Hello all! Q. All those drugs

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Miss UK
Regular Member

Date Joined Oct 2007
Total Posts : 128
   Posted 10/25/2007 4:08 PM (GMT -6)   
Hello everyone I'm new here.
I had been in remission for 6 years and taken nothing drug wise in all this time.
I've flared up again and now the hospital is asking for me to decide which drugs I want to go on.  The thing is there are so many I have no idea what is the best I don't want to be on them for life anyway as I was ok for 6 years. 
Any advice on which one to go for I'm just blinded by it all.
Many thanks

Veteran Member

Date Joined Feb 2003
Total Posts : 1811
   Posted 10/25/2007 4:21 PM (GMT -6)   
Have the doctors even told you what your options are? Which drugs are they suggesting you need?

Miss UK
Regular Member

Date Joined Oct 2007
Total Posts : 128
   Posted 10/25/2007 4:30 PM (GMT -6)   
They mentioned a lot of names like Pentassa, Asacol and ones I can't remember they are sending a leaflet in the post but I wondered which ones are the least dangerous or the most popular to be on if there is such a thing I'm on Budesonide at the moment.


Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 10/25/2007 7:43 PM (GMT -6)   
Hi You could read threw the forums to see what others take. I don't know what drugs to take for myself am on the pred. that everyone hates to love . I am sure your Dr. will help you decide. Are you in the hospital now ? lol gail

Miss UK
Regular Member

Date Joined Oct 2007
Total Posts : 128
   Posted 10/26/2007 4:50 PM (GMT -6)   
No I'm not in the hospital....yet (arghh) but have to visit regular so they can confuse and upset me some more.

I've tried looking at what others here are taking I'm just amazed at how many different ones there are I think it would take years to research each drug to try andd get a better understanding of different possible damages etc. As if having the illness isn't hard enough. Lets hope they come up with a cure for us all soon!

potty pooper
Regular Member

Date Joined Dec 2006
Total Posts : 375
   Posted 10/26/2007 5:51 PM (GMT -6)   
Ditto for your last statement!!!

You need to have your dr help you decide what meds are best for you. Chrohn's is a complicated disease and everyone has success with different meds. Much depends on the location of your inflammation and how your body reacts to the meds. Usually it's trial and error to find the right combination for your particular needs.

Wishing you well.

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 10/26/2007 7:53 PM (GMT -6)   
Here is my 2 cents for what its worth. Pentasa and Asacol are basic maintenence meds. If you are in a big flare you will need something more. Pentasa is released in one part of the intestine, Asacol in another. If one doesn't work, your doctor can try you on the other, but you should start w/ which ever one is specific to the area with the worst disease. If you have to do a steroid, entocort has a lot less side effects, but again is only effective for disease in certain areas. Prednisone is a typical treatment for a flare but has tons of side effects. The next line of treatment would be Imuran or 6mp. I have never been on anything stronger than a steroid. Finally there are the biologics such as Remicade and Humira. Remicade is infused through an IV while Humira may be injected at home. Typically you would use these drugs if your disease was severe or if you were treating fistulas. As you were already in such a long remission you may get away with doing a maintenence drug and a short use of a steroid and then staying on the maintence drug. You can also use anti-spasmodics to deal w/ pain and D. Dont forget to try to adjust your diet. I find liquid diets very beneficial, along w/ soft foods, and then mild foods. We all have different foods we need to avoid and finding yours can significantly help. I only do the liquid diet for a couple days till Im feeling better but I find that it has helped me avoid steroids a few times. Hugs!
25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!

Forum Moderator

Date Joined Feb 2003
Total Posts : 13370
   Posted 10/26/2007 8:09 PM (GMT -6)   
I forgot to tell you my gi along with many others on the Board all believe in maintenance meds once you have pretty much got over the flare. Susie

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