Anyone ever had a transfusion because of anemia?

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mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 10/22/2007 6:48 PM (GMT -7)   
I can't seem to get my anemia under control no matter what supplements I take, even a lot of iron vitamins. I went to my doc today because 3x in the past 6 weeks or so I have gotten dizzy, I thought it was an inner ear thing. He looked at labs, checked ears, etc, and said the dizziness is because I am so anemic. He said that if we don't get the anemia under control I might need to get a transfusion. Has anyone ever had this done because of anemia? Any info would be helpful. Thank you!
sad
Marci
38 years old, dx with Crohn's disease March 2006, currently on Humira, Entocort and hydrocodone (for pain), and Effexor


Spifficial
Regular Member


Date Joined Oct 2007
Total Posts : 33
   Posted 10/22/2007 7:41 PM (GMT -7)   
I had a transfusion back in January because of massive menstrual blood loss. We're still not sure what caused it, but my OBGYN is leaning towards Crohn's. It happened right after my first CD hospitalization, and then right before another one. She and my GI went round and round on wether or not i should stay on birth control or not.

Personally, i took the iron pills for a while, and although it helped when I was really low, if i took it for too long, I'd start to feel ill, in which case I'd switch to a multi vitamin for a while. Since the CD though, I haven't taken any iron supplements, and since the transfusion, I haven't had any iron issues.

Hope that helps a little ^^
Diagnosed CD in Dec 06'
Currently on: Humira, 30 MG Prednisone (decreasing since starting Humira), Yasmin (9 week intervals), multivitamin, calcium +D & magnesium


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 10/22/2007 7:45 PM (GMT -7)   

I had to have two units of blood when I was in the hospital this summer.  I felt SO much better the next day- like a whole new person.  It was a little scary at the time, because they took it so super seriously.  Two nurses checked and double checked each other, they had me check and spell my name- I'd been in for over a week at that point, and they'd been pumping stuff into me left and right, but nothing else was done this carefully.  Even my surgery seemed more casual than the transfusion.  It didn't feel any different than any of my other IVs, though. 

My mom came down from Boston to be with me, and she offered to donate the blood for my transfusion, but it would have taken time to type her and do all the testing, and they didn't want to wait that long, so they used the blood bank.  If that's something you're concerned about, you could talk to your doctor about using a family donation instead of a stranger's.


eljay1066
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Date Joined Jan 2003
Total Posts : 3166
   Posted 10/22/2007 8:47 PM (GMT -7)   
I didn't have a transfusion, but two iron infusions in a row, because I needed more than they could give me in one day. You might want to se if that's an alternative.
Take care. Lois
 
Moderator: Crohn's and Diabetes Forums

http://www.geocities.com/eljay1066/Aunt_Babe_s_House.html


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 10/23/2007 9:09 AM (GMT -7)   
yes, years ago and to be honest, it didn't do much for me. I only got one bag of blood. I ended up seeing a hematologist who put me on regular iron pills and not the prescription ones. That worked for me and I actually got my hemaglobin up to double digits for the first time in years.

mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 10/23/2007 10:57 AM (GMT -7)   
Thank you all for the info, I really appreciate it. As always, you have been soooo helpful!
Marci
38 years old, dx with Crohn's disease March 2006, currently on Humira, Entocort and hydrocodone (for pain), and Effexor


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 10/23/2007 11:07 AM (GMT -7)   
i am dealing with this problem now. became anemic in may. had to get a transfusion in july (2 units). was doing well than i tanked again and i had to get another 2 units in september. no one knows what is up. my b-12 is low and my iron is super low, but that is expected with anemia. i know i aint bleeding cos i've seen it and have had symptoms so i know it aint directly related to any flare. i think it is the 6-mp i am on which i've been on since 1995. so i am stopping that and seeing what happens as it can cause bone marrow suppression. i hope it is this med cos if not then i dont know what to do. the docs have no idea - i was the one who suggested it could be the med from my own research.

