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Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 10/27/2007 5:15 PM (GMT -7)   
Allright, while I was on pred I had two side effects one I liked and the other I can deal with. I've been trying to get off of it since early october when I began steppinng down from 20mg. Now Im at 2.5mg a day. Well I have felt worse and worse every day. While at 20mg a day I had no "D", none at all but since then it has been back to many times a day some formed but most of them not. So Im calling my GI monday and hopefully I can get a script for 20mg, I loved the increased hunger, but I did not like the acne. That is a small pice to pay though.
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 160lbs). On HUMIRA, Prednisone


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 10/27/2007 5:59 PM (GMT -7)   

I know how you feel. I am fighting the same thing with Entocort. a few days after I reduce my dose I have a terrible flare up and can barely function. I actually get clearer skin while on pred though and I lost weight. While on Entocort I gain. Strange huh? I wish I could go back on pred but it just causes to many long term side effects :(

 

I hope you feel better soon!!! Maybe you can wean off the pred successfully.

good luck

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...


thenay
Regular Member


Date Joined May 2006
Total Posts : 167
   Posted 10/27/2007 6:41 PM (GMT -7)   
How long have u been on Humira for now? If it's only been a month or so i'm surprised they took you off the 20mg until the Humira fully kicked in.
You might have to taper slower too off the pred, either way good luck :)
Male DX with CD May 2006 @ age 22
Tried Pentasa and Entocort, worked for a yr and a bit
Taking Prednisone 35mg, and now on Atenolol 25mg for fast heartbeat (thanks Pred!) and Restoril 30mg for the sleepless nights I have sometimes.


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 10/27/2007 8:08 PM (GMT -7)   

 

 

      Bummer. I never had much acne at the 20-30 mg a day dosage, but I always had to pee 4-5 times an hour in the mornings, at the begining. The effect wore off, but then you have the mood swings, etc.

      I hate pred, but it does work..

 

    Matthew


Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 10/28/2007 12:01 PM (GMT -7)   
Guess I forgot about the mood swings, I though I was going to put my fist through the wall at work the other day, but it does work. I felt so much better after I started on it in august, but now going back to how I was.
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 160lbs). On HUMIRA, Prednisone


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/28/2007 2:28 PM (GMT -7)   
I used biore astringent for the acne I got on entocort and it really cleared my skin up.
25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
 
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!


Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 10/28/2007 3:18 PM (GMT -7)   
The werid thing is when I had acne as a teen it was on my face and back, but with pred I got it only prominently on my right arm.
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 160lbs). On HUMIRA, Prednisone

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