feeling very tired

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Crohn's newcomer
New Member


Date Joined Oct 2007
Total Posts : 9
   Posted 10/27/2007 10:19 AM (GMT -7)   
Fourth day since dx.I'm am feeling like crap.I can't keep my eyes open.I feel like i am behind a cloud.Very large amounts of anxiety.Shouldn't the prednisone work.It has done good for my arthritis.My stomache just burns.It doesn't hurt just feels queezzy.I'm wondering if I am getting myself worked up because I don't know what to expect.Maybe I need a support group.Can someone tell me how many people die from this disease again.I thought most people live pretty normal lives with this?

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 10/27/2007 1:06 PM (GMT -7)   

I had tremendous nausea and exaustion in the begining (and still do sometimes) give your body some time to rest.

As far as life exptenancy, I don't focus on that and keep my thoughts on being as healthy as I can. A support group would probably help, try the ccfa website they have lists of local chapters and support groups.

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, waiting on a EMG nerve test right now...


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/27/2007 1:25 PM (GMT -7)   
Hi The pred. does work are you noticing any changes and when I was on it I slept alot at first. Stress and not feeling good can certainly make us sleep.Most people don't get enough sleep on the pred. I had lots of night sweats at first. I am going to be joining a support group in my area for IBD people. When you calm down maybe you"ll feel like checking one out. I am glad your ar. is better. There is no miracles with meds but it can take time hang in there we are with you. lol gail

KaNDiCe21
Regular Member


Date Joined Oct 2007
Total Posts : 106
   Posted 10/27/2007 3:47 PM (GMT -7)   
Its a hard journey, but as long as you stay strong you will be alright. Stress always flares mine up and I make it worse on myself than it really has to be. It's horrible being sick, but it helps to know that you aren't the only one. Many people with it live normal lives and it will brighten up soon!
DX: Crohns in March 2007
Meds: Remicade


thenay
Regular Member


Date Joined May 2006
Total Posts : 167
   Posted 10/27/2007 6:43 PM (GMT -7)   
Pred can give you anxiety, and other side effects. If it last more than a week see your doc. You might need more or less pred for your system.
Hang in there, you'll be feeling better soon! :)
Male DX with CD May 2006 @ age 22
Tried Pentasa and Entocort, worked for a yr and a bit
Taking Prednisone 35mg, and now on Atenolol 25mg for fast heartbeat (thanks Pred!) and Restoril 30mg for the sleepless nights I have sometimes.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/28/2007 8:05 AM (GMT -7)   
I think you're going through the normal reactions to one been given the diagnosis of a chronic disease, and often the word incurable
conjurs up death & dying. With time and support from places like this, you learn that you will have a full and long life ahead of you.
There will be times, like now when the disease grabs a hold, but with the right meds, hopefully these times will be short.
I'm sure all your anxiety is making you feel much worse, tell your doctor how you feel, they maybe able to help you get through
this period. Keep in touch, we'll all try to help.
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


KaNDiCe21
Regular Member


Date Joined Oct 2007
Total Posts : 106
   Posted 10/28/2007 6:46 PM (GMT -7)   
It just takes the right meds to get it under control. I have had it since march and since havent seen remission yet. I have tried almost every kind there is, but other ppl are different. Yes, you will be able to live a normal life, just don't give up faith. I have found that stress makes my CD worse so try not to get to worked up. I have been dealing with severe depression since my DX and everything that comes along with it. But I have been doing better lately because I have changed my state of mind. You have to think that you will get better before you will, so try something new. Do anything you enjoy to keep your mind off of the pain. I know its hard right now, but it will get better. I promise!
DX: Crohns in March 2007
Meds: Remicade


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 10/29/2007 12:42 AM (GMT -7)   
I have to agree with everyone here. When I was diagnosed I too was nauseous and very fatigued.

rest--Rest is VERY impt. Even when you start to feel better, make sure to not overdo it cause it'll make a BIG difference in the way you heal. I was in denial so as soon as I started to somewhat feel back to normal, I went full force normal mode and crashed and burned after 4 weeks and made myself worse. I am now back in to trying to do the resting thing again and am trying to find a good balance.

I too am not in remission yet and looking for the right meds but I think the one I just got put on is starting to work as long as I rest. <crossing fingers> Looking forward to remissionville. =0)

Tips I think might help because they worked for me.....

food--listen to your body. When I was first diagnosed, I was on a liquid diet and slowly reintroduced back into my system. As I ate more types of food, I made sure to document so if there was a food that didn't agree with me, so I could avoid it until I felt a bit better and then retry to see if it was just that one day or if it really didn't agree with me. Some others on here are on specialized diets that they say totally work for them like "makers diet." Some do supplements--vitamins--probiotics etc. I personally take them because I learned about it on here--if it worked for others, might actually do me some good. Be careful tho... some sites profess to "cure" diseases such as ours so do your research. If that was the case, we wouldn't be on here.

support--What I can say is that you found a very great forum with a great set of people in it. There are some that are like us that are newbies and others that have had crohn's for a long time that can share their wisdom with us. A lot of us with autoimmune issues aren't blessed to be with people that can empathize with our situations since they have NO idea what we are going through--plus some of us don't look "sick" which is irritating because our feelings/sickness are invalidated by people. So use this site. It has saved me from beating people over the head that just don't get it.

education--I would also like to add that once you're feeling more up to it, try to educate yourself as much as you can about this disease and don't freak out when you read the stuff. ALL of us are different so the disease manifests itself in different ways. For example most info I read on the websites and books talk about only having diarrhea. I swing between diarrhea and constipation all the time and when I saw others that had those same symptoms and gave me tips on how to balance it really helped to ease my mind that I wasn't a freak.

Being overwhelmed--I know when I was first doing my research and newly diagnosed I felt like I was given a death sentence and I cried for weeks. You are also learning a lot of information at once, I had to reread articles/books after about a month because everything blended together. As time goes on, I am able to separate what "could" happen to me with what IS happening to me and then it's not as scary.

Emotional stuff--Over time you will go through a variety of emotions: anger, fear, frustration, depression, anxiety, hate, acceptance, etc. and sometimes all of them at once which is very normal. Which brings you back to support. These guys are great for giving you virtual hugs when you don't think anyone is suffering like you. I am still working on those stages myself--just when I think that I've got it, I get all discombobulated again. Like Kandice21 said it helps when you are able to change your state of mind and "you have to think you will get better before you will." Some people get it really quick and are able to change their state of mind, others take a bit longer. I have a coworker who told me I wasn't crazy for being in denial and making myself resick by trying to go back to my old life. I just had to learn the hard way. She said that she was in denial for 2.5 years before she realized the importance of changing her state of mind and even now, she goes through the variety of emotions occasionally.

you are your best advocate!--If you don't feel something is right, get a 2nd opinion. A lot of people that I personally know don't want to rock the boat when they have issues because they are afraid of getting their doctor mad. We employ these doctors. If they don't treat us nice, then find someone that will. I am fortunate to live in a big city so I have these options. Hopefully you do too.

Hang in there.....It does and it will get better!
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II


survivor49
Regular Member


Date Joined Oct 2007
Total Posts : 241
   Posted 10/29/2007 8:59 AM (GMT -7)   
i am in the same boat as you. I was newly diagnosed in august, and have not begun to see remission yet. I am always feeling guilty that never do anything except go to work because i am so tired. the prednisone makes me very labile, and i weep at the drop of a hat. this forum has at least let me see that there are others out there with the same issues. i am going to see an acupuncturist this afternoon- i am trying to cover all the bases here! good luck to you.
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