frustrated & heartbroken

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dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 10/27/2007 3:18 AM (GMT -7)   
sometimes this is the only place i can go for support. here i am up again after sleeping 4 hours. my pcp had me switch from trazodone to restoril for sleep. i was really hopeful this stuff would work. maybe i just have to give it time as i switch meds. anyone ever try this? the generic is called temazepam. it could also be because my boyfriend and i broke up. too much stress from my sickness. i know it must be frustrating for him, before i got sick we had so much fun together and well, since i deteriorated, so has our relationship. i commend anyone who is able to stick by their significant others with this illness. i know i haven't been the girlfriend i could be. what can you do? i woke up in pain today, already feel nauseous and don't feel like taking vicodin cause that is going to make me feel more nauseous on an empty stomach.

BAH. just ....bah. thanks for listening to my banter.
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
currently taking 30mg prednisone, 4000mg pentasa daily & vicodin for pain


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 10/27/2007 3:52 AM (GMT -7)   
Hi Stephanie,
Sorry about your boyfriend that he could not handle your crohn's. I had almost the same situastion I
was married when I was diagnosed with crohn's my ex-wife could not handle my crohn's.
When you take vicodine don't take on an empty stomach thats why you are getting nauseous. You need
to eat something before taking vicodin.

TBW
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 10/27/2007 5:23 AM (GMT -7)   
HI;

I recently went through a stretch like you are experiencing now. I was having an unusual amount of stress at the time. I tried Rozerem which actually made the problem worse. Even ambien only gave me 5 hours of coma like sleep. All of these sleep meds say that if the problem doesn't resolve in a certain amount of time (I took ambien for 17 days straight) other issues need to be addressed. I am assuming they mean stress/anxiety etc (or another medical condition) I am now on 12.5 mg zoloft and it seems to be helping a little. I fall asleep a little faster and am able to fall back asleep when I wake up numerous times in the night. I also don't wake up at 4 am anymore unable to go back to sleep. So it is helping. I have to take the small dose because I don't tolerate drugs that raise serotonin levels well.

You have to be careful with the benzodiazipines (which tamazepam is) They are intended for short term use only. They will cause what is known as rebound insomnia when discontinued. They also change the sleep cycles you go through.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 10/27/2007 5:58 AM (GMT -7)   
tbw - thanks for replying. i hope this isn't going to be an ongoing problem with relationships. i guess i should be thankful i can really focus on myself right now. it's always better to go through these things with someone by your side but i will manage. i usually do eat before i take my pain med, cause it seems i get pain most the time after food. just didn't feel like eating at 5:30 :) thank you again :)

rootsmith - that is encouraging news to me. my pcp wants me to come in and discuss a daily anti-anxiety for my sleep problems. i didn't like the idea of having to be on a daily anti-anxiety (i was on ativan for when i was feeling overwhelmed) and was wondering how it would change me as a person. but if it will help with sleep in the long run i am definitely more interested and open to it. i was also on ambiem for about 6 weeks before it started giving me headaches and a hangover feeling everyday, that's when i switched to trazodone. one quesiton, have you noticed any negative effects from the zoloft? thank you so much!
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
currently taking 30mg prednisone, 4000mg pentasa daily & vicodin for pain


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/27/2007 6:47 AM (GMT -7)   
Hi Steph hope the Dr. can help by talking to you about things but you are right you can manage by yourself. Have you family support or friend support that you can talk too. I was upset last week about meds and stuff but I feel much better about things now. You need to take care of yourself now and get feeling better. We are here for you any time you need to talk. Your not alone .The pred. makes it a little hard on the mind anyway. Did you have sleeping problems before the pred.? lol gail

auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1199
   Posted 10/27/2007 7:11 AM (GMT -7)   
Hi Steph, it does seem like relationships suffer alot when there's an illness. My hubby and myself have a chronic illness and our relationship has many trials sometimes i don't think we'll survive.It would be ashame though as we've been married 22 years and no matter how much love there is the stress out weighs it at times. I'm sorry to hear your having such a hard time right now you do what you have to do to feel better.


