Post Edited (storm) : 10/26/2007 1:15:29 PM (GMT-6)
thankyou for your replies.The small bowel check would that have been the colonoscopy?Ulcerations were found on the endoscopy so there must be a reason a 9 year old as them,H.pylori negative etc.Her dietician has asked me to put her on a high calorie diet because of the weight loss,this was said before she had above procedures.Very interesting you mentioned B12 as i am def in B12,ferritin,Folate and i asked for her to be checked and they have all come back ok.Her tummy pains have seem to ease off at the moment is that common in chrones ,this has happened before and then they came back
She gets ulcers in her mouth all the time and they are so painful and her dentist said it could be a warning sign of something lower down.After her colonoscopy the pain she had was the same as her "normal" pain ,same place everything and she was in pain for 10 days! Thankyou for all your suggestions and please if anyone has anything else to add feel free.
No treatment at all was suggested for the ulcerations.Thankyou for the tip on several small meals i will do that.I am going to take her to see family GP next week and see if i can get a bit more information on where we go from here and to see if they can speed along pead and gastro getting together and sorting all this out.I am also waiting for all blood test copies to be sent to me so i can check all levels myself in B12 etc . the weight loss is very worrying she eats very well and does not have the energy to run around so she should be putting weight on. i am wandering if this could be that she is not absorbing things correctly has anyone got any ideas on this please.
My daughter has had a really bad day today,terrible pains in her tummy,vomiting.We telephoned the emergency doctor and he said he thinks the reason they won't say it is definately chrones is because all her blood test vitamin levels are within the ref range.To see her crying in so much pain is agony for us.
Post Edited (SoCalDad) : 10/28/2007 12:55:56 PM (GMT-6)
I'm sorry to hear your daughter is suffering so much. She needs to see a pediatric gastroenterologist. Her regular pediatrician should be able to recommend one. If she has a history of anemia and intestinal ulcerations and mouth ulcers and weight loss, there's a bunch of red flags.
Not sure if you're super-familiar with the way the digestive system works but it's helpful to understand it as much as you can. It can be kind of confusing.
The pathway goes like this: mouth, esophagus, stomach, small intestine (consists of the duodenum, jejunum, and ileum), large intestine (also called the colon - consists of the cecum, ascending, transverse, descending, and sigmoid colon), rectum.
The small intestine is super long and loops and bends around all over the place. This is where most of your digestion and absorption of nutrients takes place. When you get a "small bowel study" (also called a "small-bowel follow through" or "barium swallow"), they are taking several x-rays of the small intestine after the patient drinks a barium milkshake, which helps the x-ray pick up on all the loops and bends in the small intestine; they can look for narrowing in the intestine this way, which might indicate inflammation in there.
Another way to image the small intestine is with an EGD or upper scope; the only disadvantage here is that the scope can only go as far as the duodenum, so it's not a very reliable study unless you're particularly interested in the esophagus, stomach, or upper duodenum.
A colonoscope is a flexible tube inserted up the rectum into the colon; like the EGD, there's a camera attached to the end, which allows the doc to see the interior of the colon and check for ulcerations or any other signs of inflammation.
I hope this helps you navigate the terminology a little better...
Anyway, like I said, it's definitely time for her to see a pediatric GI. There are SO many things that can go wrong in there and it might take more testing to figure it out. Nothing is ever absolute in the GI system (life would be much easier if docs could tell us definite answers, wouldn't it). Best of luck and keep us updated.
thankyou for all your replies.
Littleone is much better today.The pain stopped so suddenly she was so glad when it did,so was i!This is the first time she was sick, but i think it was because she was in so much pain,as soon as the pain stopped so did the sickness.
No anaemia has showed up in any of her blood tests,so thats a good sign,but also think this is why they are stumped on why she is like this.Ulcerations were found in the stomach or duodeum.We are unable to put her on any diet at the moment as dietician wants her on a high calorie diet because of the weight loss.They did not get a good look on the colonoscopy as the meds they had given her to clear her system did not work at all.So now just got to wait until pead gets back to us after he speaks to gastro.
thanks again for all the replies