Brown spots on toilet, need quick replies

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Cyborg Ninja
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Date Joined Jan 2006
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   Posted 10/31/2007 10:35 AM (GMT -7)   
I know this is a gross question but the Crohn's board isn't new to that. This doesn't have to do with Crohn's I believe, but it's important for me to know. I've noticed that whichever toilet I use, after a while dark, reddish-brown, almost black, spots will form after some time. They form on the seat I sit on and underneath it. I'm fairly certain it's from urine. I'm worried it may be alkaptonuria, though that will explain other medical problems of mine. Does anyone else have this problem?
Current DX: Graves' disease, Crohn's disease, syringomyelia (C6-L1)


Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 10/31/2007 10:39 AM (GMT -7)   
I get spots from the Pentasa, there are posts on here about it, they don't come off either.  I had to go buy a plastic type toilet seat so that I could actually clean it and the medication from the urine would not stain the toilet seat.  Are you that type of medicine?
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf and Remicade, Forteo Injections, Actonel, Calcium and Vitamin D, B12 injections.


Cyborg Ninja
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Date Joined Jan 2006
Total Posts : 660
   Posted 10/31/2007 10:57 AM (GMT -7)   
I'm on Pentasa, yes. How could it possibly affect urine? I have a cheap toilet seat and the stains seem to come off decently enough. Could you show me some of the other topics about it? I figure a search for "brown" and "toilet" would come up with far too many posts, LOL.

Edit: BTW, my urine doesn't come out brown will I'm urinating. It's only after it's been sitting out for a while I think. I'm also on tramadol, Cymbalta and Tapazol.
Current DX: Graves' disease, Crohn's disease, gallstones, scoliosis, enlarged heart, syringomyelia (C6-L1)

Post Edited (Cyborg Ninja) : 10/31/2007 12:00:37 PM (GMT-6)


beave
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Date Joined Mar 2007
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   Posted 10/31/2007 12:31 PM (GMT -7)   
I remember this was discussed a few months ago.  But I think people were saying the stains were blue or purple instead of brown.  Try doing a search for that instead.
 
I'm on Pentasa and my brother is on Asacol, and we both stain the toilet, so to speak, with urine.  I mentioned this to my GI, who is very experienced treating IBD, and he said he'd never heard of that.  I did a urinalysis (and recently another one) and they came back completely normal.  So we concluded it's a harmless side effect of Pentasa/Asacol.  I've yet to see a real scientific explanation of what's happening, but I'm not too worried about it.

Cyborg Ninja
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Date Joined Jan 2006
Total Posts : 660
   Posted 10/31/2007 5:13 PM (GMT -7)   
Beave, what color stains are they that both you and your brother cause?
Current DX: Graves' disease, Crohn's disease, gallstones, scoliosis, enlarged heart, syringomyelia (C6-L1)


beave
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Date Joined Mar 2007
Total Posts : 1091
   Posted 10/31/2007 5:20 PM (GMT -7)   
It's hard to say exactly what color, because my bathroom isn't very well lit (no sunlight), and I'm mildy colorblind on top of that....but I would say they're dark blueish/purple, maybe dark gray.  I've sometimes wondered if there's something in the urine reacting with toilet bowl cleaning products, like maybe bleach, because the colored spots seem to occur most where I've cleaned before.

KaNDiCe21
Regular Member


Date Joined Oct 2007
Total Posts : 106
   Posted 10/31/2007 5:22 PM (GMT -7)   
are you on anything like pyridium or anything for urinary tract/kidney infection pain?
DX: Crohns in March 2007
Meds: Remicade


nikki0294
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 10/31/2007 6:06 PM (GMT -7)   
I know exactly what you mean!! The stains are like burgandy spots...I am on pentassa and I thought maybe it was from the blue pills the dye in them??? Just a thought...I have tried even straight bleach and it won't come off...What works to get them off??? It is so gross!!

Thanks!!
Chris

Cyborg Ninja
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Date Joined Jan 2006
Total Posts : 660
   Posted 10/31/2007 7:02 PM (GMT -7)   
Nope, Kandice. My kidneys seem to be fine (like the one thing in my body that is).

Strange about this Pentasa correlation. It did seem to occur after I started my Pentasa, but I didn't notice it for several months. This worries me though. Either the blue dye for the pill casing is coloring our urine harmlessly, or our kidneys are getting boxed, and that's not good. We've got to notify Pentasa's manufacturer, Shire, about this. Even if it's not harmful, they could at least stop using dyes on the casings. I'd rather go without nasty spots on my toilet than look at pretty blue horsepills.
Current DX: Graves' disease, Crohn's disease, gallstones, scoliosis, enlarged heart, syringomyelia (C6-L1)


FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 10/31/2007 7:18 PM (GMT -7)   
I have spots under my toilet seat too!! I thought they were period blood (and then thought geez has it been that long since I cleaned the toilet?) until I read the first post about Pentasa causing this. I am on Pentasa. I really dont think it is harming our kidneys. I think it just changes the PH of the urine or something. I don't think it is the dye or else our pee would be blue. Personally Id like to see all dyes eliminated in general just because I have a red dye allergy and seeing an allergist tomorrow about a possible new one too. However, without the dyes, we would have no way of identifying our pills. Have you ever had immodium, tylenol, and lactaid in a pill case together? Pain in the butt. They are all white and you have to read the little numbers on them to know what is what. I guess Ill keep the dyes... Although I hate that I am putting an itty bitty bit of something I know Im allergic to in larger quantities (the red dye) in my body nightly when I take my nexium.
25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
 
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!


