I had my second five week follow-up appt. today with the GI, a total of 10 weeks since my colonoscopy and dx of non-specific colitis. Visually, there was inflammation and ulceration in various parts of the colon, but the biopsies didn't prove Crohn's, thus the "non-specific" part.
I've been on Colazal for the last five weeks, although admittedly I'm not taking it as directed. I get headaches after I take it, so I take one capsule instead of three, twice a day rather than three times. I can't blame anyone else for that-it's my own bad judgement.
Luckily, the d has cleared up, now I have trouble going at all lots of days. I have gas and loud bowel noises, and pretty much continual pain in my left side. I also have recurrent diverticulitis infections on the left side, though I haven't had that since June.
Since July, I have only been able to eat plain Greek yogurt, plain crackers, noodles with bland sauces, and turkey sandwiches on white bread with cheese. Every time I try to add a new food, I either have intense pain, bleeding, or d. Plain baked chicken breast with no seasonings made me hurt for three days.
The GI was concerned that my left side is still so tender, and that I'm still eating such a limited and bland diet. She said she would put me on a medication that would help me a lot, but there's no way I could afford it without insurance. She didn't say what med she was thinking of. She suggested I try to get on our state's group insurance. The trouble is that the group insurance doesn't pay for any expensive meds, anyway. They have a list, and only one GI med is on it, and it's the one I can't take at all. You can only go to the doctor five times a year...yeah, right. That'll work.
For now, I'm sticking to the Colazal, and going to take it correctly, plus she added Canasa for my poor sore ..... you know, and added Miralax daily, as well as Balneol cream, which I am already in love with after two uses.
I'm supposed to stick with the bland diet for now, and go back in two months. She suggested I apply for patient assistance for the Colazal.
I think I'm going to attempt SSI. Has anyone here had success with that? I haven't worked for about ten years, will that hurt me?