How do you know when it's time to go to the hospital?

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Clcaj
Regular Member


Date Joined Oct 2007
Total Posts : 82
   Posted 10/25/2007 6:24 AM (GMT -7)   
I've had mild to moderate Crohn's for 34 years.  Currently in the middle of a flare-up.  I've never been to the hospital.  I'm on Entocort, Colozal, Nexium, Flagyl and monthly B12 shots.  Also have chronic anemia, B12 deficiency, peripheral neuropathy and leg pain.  I've had a sphincterectomy for a fissure that wouldn't heal, a total hysterectomy and an appendectomy, but no Crohn's surgeries.
 
I've been having a whole lot of pain, cramping and diarrhea for the last 8 weeks.   I'm very weak, dizzy and fatigued. My gastro is too booked to see me, but my primary physician is ready to admit me if I want to go.  I don't want to go.  I'm not sure when you're supposed to go.  I'm still able to make it to work most days.  I'm a hourly worker and sole support of my family, so time off is a tough option.
 
What do they do for you in the hospital?   How do you know when it's time to go?
 
Any advice would be appreciated.
 
Thanks!

 


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 10/25/2007 6:29 AM (GMT -7)   
First of all, make sure that you are not dehydrated! It can be very dangerous, and the weak, dizzy, and fatigue are all symptoms of dehydration. If you go to the hospital, they will give you fluids, and it will also MAKE your gi see you since he is "too busy", which you need to talk to him about. Obviously, you need a change in your meds. It is Fri. tomorrow, if you go in today, you will only miss one day of work this week, and you will probably be out for work on Mon. unless they find something serious.....

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/25/2007 6:33 AM (GMT -7)   
I usually go to the hospital when my pain becomes so severe nothing helps. I also go when I know that I am very dehydrated and weak. I feel so bad I can barely move. What they do in the hospital is give you IV to rehydrate you and usually keep you off food for a few days. They also get you onto meds to help treat your pain or other symptoms. Since the Entocort doesn't seem to be working for you, maybe its time to try the Prednisone instead. Yeah it has more side effects, but it tends to help get the inflammation down faster.

If you are worried about taking time off, maybe put your self on a liquid diet for a few days. Get some Ensure or Boost to drink to help put nutrients back into your system. But if things don't improve I think you are going to have to bite the bullet and go to the ER. Good Luck to you.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/25/2007 6:36 AM (GMT -7)   
Hi Clcaj If you are weak, dizzy and fatigued perhaps it is time to take a trip in. In the hospital they do boodwork to make sure your electrlytes are good that your not dehydrated.They can do test like Ct scans and stuff or put you on meds to get you feeling better.Are you eating ?I go when the pain gets bad .I had surgery for a abcess when I first went. Don't let yourself get too worn out it is always good to get things checked out and they will call in the bigger professionals if they have to.Sounds to me like you need to take care of this. Keep in touch. lol gail

Clcaj
Regular Member


Date Joined Oct 2007
Total Posts : 82
   Posted 10/25/2007 6:38 AM (GMT -7)   
Thank you for the reply.  
 
Yesterday, my primary doctor's MA's tried 6 times with 5 different people to get blood from me and they couldn't, so I think I'm dehydrated. They told me to drink lots a water so they can try again today.  I will be searching for a new gastro.   My current one is older and has cut back on his office hours dramatically in the last year, which was unbeknownst to me until I try to get in to see him.  His nurse said 'go to the hospital and then he can see you'....!  Great!
 
What other meds do you think I should be on?  I'm also taking Librium as needed for the cramping and Effexor ER.   I've tried every anti-spasmodic I think they make -  and every form of mesalimine too - never been on Remicade or 6mp or any of those more scarier things.  What could be next?

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/25/2007 6:48 AM (GMT -7)   
I think if they can't do blood work due to dehydration you need to go in for IV's. Drink some pedialyte before hand so they can get that needle in. Good luck!
25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
 
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!


zoso73
Regular Member


Date Joined Jul 2005
Total Posts : 91
   Posted 10/28/2007 2:36 AM (GMT -7)   
I think it is important to go in and get your blood level checked to see what your iron/Hemoglobin/Hematocrit levels are,
They may need to infuse you

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/28/2007 6:14 AM (GMT -7)   
Hi Keep in touch and let us know how things are going. Hoping you are getting some help. lol gail

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 10/28/2007 3:49 PM (GMT -7)   

I hope you are feeling better by now... just wanted to wish you luck. There are times when I wish I had gone to the ER after a few nights of D in a row. I was so weak but like you I was hesistant to go to the ER.