Cyborg Ninja
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Date Joined Jan 2006
Total Posts : 660
   Posted 10/31/2007 7:51 PM (GMT -7)   
You've got a point there, Fitzy. It would be really hard to know what's what if all you've got are clear capsules with little balls in them. I keep most of my meds in their original bottles anyway cos I'm too lazy to put them in my pillbox. I have a small portable one though. I went to the pharmacy today and I saw that they have small portable pillboxes that have separate compartments for different meds. You should buy one of those.
Current DX: Graves' disease, Crohn's disease, gallstones, scoliosis, enlarged heart, syringomyelia (C6-L1)


pmac
Regular Member


Date Joined May 2005
Total Posts : 221
   Posted 10/31/2007 7:56 PM (GMT -7)   
I'm on Salofalk, which like Pentasa is a 5 asa...my tablets are a yellow color, and i get the same purplish color on the underside of my seat as well...so it has to be some sort of reaction, not the color of our pills if I'm getting the same thing. It is a pain to clean, and doesn't look very nice. :)

thenay
Regular Member


Date Joined May 2006
Total Posts : 167
   Posted 10/31/2007 11:52 PM (GMT -7)   
Never noticed that with me, then again my toilet seat is green, it might be blending? Merry Xmas if its red, lol :)


Male DX with CD May 2006 @ age 22, Colonoscopy and SBT
Taking Prednisone 35mg, Pentasa 1000mg 3xday, Atenolol 25mg for fast heartbeat and Restoril 30mg for the sleepless nights (thanks Pred!)


Sugarmarie
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Date Joined Jul 2003
Total Posts : 1205
   Posted 11/1/2007 8:01 AM (GMT -7)   
ASACOL did this to my toilet
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 11/1/2007 11:03 AM (GMT -7)   
Same Here...Brown spots every day I have to clean the camode!!! LOL
When I first noticed it I had just started back on pentasa after not taking meds for 4 years. So after I started back on the meds I moved into a new apartment with my roommated...And I blamed him!!! LOL Because I had never seen them before I was like this guys is sooo grosss he needs to drink more water!!! LOL tongue
 
Then I started noticing it every where "I" Lived!!! suddenly I made the connection...
 
Sorry roomy!

razzle51
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Date Joined Jan 2005
Total Posts : 763
   Posted 11/1/2007 11:57 AM (GMT -7)   
I thought you were going to the Dr. what did he or she say about it?

Syringomyelia T4-T10
Chiari Malformation
Decompression Surgery 1999
 
"Sometimes You've Gotta Laugh To Keep From Screaming"
 

 
 
 



karendee
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Date Joined Mar 2007
Total Posts : 1642
   Posted 11/1/2007 2:52 PM (GMT -7)   

I have noticed some brown too and I can clean it off.. gross :) I was assuming it was my hubby or the kids. Yuck it might be me!

FitzyK23, I was allergic to red dye as a kid. I thought I was the only one. I was lucky and seemed to have grown out of it (unless  the reactions are not as bad and I don't notice them).

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...


Cyborg Ninja
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Date Joined Jan 2006
Total Posts : 660
   Posted 11/1/2007 3:16 PM (GMT -7)   
I didn't talk to the doctor about it. It was my pain management doc.
Current DX: Graves' disease, Crohn's disease, gallstones, scoliosis, enlarged heart, syringomyelia (C6-L1)


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 11/1/2007 5:30 PM (GMT -7)   
It is the pentasa. I stopped taking it, bought a new seat, and haven't seen the spots since.
Currently in remission!


texy
New Member


Date Joined Sep 2009
Total Posts : 1
   Posted 9/13/2009 10:05 AM (GMT -7)   
I have the same with Asacol. Has anyone tried a in-tank toilet cleaner so you don't have to scrub every day? I was looking at this one:
http://www.e3living.com/chemfree-toilet-bowl-cleaner-lasts-5-years-or-50000-flushes

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/13/2009 10:19 AM (GMT -7)   
I have this underneath the seat, but not on the top itself. I can't get it off either...
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 5 mg, pentasa 2 pills 4x a day, omeprazole in the morning, and a women's multivitamin. I'm also trying a B vitamin complex, but it doesn't seem to be working so I'm considering the shots.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 9/13/2009 12:53 PM (GMT -7)   
When I told my husband it was from my Crohn's meds he admitted that he thought it was his fault, and that he needed to drink more water. I use a bleach product until it gets too bad and then I buy a new toliet seat. I try to use only the bathroom in my bedroom so that toliet seat stays clean for guests.

Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, folic acid, and Enalapril,
 


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 9/13/2009 3:06 PM (GMT -7)   
I wouldn't sweat it too much just buy a new toilet seat periodically, as long as the type you need is still available, the trend now seems to be white again, over the years I think I've had almost every colour scheme in a bathroom in the homes we have lived in. Our current scheme is creame/beige and its olde world style. oh I also rememebr the Avacado green in our home in Wales in the late 70's early 80's..
GK

MoobyDoo
Regular Member


Date Joined Sep 2009
Total Posts : 212
   Posted 9/13/2009 7:17 PM (GMT -7)   
I haven't noticed these spots yet at our house...but thanks for the warning.  Anyway, has anyone tried using a "Magic Erase" sponge to clean the toilet?  Those suckers remove permanent marker from counter tops and lots and lots of other hard-to-remove smears, smudges, etc. idea
Posts refer to my 9 year old girl
  • Started with 30 mg Prednisone, tapered off over 3 months

Then continued with:

  • Pentasa, 3 blue horse-sized capsules, 3 x daily
  • Forvia multivitamin/mineral for Crohnies
  • Coromega
  • Calcium
  • VSL#3, 2 x day
  • Custom Probiotics: 6-Strain Blend, 1 x day
  • Culturelle, 1 x day

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