joined May 2007
Total Posts : 1488
   Posted 10/21/2007 7:25 PM (GMT -7)   
I would see your doctor before Dec. too. I've not had a fistula yet, however, after my resection my incision was all closed and healing fine and about the 4th week I had oozing at the lowest point just above my pelvic bone. According to the surgeon this area was about where he had done an internal stitch and it had become infected, festered and broke open oozing. He went in and manually scrubbed it out with a local but it still took quite some time to heal. Also, I now have a hernia over that area which gee whiz no one told me about until last month when I asked the GI if the difference in the surface area of my skin was from internal scar tissue! My area on the incision was never purple though, that's why I believe in your case, I would get it checked out. Good LucK!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


karendee
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Date Joined Mar 2007
Total Posts : 1642
   Posted 10/22/2007 8:27 AM (GMT -7)   

I am worried I might be developing a fistula or something. I have a bump on my bum near my anus that is sore a little and seems to be getting bigger. It does feel better when I wipe at and it does not hurt too much. I had my scope in march and no fistulas. I wonder how long those could take to show up? Or maybe it is an abscess? Too far away to be hemorrhoids.

 

 

I also agree December is too long to wait! You could be staring to heal it well before then. And who know how much worse it could get before then.

 

Let us know how it turns out.

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, waiting on a EMG nerve test right now...


Glad Bag
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Date Joined Mar 2007
Total Posts : 699
   Posted 10/22/2007 1:25 PM (GMT -7)   
fistulas can be very small and not seen on a scope....keep an eye on anything you suspect is a fistula...
"All we need is love....love is all we need"


karendee
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Date Joined Mar 2007
Total Posts : 1642
   Posted 10/22/2007 1:39 PM (GMT -7)   
thanks Glad Bag, I assued they could have been seen on a scope... I sure hope I am wrong and it is not one

Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, waiting on a EMG nerve test right now...


rootsmith
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Date Joined Jan 2004
Total Posts : 598
   Posted 10/22/2007 5:13 PM (GMT -7)   

Hi again:

I'm keeping my eye on it. It seems to be healing over which is kind of strange if it was a fistula, to heal so soon. But I also have no idea what would have caused it to open when it was healed completely. I have an appt with my primary NP on 11/1 which is just a little over a week away.  I will watch it till then and then ask her. 

 


10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


Keah
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Date Joined Nov 2003
Total Posts : 7314
   Posted 10/22/2007 6:20 PM (GMT -7)   
RS, The skin over a fistula can heal over and then reopen anytime. Your surgery was 10 months ago, it's way too late for it to be a complication from that. If it closes and the same type of bump appears that you had before, it's likely that there's an abscess, not a cyst.

Although there is also the possibilty that part of the original cyst wasn't excised during the surgery and it's grown back. Either way, determining what it is will determine the necessary course of action. I hope that whatever it is has an easy fix.
Keah a.k.a. Wormy
 God helps those who help themselves.
Please help us support this invaluable forum.
Crohn's Forum Moderator


rootsmith
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Date Joined Jan 2004
Total Posts : 598
   Posted 10/23/2007 9:28 PM (GMT -7)   
I hadn't actually counted the months, I guess it has been 10 :<( I did think it kind of odd that it opened up after being healed completely. It looks fine now although you can see a small scab. You might be right about perhaps the whole thing wasn't excised completely. I could tell from the surgeon's description that they were perplexed by it. They did analyze the fluid. He said they really didn't like the idea that it was bloody. Another odd thing was how it just grew for years. You would think that a fistula would open before that- this thing just kept growing slowly.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft

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