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miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 10/30/2007 11:13 AM (GMT -7)   
Well, I am now 3 weeks post op of the expander.  The masectomy was much easier then the expander, every week, I go in to have cc's of saline placed in to enlarge the skin for the implant...It is going to take me awhile...But since I am not currently in any wet t shirt contests I really don't care how long it takes me.
 
Having breast cancer has made the Crohns worse then ever, but I refuse to call the GI, becasue since I am now off Humira, I am certain he will put me on prednisone, and I just cannot..no wait..I WILL NOT do that,
so I am dealing with it on my own.
I am either going 10 times a day or not going for days at a time ( pain meds)
 
But, I am trying to keep a positive attitude through it all.....I am looking forward to getting this all over, even through it may take up to a year between the reconstrucction and chemo.
which the jury is still out on the chemo thing, since my slides were not sent out as scheduled, so 7 weeks since masectomy and I still do not know if or when chemo will begin.
 
I want to thank all of you for always being here for me when I have needed to vent, scream rant etc., you are all a huge part of my life...and I can't imagine my life without you.
 
Take care
xoxoxoxoxxo
 
Brain tumor 1981
Dx.Crohns disease 1996 no meds now due to breast canceer
bowel resecction 2001
Thyroid cancer 2001 tons of synthroid
breast cancer .....mastectomy 09-14-2007 waiting on chemo possibility
seizure disorder .....all my life. tegretol, keppra
LOTS OF LOVE & UNDERSTANDING
 
 
 
 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/30/2007 12:55 PM (GMT -7)   
Well I am glad to hear the surgery went well, but what baffoons not to have the slides sent out. And then having to wait some more. Uggghhhh!!! Just curious have they had you on antibiotics and if so have you been taking probiotics with them. I know the antibiotics can cause you to have alot of D too and sometimes you can get a C-Diff infection from them. I was having alot of D and started taking probiotics and they have really helped. Sure hope things look up for you soon.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 10/30/2007 1:51 PM (GMT -7)   
No antibiotics.
Just vic's for pain, which does not seem to help much.
Except to constipate me.

So I try to only take them at night and when i really need them.

Yes, the oncology part has me really freaked out.....I mean if they forgot to send them out, what else have they forgotten to do.
I actually hope Ido have chemo, so that I am certain that there isn't cancer anywhere else to grown esp since Crohns is so sctive, I always worry about colon cancer.

And with my health history of cancer, I just hope they are reall on it.


The crazy thing about it...there is no family history of crohns or cancer..........So I don't know where all of this came from.

The predisone is out of the question since I also have osteo arthritis, which I do not even discuss with doctors hardly, since it is the least of all he problems right now.

As soon as the BC thing gets going I am having a hysterectomy...So I am going to b very busy with health issus.

Nanners, you too look like you have your hand full with health issues, I wish you much luck, andmany prayrs your way.


Gretchen
Miraclesivseen
Brain tumor 1981
Dx.Crohns disease 1996 no meds now due to breast canceer
bowel resecction 2001
Thyroid cancer 2001 tons of synthroid
breast cancer .....mastectomy 09-14-2007 waiting on chemo possibility
seizure disorder .....all my life. tegretol, keppra
LOTS OF LOVE & UNDERSTANDING
 
 
 
 
 
 


Joanm1
New Member


Date Joined Jan 2006
Total Posts : 1
   Posted 11/5/2007 9:09 AM (GMT -7)   
Hi:
I am new to this site. Had a mastectomy on 9/12/07 anmd have an expander now. I had a deep woudn infection (serratia) and was in the hospital for 7 days so they could find which antibiotic would treat it. I have to stay on antibiotics unti8l the expander comes out since the infection is probably ON the expander and the antibiotics only kill the infection in me, not on the espander. My score was 30 so I will need chemo to prevent a recurrence. I hate the expander and getting it filled. It hurts a lot. But soon I hope to have it out and the implant put in. I am very new to this since I was diagnosed with cancer in August, had the surgery in September, was rehopsitalized in October and now ill have the transfer surgery to remove the expander in November. Chemo should begin in January, since they have to wait until my infection is gone and I need about 4 weeks to heal after the surgery exchange. I hate the idea of chemo and it scares me but I don't want to find more cancer in my body in a few years. How do I find out more about the surgery to replace the expander? Did anyone else have a deep wound infection after their mastectomy? What do I expect from chemo and will my hair fall out definitely? Thanks and good luck to you, JoanM