I think you should go to look for a new GI, you seem to need more care right now and your current one is not available enough.

Let us know how you are.


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...


Spifficial
Regular Member


Date Joined Oct 2007
Total Posts : 33
   Posted 10/28/2007 4:35 PM (GMT -7)   
For me, it's time to go when I vomit twice. First time, I'm not too bad, but if I have to do it again, I don't stop, which requires me to go to the hospital. I've only been 3 times for CD, and each time was because I couldn't stop vomiting. As for the pain, I have left over hysrocodone from a D&C that my GI said i could use incase of emergency till I could see him. I take 1/2 a pill so i can sleep at night, and then see him as fast as possible. But really, my visits are because of the throwing up.

Once there, i'm on IVs and nausia meds. no eating for days >.< hate that part.
Diagnosed CD in Dec 06'
Currently on: Humira, 30 MG Prednisone (decreasing since starting Humira), Yasmin (9 week intervals), multivitamin, calcium +D & magnesium


KaNDiCe21
Regular Member


Date Joined Oct 2007
Total Posts : 106
   Posted 10/28/2007 6:29 PM (GMT -7)   
It depends on how bad you are. If you pain is intolerable then you need to go because its silly to have so much pain that you can't deal with. If you are dehydrated they will give you IV fluids and maybe some vitamins to get your strength back up. Please go because this isnt really anything to play around with. Its really not that bad and you may even be able to get some rest. They will give you some good pain killers and keep you comfy your whole stay. Keep us posted and get better!
DX: Crohns in March 2007
Meds: Remicade


Clcaj
Regular Member


Date Joined Oct 2007
Total Posts : 82
   Posted 10/29/2007 8:27 AM (GMT -7)   
Thanks for your replies!   Your postings convinced me to go to the hospital on Thursday and I got an IV for hydration and some very strong pain med's (morphine and phenergan) overnight and was out by mid day Friday.  I was pretty knocked out until Saturday, but now I feel 1000% better.   Now I know NOT to wait for so long the next time.  It was soooooo worth the visit.
 
Has anyone gotten IV therapy at home thru a home health care agency/nurse?   It seemed like a waste to be knocked out in a hospital bed when I could just as easily have been knocked out at home and I'm sure it would be a lot less expensive. 
 
Also, I've scheduled an appt. for a new gastro - won't be until January, but I'm good for now.
 
Thanks again everyone! 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/29/2007 9:25 AM (GMT -7)   
So glad you went. I had a pretty strong inkling that you were going to have to give up and go. So happy to hear you are feeling so much better. Check with your hospital to see if they have any home health nurses like that. I am sure though in those cases they probably would want you to be in a hospital setting.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/29/2007 10:49 AM (GMT -7)   
Hi so glad to hear you went and got some help it does help and much better then worrying and getting worse. lol gail

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 10/29/2007 5:25 PM (GMT -7)   
so gald you are feeling better. I could kick myself because I did not go the last time I was real sick
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...


KaNDiCe21
Regular Member


Date Joined Oct 2007
Total Posts : 106
   Posted 10/30/2007 6:13 PM (GMT -7)   
Happy you went...it wasnt that bad was it? It always helps me when im in a lot of pain to get the shots and rest helps a lot too. I have a hard time sleeping when i feel bad like that.
DX: Crohns in March 2007
Meds: Remicade


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 10/30/2007 9:39 PM (GMT -7)   

Glad to hear you are better! Sometimes some IV hydration and pain meds, and/or  anti nausea meds are all that is needed to help ride out a flare.

For anybody going to ER, make sure you know what is in the IV they hook up to you. When my daughter went to ER the second time, she was given Cipro via IV without her knowledge or consent. She found out it was Cipro only after they had already administered it to her.


Daughter (20) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress and needing more fiber but landed in hospital in 3/06 with cramps, vomiting, stricture. Now in remission with Entocort 3 mg (one pill), SCD multivitamin, yogurt, vit D3 1800IU, 900+ mg calcium, 50 mg B complex vit, 25 mg iron. No longer on SCD diet.   
 


lulu
New Member


Date Joined Sep 2003
Total Posts : 12
   Posted 10/31/2007 1:41 AM (GMT -7)   
from my experience, its not a good idea to let your self get run down. You are probably sicker than you think you are, as your body adapts to what ever is going on. Worst case senario you need some surgery, sooner is better than later re healing and complications. At least check in with your Gastro. Take care, Love Lulu x
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