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kronstoolong
Regular Member


Date Joined Mar 2006
Total Posts : 366
   Posted 10/21/2007 10:26 PM (GMT -7)   
Has anyone heard of Orencia.  I just saw a commercial for it for RA and looked it up and it is in trial for CD.  I wonder if anyone has tried it yet or knows anything about it.  I am just starting to research it.  I wonder if the cost is any lower than Humira.  I have been unable to take the Humira for 3 months because it is too expensive.  Let me know if you know anything.  Thanks.
Dawn
 
31 Years Old
Diagnosed with Crohn's Disease at age 17.
Diagnosed with RA or severe joint inflammation due to CD.
Hypothyroid, GERD.
 
Currently taking Leucovorin, Levoxyl, Humira, Methotrexate, Vitamin D - 50,000 IU per week, Vitamin B12 injections, Lunesta and Vicodin or Percocet as needed.
 
In the past have taken Prednisone, Pentasa, Remicade, Imuran, Plaquenil and I am sure many, many more.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/21/2007 11:26 PM (GMT -7)   
Hi Dawn,

You're right, it is in trial. As far as I know, the trials are restricted to people who've reacted to or have had little success with other biologics, such as Infliximab (Remicade) or Humira. I doubt if you'd be allowed to participate simply because you find Humira too expensive. If you're interested in participating in a trial, you should start making enquiries now, as the trial has been running for some time and each participating hospital has been allocated a certain number of places, and once those places are filled, you'll miss out.

You'll need to have your breasts checked by a gynae and maybe have a mammogram too; you'll also be asked whether you want to give a sample of your DNA for further research.

As far as I know (and please correct me if I'm wrong) the cost is about the same as Infliximab and Humira. Also, from what I remember, the Orencia is given as an infusion (in the trial stage anyway) so you'd have to factor in time off work etc if you were thinking about taking it.

All of this was told to me by a clinical trial nurse when I was very ill in hospital earlier this year so I may have some of the details wrong. I think they're basically right, though.

Hope this helps,

Ivy.
Co-Moderator Crohn's Forum.


Kenny23
Regular Member


Date Joined Aug 2005
Total Posts : 128
   Posted 10/22/2007 12:37 AM (GMT -7)   
This is a biologic medicine like Humira. It works a little differently but still carries a high price tag. No biotechnology products are ever going to be cheap.

Did you know that Abbott has a patient assistance program which will provide Humira free of charge if you qualify? If you have insurance and can't cover the copay I think their program helps out with that too. You need to call Abbott (Find their number of Humira.com) and request an application.

Also, if you are interested in trials for cheap medicine, you can consider low dose naltrexone. This is very inexpensive and has helped some when Remicade hasn't.

kronstoolong
Regular Member


Date Joined Mar 2006
Total Posts : 366
   Posted 10/22/2007 10:22 AM (GMT -7)   
Thank you both for your very informative posts. I really appreciate it.
Dawn
 
31 Years Old
Diagnosed with Crohn's Disease at age 17.
Diagnosed with RA or severe joint inflammation due to CD.
Hypothyroid, GERD.
 
Currently taking Leucovorin, Levoxyl, Humira, Methotrexate, Vitamin D - 50,000 IU per week, Vitamin B12 injections, Lunesta and Vicodin or Percocet as needed.
 
In the past have taken Prednisone, Pentasa, Remicade, Imuran, Plaquenil and I am sure many, many more.


megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 11/1/2007 8:51 PM (GMT -7)   
Hi kronstoolong
Iv'e been just accepted to be in the orencia(abadacept ) trial...I get my first infusion on nov 21 07
just wanted to let you know...

Jackie
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg 6mg 3mg    . starting imuran 250 mg had a allergic reaction  can no longer take it .  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidone and lemotrogine.
 
 

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