Kay

dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 10/27/2007 7:34 AM (GMT -7)   
hi gail - thank you for the kinds words. yes, i have had sleep problems for about 3 or 4 years now. i am starting to think the pred is making me very up and down. one moment i feel like, ok, things will get better then swhooop, right back down to feeling very sad. too much going on but thank goodness for you guys!

hi kay - thanks for the support. i am going to try and re-focus on getting better and try and to shut off the pity. i can't help but feel abandoned. i will just keep telling myself it will get better. it has to! thanks you again.
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
currently taking 30mg prednisone, 4000mg pentasa daily & vicodin for pain


huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 10/27/2007 9:09 AM (GMT -7)   
Dustspeck,

Sorry about your boyfriend...I know this sounds completely like a cliche, but it's better to know now that someone isn't going to be able to be there for you when times are tough. I'm glad you're thinking that now you can focus on yourself. Remember, you just got diagnosed -- this is all very new ... it's not "forever." At some point, you will have a better handle on the meds, sleep, symptoms and then you might be ready for a relationship again.

I wanted to let you know that I have trouble with Ambien and find that Ativan works much better for me when I need it for sleep. It's not appropriate for using for sleep every day, but when you get to the point where you only need occasional help, you might find the anti-anxiety drugs better than the sleep drugs. I do.

Hang in there!
44 years old, newly diagnosed after an 8-day hospitalization in September 2007 but symptoms for several years before that.
Medications: Pentasa, Prednisone (tapering), Prilosec.
Supplements: probiotics, calcium, vitamin C, vitamin E and a multi-vitamin.
History of hypothyroid (dx 2004, taking Synthroid) and gall bladder surgery (1997).
Single working mom to three wonderful kids, ages 9 to 15.


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 10/27/2007 10:32 AM (GMT -7)   
Hi Stephanie-

No, I haven't noticed any side effects from zoloft at all. 12.5mg is a small dose. Other than the slight improvement in sleep I also don't see it doing much either but it may be too soon. I have to admit my feet feel better- I have some kind of tendonitis/inflammation in my feet that is causing a lot of leg pain. I think its because these drugs like zoloft affect the way you think about things- stopping obsessive thoughts etc- so perhaps it is forcing me to think less about my feet and so I don't notice the discomfort as much. I do tend to obsess about things. I have read that in many cases "depression" presents as anxiety

The reason I am taking the small dose is because in the past I found this drug revved me up. Not manic, but very energized. It was kind of scary. I don't seem to be getting that now. (I took 12.5mg in the past as well)
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 10/27/2007 12:29 PM (GMT -7)   
glowmoment - thanks so much for the encouragment. my parents said the same thing, if he can't handle this now what kind of future would i have with him? i will move on and get better, just a bit overwhelmed. thanks again :)

rootsmith - very interesting. i tend to over obsess myself. i lay awake at night and i replay so much in mind, stuff from years ago, i relive awful times in my life in full detail, i worry about everything going on in every day life. i am really interested in going in to talk with my gi now. i was really feeling he was trying to shove pills down my throat cause it seems that's what a lot of doctors do. thank you so much for talking with me about this.
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
currently taking 30mg prednisone, 4000mg pentasa daily & vicodin for pain


thenay
Regular Member


Date Joined May 2006
Total Posts : 167
   Posted 10/27/2007 2:25 PM (GMT -7)   
I've been given restoril (generic is called temazepam, thats what it says on bottle for me) 30mg at bedtime.
It does help, but I try not to take it more than 3 days in a row or I'll get hooked.

Sorry to hear your bf couldn't handle seeing you not well, and I know how you feel.
I'm concerned about my relationship all the time, and we use to have fun too and then recently it's been sliding cos of this IBD.
I hope he comes around and understands it's NOT your fault for having this and your trying your best to feel better, it all takes time.