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 11/5/2007 9:24 AM (GMT -7)   
Its funny but when people complain about being constipated on pain meds, that is a side effect I covet!

Matthew
Hope you get better each day..

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 11/5/2007 9:32 AM (GMT -7)   

(((((miraclesivseen)))), I wish you the best of luck. I wonder if I could be as positive as you are if I was in your shoes.

I bet all those meds from the masectomy are just messing your system up. Plus I bet the stress has some to do with it also.

Good Luck and take care of yourself!!!  you are an inspiration!
Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 11/5/2007 1:08 PM (GMT -7)   
You certainly are an inspiration and one tuff little cookie I might add as well. You too Joan, and welcome by the way, sorry to hear you have an infection in your expander, my Mum had breast cancer but being in her 70's when it was discovered she chose to have a double mastectomy and wore a prothesis. She struggled with it all and when she came to live with me after dad passed away I'd do her washing, I bought a bag of lovely soft fibre fill and would add new stuffing every few weeks, the fibre they used from the store was an awful lot coarser than the one I used. We used to laugh when I did them for her I'd say I was going to stuff them really full and give her a pair of "Dolly Partons" and she'd say "Oh no dear not too big."
Stay strong and positive.
Tess

miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 11/6/2007 4:41 PM (GMT -7)   

Yes, Matthew...Pain pills do cause constipation,,,,,,But at this point, I would rather be constipated then in pain.

I never took pain meds for Crohns ever, but have no choice with Breast Cancer..

Well, I went to see the oncologist and I start Chemo on the 17h of November, I have told my entire family that I am not doing the traditional Holiday celebrations.  I just can't bring myself to go shopping for gifts and do the tree thing...I am just not up for it now and I am certan once I start Chemo I won't want to.

I am having a ct of the entire abnomin and chest ct tomarrow...to rule out any problems prior to Chemo.

I have also decided to have the genetic test done to see if I am genetically prone .  Since I am the eldest of 3 kids, and THANK GOD my brother and sister are both as healthy as horses, I am wondering why I am getting these crazy diseases and have had cancer so many times.

I am so afraid that the chemo is going to make me more tierd then I already am...Crohns just wipes me out, I just want to keep as much energy as possible and do all i can to keep it.

 

 


Brain tumor 1981
Dx.Crohns disease 1996 no meds now due to breast canceer
bowel resecction 2001
Thyroid cancer 2001 tons of synthroid
breast cancer .....mastectomy 09-14-2007 waiting on chemo possibility
seizure disorder .....all my life. tegretol, keppra
LOTS OF LOVE & UNDERSTANDING
 
 
 
 
 
 


jodyisme
Regular Member


Date Joined Dec 2006
Total Posts : 70
   Posted 11/6/2007 7:15 PM (GMT -7)   
((miracles)) a hug and all good wishes and prayers your way:)
 
i so wish you the best in all this. you have so much courage.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/7/2007 2:31 PM (GMT -7)   
Hi are you drinking ensure or boost to keep your body strength? So how long does it take to get the saline done?I had a family member had breast cancer and she had that inher 40ies and lived to be 83,had some bowel problems although she did not talk about it much. I also met a woman that had brought a fantastic wig which looked wonderful on her. I met some cancer patients while I was getting my Rem. and they were great people nice to talk to it helps pass the time. So how far do you have to go to get your Chemo? This year I am not concerned to much about Xmas it will be as it is I guess . I do love the decorating though .It's the colours that I love to see around the house and the good memories.lol gail
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