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megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 10/24/2007 6:28 PM (GMT -7)   
I am just wondering ...again.... ya I know I always have questions ;-) anyway what happens if I decide not to take any treatment?
 
does this mean that complication can occur..like fistula , obstruction etc.
 
 
i've only tried entocort and imuran ... and now it's either abatacept or remicade....at the time of colonosopy it was mild inflammation ..... my crp is still at 24...
 
so .... just....wondering.... :-)
 
 
thanks
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg 6mg 3    . starting imuran 250 mg had a allergic reaction  can no longer take it .  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidone and lemotrogine.
 
 


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 10/24/2007 7:34 PM (GMT -7)   
If you have mild Crohn's, you might be able to skirt by for years without other "events" if you decide to forego treatment. Then again, without trreatment you might develop additional intestinal problems or extraintestinal manifestations of the disease like arthritis or kideny stones or uveitis. No one can predict how this disease is going to react.

If you are concerned about what your doctor is prescribing, what about getting a second opinion?
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/24/2007 9:45 PM (GMT -7)   
Skipping treatments does not necessarily mean you'll get sicker or develop fistulas/abcesses and such...Dr. Kevin Rioux who is a researcher in Canada for crohns and colitis has already discovered that part of the genes involved with IBD are pre-determined for ones severity and behaviour of the disease (reason why it's such an individulaistic disease)...besides which, many like me are either allergic or non-responsive to traditional oral RX and I'm doing okay with the natural route...skipping traditional treatment might be one thing but finding natural anti-inflammatories is also another, although for yrs I went with taking nothing then for me things got quite out of control so I went the natural route with some success thank goodness.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


jodyisme
Regular Member


Date Joined Dec 2006
Total Posts : 70
   Posted 10/24/2007 9:48 PM (GMT -7)   
altho i dont have crohns, my husband does and i feel i live with it also. so i wanted to add my view and experience to your question.
 
it seems to be completely individual. i have asked this question before to drs and on here. my husband wont take his meds correctly, eat right, or quit drinking. what will it do to him?
 
no one knows. he has taken pred, asacol, pentasa, entocort, cipro, nexium, and had a colonoscopy and a endoscope. he has moderate crohns in his large intestine and stomach (inflammation, tons of ulcers) and occasionally joint issues (swelling, redness and fever). no one ever did a small bowel, so we dont know.
 
periodically, he bleeds and has D most of the time. some days many times, some days not much. heartburn all the time, i think, i suspect.
 
what is he doing to himself with his actions? no one knows. drs wont mess with him or do any more tests until he wants to comply and try to help himself. so we watch, and wait and see. they say, "see ya in the ER sometime!"
 
he takes meds sporadically, usually when the D and bleeding bother him enough to take them again. this might temp ease his symptoms but it is doing nothing to heal him properly.
 
his remicade, which the dr was going to until he realized my husband wouldnt comply, would have cost us 2000$ a month. we only make 1900$. lol. why spend it unless he is gonna try to help himself?
 
its a wait and see thing. it would be your choice, i think. toss of the dice. i wish you the best in what you decide:)

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/24/2007 10:00 PM (GMT -7)   
Hi Mega max for me I did get the complications but I am not sure how long I had the CD. Why are you asking are you concerned because of your reaction to the Imuran? Not all drugs will do that. I know I am in a not so good way having to start over with pred. and I don't know yet what else. I was upset about not getting my Rem. would of got my Infusion today.I guess that is how it goes sometimes. Keep in touch . lol gail

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/25/2007 6:27 AM (GMT -7)   
I once enjoyed a 20 year remission drug free. Would I do it again, no way. While I was enjoying myself, my Crohns was in there slowly ticking away. My remission ended abruptly with a emergency resection. I am semi in remission now, but I still take my Asacol. It helps to keep the inflammation down, its a mild medicine and causes me no side effects. So in my opinion at least preventative medicine is required or to treat it as PB4 is since she is allergic. You need to keep the inflammation down. JMHO!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 10/25/2007 12:15 PM (GMT -7)   
thank you so much for your post

what I am scarde about is what if I develop a allergic reaction or antibody or something else....then what??? so I will be a candidate for the abatacept ...I am really really scarde of an allergy reaction....

thanks
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg 6mg 3mg    . starting imuran 250 mg had a allergic reaction  can no longer take it .  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidone and lemotrogine.
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/25/2007 5:58 PM (GMT -7)   
Hi Have you discussed your fears with your GI? We all get a little scarred at times and I can understand your worries. Maybe your Dr. will start you on low doses. Just keep yourself monitored on it if you get new meds, Sometimes it is a good thing to get someone to check up on you when you go on new meds till you see how they are working. A little help can have it's benefits. Best Wishes lol gail

megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 10/26/2007 7:57 AM (GMT -7)   
thank you gail...I am going to talk to my GI....this morning I am in acrutiating pain and exhausted so I want something to be done...it's when I am not in pain that I think to myself that it's not that bad...for now I am going to agree to the new drug ( Abatacept ) will see what happens just a bit anxious but if I talk to my GI maybe I feel better
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg 6mg 3mg    . starting imuran 250 mg had a allergic reaction  can no longer take it .  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidone and lemotrogine.
 
 


mojowo4
Regular Member


Date Joined Jul 2007
Total Posts : 137
   Posted 10/26/2007 8:38 AM (GMT -7)   
I tried to go drug free once, only lasted a couple months and was worse off than before. You have to do what is right for you and your situation. With our disease, our lives are in our own hands because no one else can do it for us. Go wit your gut-pun intended.

Dx CD 2003 but probably had it 10 years prior

Dx Primary Sclerossing Cholangitis 2006

GB out '95, Appendix out '96, Kidney stent '02/stone removal '02, Resection '04, fistulectomy '06 2x, tubal '05

Currently on 100mg 6mp-50 mg,  and Remicade every 8 weeks, Ambien, predsnisone, humira 

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