How long for remicade infusions?

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LittleSisSmurf
Regular Member


Date Joined Apr 2006
Total Posts : 164
   Posted 10/27/2007 5:13 PM (GMT -7)   
I have to go for my first remicade infusion and i was wondering how long it usually takes? I need to know how much money to put in the parking meter. lol   Just kissing. I will use all day parking, but I just wanted to know if I should bring a thick book to read or not? I am having it done at the hospital. I guess my G.I. gets his freinds there to do it for him? thanks for the replies
I am 33yrs. old mother or 2 wonderful kids. I was diagnosed at 23. I have had 2 major flares and am now taking Imuran, pariet, and the occasional Pred. for arthritis.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/27/2007 5:32 PM (GMT -7)   
I'd plan to be there from 9am-3pm, so bringing a book is a good idea. If they give you pre-meds of benedryl and solumedrol, you'll probably sleep for the first hour or so. You'll also want to bring a cooler with lunch and something to drink. I hope the infusion goes well for you and that it is what brings you into remission.

Just a word of caution: If you feel weird at all during the infusion, like you might be having an allergic reaction (rapid heartbeat, flushed face, and/or difficulty breathing), please call the nurse right away to have her stop the infusion. That happened to me a couple of times, and it was scary.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/27/2007 7:22 PM (GMT -7)   
Hi For me it took 2 or 3 hours tops. Best Wishes with your Rem. and hoping you all the best. lol gail

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 10/27/2007 8:36 PM (GMT -7)   
Had mine done at my GI's infusion center. The first one took longer because of first time paperwork, pre-meds, etc. That was four hours. Thereafter, my infusions were 2.5 to 3 hours max. I know that hospitals sometimes have their pharmacy mix the Remicade instead of the infusion nurse. If that is the case, factor in time for the order to get to pharmacy, get completed and sent to where you are.

I always took a book even though each cubicle had a ceiling mounted flat screen TV above the recliner - not much of a daytime TV fan. I've heard that hospital infusion centers often serve lunch if you are there over lunch time. Not so at my GI's place. I always took a brown bag of snacks to munch on.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 10/27/2007 9:16 PM (GMT -7)   
I am never there more than 3 hours. I get mine done ina hopsital infusion center, and every recliner/bed has its own tv. I also bring a book at times, or my laptop and get on the internet. I always bring someone with me, so in the off chance that I do have a reaction or something happens, then they will know what was done to me and so on......

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 10/28/2007 3:30 AM (GMT -7)   
Hi it usally takes 2-3 hour for my infusion. I take a nap during my infusion.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


jellybean1887
Veteran Member


Date Joined May 2005
Total Posts : 1362
   Posted 10/28/2007 5:12 AM (GMT -7)   
I get mine done at a hospital, and it usually takes about five to six hours. I think the most time is taken waiting for the pharmacy. They can't mix the Remicade until you are there and cleared for an infusion. I guess this is because the Remicade is so expensive, they don't want to waste it. I am also a hard stick for IVs, so that ends up taking some time too, because the nurses try twice, then they call the IV team, and I have to wait for them. Anyway, hope your infusion goes well. Take care!
"Of one thing I am certain, the body is not the measure of healing - peace is the measure. ~George Melton~"

Current Meds include:Colazal, Prednisone, Nexium and Remicade


onebloodonelife
Veteran Member


Date Joined Feb 2006
Total Posts : 842
   Posted 10/28/2007 8:55 AM (GMT -7)   
Mine used to take about 3 hours by the time the pharmacy mixed the Remicade, nurses got my IV in (never was an easy stick), and then the infusion. Definitely bring a book, a snack, etc.
Crohn's Disease for a year and counting
Imuran: 150mg
Humira:finally got approval on 9/21, done with loading doses, starting biweekly schedule on 10/10
Dicyclomine and hyoscamine for intestinal cramping and spasms
www.myspace.com/onebloodonelife
http://studentwebs.winona.edu/catraun4902 <--This link will be changing, but for now it works!


turtle21850
New Member


Date Joined Oct 2007
Total Posts : 2
   Posted 10/28/2007 10:32 AM (GMT -7)   
Hello!
I am 26 years old and was diagonsed with Crohns disease 14 years ago.  I have a 3 and 6 yr.old.  I have been taking Remicade for over 2 yrs. now, I have a treatment every 4 wks at double the normal dosage.  I have had 30 surgeries due to all types of complications; most of which are due to the Crohns.  The infusions have helped me live at least 50% of a normal life. 
Usually the treatments take about 3 hours.  I haven't have many side effects, except: feeling tired and nauseous.  I recommend you to ask your infusionist for ZOFRAN for nausea.  It helps me alot. 

LittleSisSmurf
Regular Member


Date Joined Apr 2006
Total Posts : 164
   Posted 10/28/2007 12:55 PM (GMT -7)   
Thank you for the replies. It always helps to have an idea of what were in for.
anxiety and stress cant be good for our situations. I will be sure to bring a good book and definately ask for the anti-nausea meds. I am impressed with turtle....you and your strength give us all hope. It's good to know that we can go through sosososooo much and still be the stronger and better people for it. Thanks all for the replies church,ga,ides,mom,teddy,jellybean,life,and turtle Have a great life..its the only one we get so lets make the best of it.
I am 34rs. old mother or 2 wonderful kids. I have crohn's colitis. I am on Imuran, pred., and am starting remicade. My 18 yr. old son has just been diagnosed with crohn's too.


KaNDiCe21
Regular Member


Date Joined Oct 2007
Total Posts : 106
   Posted 10/28/2007 6:26 PM (GMT -7)   
umm....they usually give me a steriod shot which I have to wait 30 minutes after that, before I can start the actual med. Remicade usually takes at least 3-4 hours. A long time I know, but its worth it. Eventhough I haven't reached full remission yet, my symptoms are now tolerable. Good luck to you and I hope this works!
DX: Crohns in March 2007
Meds: Remicade


survivor49
Regular Member


Date Joined Oct 2007
Total Posts : 241
   Posted 10/29/2007 9:05 AM (GMT -7)   
it takes me about 3 hours and i am shot for the day because of the benadryl. i went for my first one with paperwork and things to do, and once i got the benadryl i was out like a light for 3 hours! when i got home i wanted to nap as well. try and set aside your day accordingly- if you are not sleepy you will have a day all to yourself! 

Ltordo
Regular Member


Date Joined Feb 2007
Total Posts : 33
   Posted 10/29/2007 3:12 PM (GMT -7)   
Takes about 2.5 hours at my infusion center.
They give me a Claratin tablet instead of benadryl,
so I don't get drowsy at all.
58 yr old female
Dx with Crohn's-Colitis January 2007
Meds: Remicade, Aciphex


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 10/29/2007 3:17 PM (GMT -7)   
It depends upon where I went. When I had it done at the hospital, it took 6 hours or so because I waited and waited to get going. If at the doctor, it was more like 2-3 hours. I always refused Benadryl until i started to react so I was able to return to work.

i brought my laptop with movies, a book, and work to do as well.

drs3
New Member


Date Joined Nov 2007
Total Posts : 12
   Posted 11/7/2007 5:17 PM (GMT -7)   

i've been on remicade for the past two years.as you may or may not know,remicade is given through an IV inffusion.once they get it going,the inffusion usually takes 2 to 3 hours.so,if you get bored easily like me,bring a good book and a friend or family member.if you have anymore questions,please ask.

drs

 
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