i was trying the all natural route for the first few months - natural iron supplements (floradix) and dessicated buffalo liver, rare red meat 3x/wk, liver 1/wk, more spinach...things like that. i started taking a b-12 supplement too and those levels are improving. but overall this didnt seem to do much as my iron is still super low. now i started taking iron supplements (app 175 mg elemental daily). we'll see how that works. it could take a few months. my hematologist just wants to monitor my blood and not do anything. doesnt want to give me iron infusions - says use the pills first. i get the impression from him too that it is no big deal to get another transfusion. i dont want to get transfusions every other month or so. that is no way to live.

it took me a week or so before i started to feel better after the transfusions, which i thought was odd cos i just got a bunch of new blood so you'd think i'd be feeling better right away, which is also what the nurses said. oh well....
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
been on basically every med available, currently on colozal & 6-mp
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon


BitBit
Regular Member


Date Joined Oct 2007
Total Posts : 44
   Posted 10/24/2007 10:54 AM (GMT -7)   

I had a transfusion this summer. I was scared that they would use the wrong type or something, but they are EXTREMELY careful about checking all information.  I even checked it myself as well.  The worst part is just laying there for 3-4 hours, and if they do it late at night (like mine) then you can't really sleep, b/c they check your blood pressure every hour.  Afterwards, they take a little blood for a CBC.  It helped me.

They are having a blood drive where I work today, so that is always good to see..others helping those who need it.

 

 


mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 10/24/2007 1:51 PM (GMT -7)   
CrazyHarry,
You said that it took you a week or so after the transfusion to start feeling better, which I think is odd too considering you just got some healthy, new blood pumped into ya...haha. How long did the transfusion take and was it a complicated process?
Marci
38 years old, dx with Crohn's disease March 2006, currently on Humira, Entocort and hydrocodone (for pain), and Effexor


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 10/24/2007 2:12 PM (GMT -7)   
I have not had on but my mother has experience with them. She has had 2 blood transfusions in the hospital because her hemoglobin was at a 4 if you can believe that. The doctors don't know how she was alive. She has had about 4-5 iron transfusions and those only last her about 2 months as opposed to the year that they are supposed to last. The transfusion was given to her along with the iron one and she says that she had never felt better. It does take a week or so for her to feel the full effects. Good Luck!
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 10/24/2007 4:50 PM (GMT -7)   
marci - transfusion took like 3-4 hours for 2 units of blood. bring a book, your ipod, or a portable dvd player/lap top and watch a movie or two. it is pretty boring laying on a bed for a few hours, but at least in my experience it is shorter in/out time compared to a remicade infusion.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
been on basically every med available, currently on colozal & 6-mp
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon


Ladybugs
Regular Member


Date Joined Jan 2006
Total Posts : 158
   Posted 10/24/2007 4:53 PM (GMT -7)   
I haven't had to have a transfusion, but today I had my second iv infusion of iron. Maybe that would be a possibility instead of an transfusion? I have to go once a week for 8 weeks for iv iron. My GI said after a few infusions I should be able to tell a difference. I too was getting dizzy and breathless because of the anemia. Good luck to you.

vauvert
New Member


Date Joined Oct 2007
Total Posts : 2
   Posted 10/24/2007 7:21 PM (GMT -7)   
Hi,

I was so anemic I kept fainting before surgery in Jan 07 (diagnosed in April 06). I fought the idea of transfusion and finally after surgery my doctor came in and said I'm reaching a really dangerous point. finally agreed to it and made a big difference - I actually got out of bed that day. Still anemic to this day but the transfusion really helped... BTW this was at Mt Sinai in Toronto.

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 10/24/2007 7:24 PM (GMT -7)   
Is an iron infusion a possibility instead? My doc went for the iron infusion first and if that doesn't work, then a blood transfusion. I saw great results within weeks.
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