Bleeding in the intestine Please Respond

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zoso73
Regular Member


Date Joined Jul 2005
Total Posts : 91
   Posted 11/1/2007 5:01 AM (GMT -7)   
Guys,
 
Really looking for advise/insight here
I have had crohns for about 15 years,
2 years ago, had a resectioning of the terminal illeum,
since then, I have had some epsiodes of partial obstruction.
On Sunday morning, I woke up, and thought I was having diarrea, but when I looked in the toilet it was all dark (maroon colored) blood.  I immediately went to the ER, Got very light headed, etc,
had a few more bleeding episodes in the ER,
they finally admitted me and over the next 3 days had 3 Units of Blood, and the upper endoscopy and colonoscopy done.
By the time I did the prep fo the colonoscopy (18 hours after the first bleed the bleeding had stopped).
The tests showed no active bleeding or ulceration in the stomach, Duodenum, or Large intestines.
I am sceduled for a capsule endoscopy next Thursday.
 
Here is my concern...
I did not feel sick, I do not feel sick, but I lost a lot of blood
No reasoning, no warning signs.
And I am scared that this can happen again without any warning.
Until the Capsule endoscopy is done, I will not have answers.
Should I be this worried for the next 7 days. 
Is the bleeding serious (like can I bleed out)
Or should I just relax, and assume that it was an isolated incident?
 
Not sure what to think, but I am freaking out a little
(FYI, my doctor put me on entocort for this, so if it is inflammation in th upper GI, they are trying to treat it)
 
Thank you for reading and responding to this
 
I need as much info as I can get

Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 11/1/2007 10:32 AM (GMT -7)   
zoso, I wish I could help you. I never had problems with bleeding but I'm sure that someone will be around to answer your questions. Good luck and let us know how you are doing. Are you still in the hospital?
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


Dave D
Regular Member


Date Joined Aug 2005
Total Posts : 404
   Posted 11/1/2007 1:23 PM (GMT -7)   

For me and probably many others, it goes with the territory. Crohns can bleed into the stools even without a notably different color. Also, Crohnies have more difficulty absorbing Iron from what they eat. It's the nature of the disease.

I've found the best treatment is to recognize the symptoms, mainly lack of stamina and a constant tired feeling. I experience Pica when I begin to become anemic. I have a craving to chew and eat ice. In third world countries, people crave eating dirt (soil). I bought a hemglobinometer off ebay that I use to check myself at home. Also, I had the Dr. write me a standing order for CBC's: 1 a month, for 12 months. That way if I suspect I am going down, I just go get checked. A day or two later, the Dr's office will call and give me the results.

I can not take oral Iron so I have a Hematologist that gives me Iron infusions whenever my hgb gets below 10 but above 7 and my stores (reserve) is getting low. Below 7, I must have a blood transfusion to get me up to around 10 when I can handle and iron infusion. I see no point in dragging myself so low that I need blood. Plus, maybe I'm old fashioned but I don't like getting someone elses' body fluid.

I'm sure there wil be others a whole lot more knowledgable than I chime in on this subject, but that is one Crohnies' experience.

Dave D



Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Eye is healing and currently taking Entocort counting on the residual (non-systemic portion) treating the eye. In October if eye is stabilized, will need cataract removal (obviously old steroid associated). Then surgey to the back of the eye to remove scare tissue caused by the detachment.  11/07 Started Remicade to try and reduce the ocular inflamation of the Scleritis since I have been requiring more and more Prednisone to keep the eye quiet.
Married with 4 grandkids.

Post Edited (Dave D) : 11/1/2007 2:35:30 PM (GMT-6)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/1/2007 4:28 PM (GMT -7)   
Hi Glad to hear your home and I see you ended up with more blood. Hope you are feeling better. I guess I would keep an eye on things and if you have more problems you know whqt to do but I am hoping that you will feel better. lol gail

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 11/1/2007 4:41 PM (GMT -7)   
Hi Zoso. I have also had a GI bleed. I had no pain, and no warning either. I did feel tired that day, and took a nap, but didn't think anything of it. I woke up to some cramping, thought I was going to have D, but instead I got a lot of red blood. I was actually taken by ambulance to the ER, as I almost passed out after the 3rd time of having blood (this was a lot of blood).
 
They admitted me. That night I had a nuclear test done, to see if they could spot the bleeding. But it didn't work. The next morning I was still losing blood at an alarming rate (my blood tests were showing) they went in and did an emergency colonoscopy with NO prep. My doctor was able to find a bleeding ulcer in my TI. He fixed it while he was in there. The next day they did another colonoscopy (this time with prep). This is when he discovered the inflammation in my TI, but also saw that the bleeding had stopped from where he fixed it.
 
I ended up losing half of all the blood in my body. They never gave me blood in the hospital though, they let me go home to rebuild it on my own. I was very very weak, and had a hard time breathing for months.
 
That was 1 1/2 years ago. I have had a little bit of blood during flares, mainly a kind of spotting. But NOTHING like what happened before. I still worry about it happening again. My doctor has told me to absolutely NOT take any NSAIDS, he feels that may have been a factor in my bleeding so badly with Crohn's.
 
For me, I feel it can happen again. I have Crohn's Disease, which comes with uclers that can do this. But my advice is to relax, certainly we know how stress can effect our disease. Take the tests the doctors want you to. Keep an eye on things, and keep the doctor informed of any changes. It's all any of us can do.
~Jennifer
 
Diagnosed with mild Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Asacol and Questran.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 11/2/2007 1:27 AM (GMT -7)   
zozo. i have had this happen twice about 1987, and again in 1999. both apparently started in the middle of the night. when i awoke each time the first batroom trip was very dark marron colored. and lots of it. it was very troubling. the first time i went to work and it kept happening till i finally drove to the ER in the snow. what an idiot!. anyway same as you, tried to find the bleeder, never did. after my hematocrit quit falling, down to 10 i think it started going back up. no blood this time. just fluids and in the hospital for a week. the next time when it happened i knew what was happening and had my dad drive me to the dr. told him what was up, he kinda disbeleived me till i went to the restroom and took him in and showed him. he called an ambulance to take me to the ER. same thing looked for a bleeder but never found one, this time though i had to get blood 3 or 4 units as i recall. so i would say your worry is warrented, but i think you would be able to get to an ER before you bled out. i mean that much blood will cause you to notice it right away and get help. good luck with the camera and keep us posted
randynoguts 



     http://www.geocities.com/randynogutsweb/

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