My doc is keeping me on entocort and pentasa as maintenance drugs. I have asked to try to go off entocort but i get sick.
Diagnosed w/ Crohn’s Disease March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT
Diagnosed w/ Fibromyalgia May 2007 also on Soma
Also have Arthritis, and feel like I am falling apart sometimes...
I was on 9 mg of Entocort and 4 gm of Pentasa each day. As time went on, after the Entocort began, I developed major anxiety issues and hand tremors. When I was doing okay bowel-wise, we dropped one Entocort out and within 2 days, I could tell there was a reduction in tremors. Previously, the GI insisted that the tremors could not be from the Entocort so I had to go to a neurologist to rule out MS since other symptoms I had (not related to the Entocort) looked like MS with the tremors. Oh, well, at least I don't have MS, but the money, the time, the stress could have been avoided had the doctor considered that what I was telling him (tremors began with the Entocort) was possibly reality.
Am trying to get off the Entocort entirely and expect to be kept on the Pentasa, though I am switching from Humira to Remicade so that the dosing can be dialed up to control all-over inflammation likely from the CD that is affecting muscles as well as joints not already affected by the AS. Hope it pans out as planned since the rheumatologist thinks the Remicade should be able to get me off all other CD meds-assuming I can tolerate Remicade. We'll see....
Wish you well! Opossumgirl