severly redundant colon...could that be the problem?

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yogaprof
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Date Joined Apr 2006
Total Posts : 1665
   Posted 10/22/2007 9:32 AM (GMT -7)   
I have had my month of Humira with no effect whatsoever, and that was my Doc's last stab at "maybe it is crohns."  I have had the same, consistant URQ pain for 19 months (but who's counting) and nothing has helped. I go to the GI in a few days and have no idea what he will come up with next. one thing I have been thinking about, after my last c-scope a year ago, he talked about my severly redundant colon and how it is all twisted and knotted and figured eighted. do you think that could be causing all this pain and bloat and C? If so is there a darn thing I can do about it?
thanks so much, YP

48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


gachrons
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Date Joined Mar 2007
Total Posts : 4527
   Posted 10/22/2007 11:43 AM (GMT -7)   
Hi I would think if you are knocked up in there then yes that would cause C ,bloating and discomfort. i have known someone who had a resection then they had to go in and straiten out the bowel becauce it was looped. You should discuss it with your DR. again. Maybe others here know more about it. lol gail

gachrons
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Date Joined Mar 2007
Total Posts : 4527
   Posted 10/22/2007 11:50 AM (GMT -7)   
Hi excuse me I meant knotted up not knocked up. ooopslol gail

broomhilda
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Date Joined May 2007
Total Posts : 1488
   Posted 10/22/2007 6:53 PM (GMT -7)   
Let me get this straight...your GI has known about the knotted up colon for a year now!!!???
And you continue to suffer!!! I know you probably don't want surgery, but I would be on my left ear by now or seeking a new GI or at least some explanations of your current GI's approach to alleviating your pain that is....keywords here...."effecting your quality of life"!!! Hisssssss....some doctors!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


yogaprof
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Date Joined Apr 2006
Total Posts : 1665
   Posted 10/22/2007 7:45 PM (GMT -7)   
thanks so much you both. I really don't know why my GI never did anything about this colon thing. I need you guys to kick my rear to keep actively looking for answers. thanks! yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/24/2007 6:12 AM (GMT -7)   
Hi Well here's your kick please retalk that scope over with a GI or get another one done. Sometimes when DR's talk about stuff things don't sink in or we don't understand everything they say.Keep in touch . lol gail

broomhilda
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Date Joined May 2007
Total Posts : 1488
   Posted 10/24/2007 6:19 AM (GMT -7)   
I have enough pred in me to take on Goliath today....Good luck to you Yoga...don't accept answers if they are not working for you...keep on trying!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/24/2007 10:01 AM (GMT -7)   
thanks! I am getting beefed up and ready to see my GI and figure this out. I can't tell you what it has been like to go so long with a diagnosis coming and going and all the meds and tests. I am SO ready for an answer.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


rootsmith
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Date Joined Jan 2004
Total Posts : 598
   Posted 10/24/2007 10:33 AM (GMT -7)   
Hi Yogaprof:

I have been following your story. One thing I am confused about is why they think the diagnosis is "no crohns" Then saw it once and then you were treated much more aggressively than I have been treated (probably because they have not actually seen CD in me but are calling it that) Could it be possible that your CD was partially treated and it is now microscopic and causing your pain? So all the tests they can do easily would be negative but you would still have CD.

I also had (and could have again) adhesions all around my sigmoid colon- part of my long nondiagnosis- they told me my sigmoid colon was pulled over and stuck to my right pelvic wall. I had a laparoscopy that hopefully fixed that (but didn't fix my pain problem). The last gi doc that just scoped me said I had a very "loopy and twisted colon" that could be part of my problem (this was before my positive response to pentasa)

Would they be doing anything differently for you if they could still see the CD? I know for some people its important to get an answer - it was for me too -but I try to remember, would they be treating me any differently at this point? I *think* probably not.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


rootsmith
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Date Joined Jan 2004
Total Posts : 598
   Posted 10/24/2007 10:36 AM (GMT -7)   
Oops, sorry, just read your first post again and see that was your doctor's attitude when he tried humira. I know that adhesions can really confuse the issue- are they causing the problem or is it something else. There is one side that says adhesions do not cause problems and there is the other side that says they can. From my own experience I can understand how frustrated you must feel, especially after trying the medications you have.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/24/2007 2:37 PM (GMT -7)   
yes, that is pretty much the deal, rootsmith. my GI has really taken it all seriously and tried to tackle it, but he can't get it under control. thanks for your thoughts. yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.

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