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irish63
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 10/21/2007 5:53 PM (GMT -7)   
Has anyone ever been in a flare but bloodwork is normal?  I have the painful joints, D, belly pain and major burning, headache,and just that whole feeling like "crap" (no pun intended).  :-) MY GI, whom I really like, says: "You really shouldn't be symtomatic, your blood work is all normal."  What's up with that?  I thought this stupid disease could cause you problems even with "normal" bloodwork.  I hate this disease...and right now I don't like my GI that much.
Dx: 10/04 IBD (unclassifiable but most likely Crohn's so they tell me), GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 10/21/2007 6:12 PM (GMT -7)   
It's certainly possible to be in a flare but still have normal bloodwork. Heck, I've been hospitalized twice with really bad flares, but my bloodwork was normal the whole time!

Not everybody has increased ESR or CRP from their Crohn's. Your GI *should* know that. Blood tests are only one of many things to consider.

irish63
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 10/22/2007 12:35 PM (GMT -7)   
Thanks for your reply.  I know you'd think he would remember that, heck he's told me that himself.  I just feel so helpless sometimes, I just want his "approval" or "reassurance" I guess for some odd reason. 

Dx: 10/04 IBD (unclassifiable but most likely Crohn's so they tell me), GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 


thenay
Regular Member


Date Joined May 2006
Total Posts : 167
   Posted 10/22/2007 1:47 PM (GMT -7)   
Beave is right. And hang in there, things will get better soon.
I didn't like my GI that much either, switch if you can, that's what I did.
DX with CD May 2006 @ age 22
Tried Pentasa and Entocort, worked for a yr and a bit
Now on prednisone 37.5mg and having some side effects, "..time goes by so slowly..."
"We're always here for you if you need to talk!"


caras
Regular Member


Date Joined Apr 2006
Total Posts : 59
   Posted 10/22/2007 1:59 PM (GMT -7)   
my doctor always tells me that if someone didnt know me and only looked at my bloodwork they would think i was perfectly healthy.
this of course is not the case
even when i have huuge abscesses brewing nothing shows up.

if you arent happy with your GI look i would also say to look into finding a new one.
when i was first diagnosed i wasnt happy with my GI he was very old fashioned and hesitant to put me on remicade even after i had tried everything else and was having so many reoccuring problems with fistulas and abcsesses. my surgeon even kept telling him to put me on every time after he would drain one and how i was a perfect candidate, but he still wouldnt.
i switched and my new GI is very pro-active and got me right onto remicade at the point, and ever since then has always been very attentive to how i feel. he understands the fact that i know whats going on in my own body and can tell when something isnt right. i hate when doctors dont trust you and listen to you.
we know our bodies better than anyone else!!

good luck with everything!!

KaNDiCe21
Regular Member


Date Joined Oct 2007
Total Posts : 106
   Posted 10/22/2007 4:19 PM (GMT -7)   
Yes, they try to say I'm fine all the time too by looking at my bloodwork you would think so. But I'm like you I feel like poop on the inside. You know when your body is in a flare and doctors should listen to you! Good luck and hope you feel better soon :)
DX: Crohns in March 2007
Meds: Remicade


irish63
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 10/22/2007 6:31 PM (GMT -7)   
Thanks so much to all of you. I know it is stupid but I always feel so validated after getting replies about my questions here. An you're all right we do know our bodies and the way we feel. I want a GI that has an IBD. I wouldn't wish it on anyone but if soem of these docs knew what it was like I bet they would treat us differently.

many thanks again to everyone here
Dx: 10/04 IBD (unclassifiable but most likely Crohn's so they tell me), GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 


equinelvr
Regular Member


Date Joined Oct 2007
Total Posts : 31
   Posted 10/22/2007 11:19 PM (GMT -7)   
I think we all should tell our docs about this forum, maybe they could gain some insight into the lives of their patients.
37 year old female diagnosed with CD 1 1/2 years ago. On Pentasa, Entocort EC, Prilosec, Promethazine, Vicodin, Ativan and Zoloft.


KaNDiCe21
Regular Member


Date Joined Oct 2007
Total Posts : 106
   Posted 10/23/2007 6:54 PM (GMT -7)   
I agree 100% I had a doctor with crohns disease that I only got to see once. He was wonderful and so understanding. It's like if they dont have to deal with it theirselves then they don't really care. If I was a doctor I would be so much different than a lot of them are nowadays. His name was doctor Reynolds and he opened his own private practice in West Virginia. So if anyone lives there, Hes a GREAT doc!! Good luck to all!
DX: Crohns in March 2007
Meds: Remicade

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