I don't know how long you've been together but if its not too long to hell with him! If he truly loves you, he would be there for you regardless.
There's tough times, the good times, and the ok times. I wish you the best, and hope you feel better :)
DX with CD May 2006 @ age 22
Tried Pentasa and Entocort, worked for a yr and a bit
Taking Prednisone 35mg, and now on Atenolol 25mg for fast heartbeat (thanks Pred!)
"We're always here for you if you need to talk!"


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 10/27/2007 2:55 PM (GMT -7)   
I know that it is hard on you right now and I am sorry that your boyfriend couldn't deal with it but you know it's better to know now instead of latter.I can so relate because my ex-husband asked for a divorce.This is what he told me,I CAN'T DEAL WITH A SICk WIFE ANY MORE I WANT OUT.So please know that you are not alone and we will be here to help you and give you a shoulder to lean on.
Curley
.........
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/27/2007 2:56 PM (GMT -7)   
So sorry Stephanie, it's so hard to cope with this dd, but to nurse a broken heart as well is tough. Time, they say, is a great healer.
Hang in there, we'll be thinking of you.
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


KaNDiCe21
Regular Member


Date Joined Oct 2007
Total Posts : 106
   Posted 10/27/2007 3:41 PM (GMT -7)   
Poor Steph. I know how you feel me and my fiance don't get along near as good as we used to because of my CD. It's hard feeling so bad all the time and when you lose your support it makes it much harder. I know how you feel because me and mine fight almost everyday, but someday things will lighten up. Just stay positive for me and one day he will realized what he has missed out on. Just because you are sick don't make you any less of a person then you were before. Keep your head up girl and someday soon your prince charming will sweep you off your feet!
DX: Crohns in March 2007
Meds: Remicade


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 10/28/2007 2:00 PM (GMT -7)   
the nay - i am on 15mg right now. last night i slept a whopping 3 hours :/ we have been together for about a year and half. i guess its better to know now then find out down the road he can't handle my disease. thanks for the encouraging words!

curley - that is just so sad :( i am so sorry. i guess i shouldn't complain after a year and 1/2 relationship. thanks for the reply :)

dunny - thank you so much! i am feeling a bit better today. it's nice to come on here and get such wonderful support. it means a lot to me!

kandice - i feel my bf just got so sick of hearing about it. i tried not to complain too much around him. sometimes when you are in so much pain though it's really hard not to! thanks for the inspiration and you take care yourself
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
currently taking 30mg prednisone, 4000mg pentasa daily & vicodin for pain


KaNDiCe21
Regular Member


Date Joined Oct 2007
Total Posts : 106
   Posted 10/31/2007 1:39 AM (GMT 0)   
Yea I know exactly what you mean. I have just quit complaining all together!
DX: Crohns in March 2007
Meds: Remicade


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 10/31/2007 11:23 AM (GMT -7)   
Hi .stephanie.

Sorry to hear about your b-friend :0( and the sleep trouble.

i am single this year after a breakup last October, it was tough at first, but now I am much happier... as the song goes..."owner of a lonely heart, much better than a, owner of a broken heart"

Admittedly, I don't know you very well, but you seem to be a very interesting and dynamic girl, so I am sure you will find a great guy someday. Too bad you live so far from Cali! otherwise we could hang out :0)

keep your head up and have try to have a fun Halloween!
"All we need is love....love is all we need"


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 10/31/2007 6:09 PM (GMT -7)   
nat - thanks for the reply :) mass isn't that far from cali! we can hang! lol

i suppose i don't have the extra added stress from a relationship, and it's not like i don't have a good support system of friends and family around. but you know. still that whole getting lonely thing. le sigh.

all will be well. i am sure we'll talk soon :)
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
currently taking 20mg prednisone, 4000mg pentasa daily & vicodin for pain

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