I guess this should be good bye

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yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/26/2007 8:00 AM (GMT -7)   
I went to my GI yesterday after a month of Humira. that was my last try at going back to my original crohns diagnosis. the humira did nothing. I have had pain in the exact same place for a year and a half and nothing has helped. I have had two surgeries to look for adhesions and he cut some, but the pain is still there and worsening. I fell apart telling my GI that it is crazy to not know what is wrong. he said from my colonscopy he knows what is wrong, adhesions, and that they just aren't being treated well. he wants me to have surgery again, with the assumption that the adhesions are deeper, so I am sure the surgery would be a tough one.
I have loved being here and learning and laughing with you all. I can't disappear, so I will keep you posted if I get the surgery.
love, yogaprof
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/26/2007 8:08 AM (GMT -7)   
Don't say goodbye!!! If you are experiencing the same pain and symptoms as the rest of us your wisdom will be so helpful. We don't care that you are "unofficial." You have been through so much if not more than us. Please stick around.
25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
 
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/26/2007 8:49 AM (GMT -7)   
Hi yp You cain't leave us now we care about you and your health. You are a comfort to us and a friend. You just need to relax awhile about things and we are definitely here for you as you have been for us.We are here if you have to have more surgery or whenever. lots of love gail

dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 10/26/2007 1:49 PM (GMT -7)   
you poor thing! how unbelievabley frustrated! please keep us posted if you have the surgery or what you decide to do :/

take lots of care and don't go away!
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
currently taking 30mg prednisone, 4000mg pentasa daily & vicodin for pain


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 10/26/2007 2:42 PM (GMT -7)   
I don't want to say goodbye, unless its because you're better. So please keep us informed about what happens.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 10/26/2007 4:57 PM (GMT -7)   
Yogaprof check this link:

http://www.clarkgerhart.com/ard.html

:)


-IBS-A,C with meteorism(trapped gas) and pubic burning-


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/26/2007 5:13 PM (GMT -7)   
Is a month long enough for humira to work?
25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
 
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13456
   Posted 10/26/2007 6:26 PM (GMT -7)   
Aw Yoga, you can't just up and dump us girl. You have been there for everyone of us, now its our turn. Its like one of the others said, we will leave you as "Unofficial" and there is alot of that going on with peeps. You know scar tissue is really one of those gray areas in my opinion. Some peeps tend to form it much quicker than others and also much more severe. They can only take so much out or else you will be dealing with a whole new set of problems...Susie


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 10/26/2007 7:03 PM (GMT -7)   
I am so sorry that you are having such a hard time and I feel for you I do.Please continue to post here you can' leave because every one on this site want let you.
Curley
.........
 


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 10/26/2007 7:30 PM (GMT -7)   
Oh no, you can't leave! I am so sorry for what you are going through. Be sure to periodically update us.

Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 10/27/2007 1:09 AM (GMT -7)   
Yogaprof,You cannot leave us.....you are part of this "family " whether you like it or not. Everything you have been through, your pain , your worry, Your caring for the rest of us makes you an essential part of this team. Please stay with us. I check this forum everyday....and when I don't see a familiar name I worry. Now worry is not good for someone with whatever chronic condition....you Must let us know how you are doing and keep "talking " with us, it makes all the difference in the world. If all crohnies in remission were to suddenly stop coming to Healing Well....who would give us hope that things can get better.
Your body is not well.....that is all it takes to be part of this forum....and even when it is well....you have an unofficial duty to all of us who have come to care for you and opened our hearts to you to stay at our sides, as we will continue to stay by yours.
Love and prayers.....through your surgery
Mary
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


kronstoolong
Regular Member


Date Joined Mar 2006
Total Posts : 366
   Posted 10/27/2007 1:19 AM (GMT -7)   
It took me longer than a month for the Humira to kick in. We actually increased my dose to every week instead of every other week for a few months. It made ALL THE DIFFERENCE IN THE WORLD. I was about to give up and all of a sudden I started feeling better. Don't throw in the towel, keep fighting.
Dawn
 
31 Years Old
Diagnosed with Crohn's Disease at age 17.
Diagnosed with RA or severe joint inflammation due to CD.
Hypothyroid, GERD.
 
