What does this mean?

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Mormor Vicky
Veteran Member

Date Joined Mar 2007
Total Posts : 684
   Posted 10/26/2007 10:48 AM (GMT -6)   
• Assay values above reference values were associated with small bowel, fibrostanosing and internal penetrating disease.
Does anyone know what this means?  It is on my Prometheus test for one of the values.  I registered a 73.8 and normal was <21.0.
I'm just wondering what I'm looking at.  So far I haven't had any disease activity in my small bowel as far as I know.  Never had a SBFT or any other test for that besides Scans and a eyeball view during surgery.  All my disease seems to be in my colon, which the diseased part was removed last year. 
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (26) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor

Forum Moderator

Date Joined Nov 2003
Total Posts : 7055
   Posted 10/26/2007 4:12 PM (GMT -6)   
It just means that an association has been seen between elevated values and the problems listed. It does not mean you will get small bowel disease, fibrostenosising or internal penetrating disease. I think you should discuss this with your GI for a better explanation than I can give.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 10/26/2007 6:42 PM (GMT -6)   
Sounds interesting Vicky, but I have no idea what it means. Sorry....

Too many years with CD
Two bowel resections, several obstructions.

Laughter is the brush that sweeps the cobwebs from our hearts

Veteran Member

Date Joined May 2007
Total Posts : 1488
   Posted 10/26/2007 9:26 PM (GMT -6)   
I think Ides is on the mark on this one.
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.

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