Currently taking Leucovorin, Levoxyl, Humira, Methotrexate, Vitamin D - 50,000 IU per week, Vitamin B12 injections, Lunesta and Vicodin or Percocet as needed.
 
In the past have taken Prednisone, Pentasa, Remicade, Imuran, Plaquenil and I am sure many, many more.


thenay
Regular Member


Date Joined May 2006
Total Posts : 167
   Posted 10/27/2007 1:57 AM (GMT -7)   
It can take months sometimes for humira to work and find the right dosage, don't give up!
I wish the best for you and hope things do get better :)
Keep us posted, we care *hug*


DX with CD May 2006 @ age 22
Tried Pentasa and Entocort, worked for a yr and a bit
Taking Prednisone 35mg, and now on Atenolol 25mg for fast heartbeat (thanks Pred!)
"We're always here for you if you need to talk!"


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 10/27/2007 3:56 AM (GMT -7)   
Hi Yoga, Please don't leave us. Don't give up. We all care for you. I am sending you a big hug.

TBW
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


jellybean1887
Veteran Member


Date Joined May 2005
Total Posts : 1362
   Posted 10/27/2007 5:44 AM (GMT -7)   
Yoga!! You have to keep in touch! I completely understand your frustrations. I also wanted to suggest something for your pain, because I had horrible pain before, and nothing worked to relieve it but this. I learned how to do self hypnosis. I am able now to go into my "brain's control center" and turn down my pain. I know it sounds nuts, but it really works. I also know that it doesn't get at the root cause of the pain, but it at least provides some relief for a little while. Keep us posted on how things are going for you. Take care!
"Of one thing I am certain, the body is not the measure of healing - peace is the measure. ~George Melton~"

Current Meds include:Colazal, Prednisone, Nexium and Remicade


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/27/2007 8:16 AM (GMT -7)   
wow, I am so touched and overwhelmed by all your notes...I do love this place! ok, I am not leaving! I will continue to be the voice for the dianosed and undiagnosed :)
as for the humira, the reason we are giving up is since my first tests 19 months ago, they have never again seen signs of crohns, but the pain has never stopped and it always in the same place. my initial signs of crohns just never manifested again, so it just doesn't seem like the issue. if I would have had any indication that humira did ANYTHING, we would have stuck with it. I hope that make sense.
thanks for the link, Spas, that is very interesting. adhesions are the only thing that seems plausible at this point. I am getting my head around the idea of surgery again...darnit.
I agree, jelly, that the mind can do a lot to help. my yoga teaches me about listening to my body and settling it down and I am always ready to learn more.
my heart is full of joy from all of your kindness. be well you guys! yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/27/2007 8:20 AM (GMT -7)   
one more thing on a funnier note; I really wanted to talk my GI into giving me a colonscopy awake, as I have such a hard time with versed and was curious as to what is going on in there. he leaped up with a huge "no way!" as the last one I had was nearly impossible due to my colon being stuck in there. he says he doesn't want me to have another scope anyway, since he knows what is wrong. I think I shocked the heck out of him with the idea, but I STILL want to do it someday :)
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 10/27/2007 8:53 AM (GMT -7)   
YP,

I'm glad you're "staying" and I hope, hope, hope that the next surgery helps you become pain free!
44 years old, newly diagnosed after an 8-day hospitalization in September 2007 but symptoms for several years before that.
Medications: Pentasa, Prednisone (tapering), Prilosec.
Supplements: probiotics, calcium, vitamin C, vitamin E and a multi-vitamin.
History of hypothyroid (dx 2004, taking Synthroid) and gall bladder surgery (1997).
Single working mom to three wonderful kids, ages 9 to 15.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 10/27/2007 12:42 PM (GMT -7)   
I am glad you are staying too! You have such great insight and can also help the undiagnosed. Plus you have gone through a lot of we have gone through and can really help here.

Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, waiting on a EMG nerve test right now...


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/27/2007 2:01 PM (GMT -7)   
Yp, you don't have to have crohn's to be a friend!! So please don't disappear. LOL
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts

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