OT- Rant re: allergist

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FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 11/1/2007 8:06 AM (GMT -7)   
Hi my buddies!
 
All too often here we hear stories of crappy doctors.  I have been lucky so far that since my move 3 years ago I have had nothing but the best doctors.  I had high hopes that life in Maine really is "the way it should be."  Until I went to the allergist.  They have a stunning website that makes them look so state of the art.  They are the only allergist in the area.  I get there in the place is old and dingy at best.  Everyone looks miserable.  I try to crack a joke w/ the receptionist and she looks at me like I have 3 heads.  And they can't be worn out yet! I'm the first appointment of the day.  I have to explain things three different ways for my nurse to get it.  She is visibly not getting along w/ one of the doctors.  She wants to measure my height.  I am wearing flat slippers w/o socks but she insists I take them off to stand on a piece of dirty looking floor (where Im sure 10 other dirty feet have been).  Gross. 
 
So then the doctor comes in and asks me why Im there, even though I had told the nurse, and filled out the paperwork.  I explained that when I was young, I was allergic to artificially flavored stuff w/ dyes in it but grew out of it.  When I got older I found my process of elimination that I was allergic to red dye.  Recently I have been having the same reaction without eating foods with red dyes.  He looked at me, grinned like he was trying not to laugh, scoffed, and said "true dye allergies are very rare, I don't think you have it." So I said, ok thats fine but I would like to find out then what I am allergic to so I can avoid it.  I gave him some examples of foods that had caused a reaction (campbells tomato soup and sunchips) that did not contain dye.  I also gave him examples of times I had dye reactions including one where my lips and tongue swelled after taking Nyquil. 
 
So, then he leaves and has the nurse come in with a long list of foods, and asks me to check off which ones I want to be tested for, for allergic reactions.  I look at it and there is no spot for dyes or preservatives, or any of the unnatural things I find I react to.  She explains that they can not do the prick test for things that are not proteins and that the only way to test for the things I am concerned about would be a placebo test.
 
So I just check off stuff that is also in the stuff Ive reacted to from dyes (such as tomato, strawberry, etc.) even though I know the test is going to be pointless.  At least I was able to also get tested for environmental factors and find out what was causing my seasonal allergies.  (Its grass.)  The doctor first did a plain scratch test just to see about my skins sensitivities.  He may have even used his fingernail, I dont know (gross.)  I did start to break out in hives around it.  So he concludes that I just have sensitive skin causing my itching issues.  The nurse however, notes that I have crohns and that it may be my immune system fighting something that isn't there.  (Why are the nurses always smarter than the doctors?).
 
Then the doctor gives me a bunch of pamphlets to read while the pointless testing works its magic.  It says right in them that although rare, artificial dyes have been identified as potential allergens.  So when he comes back I say, I understand that these are rare but it says here that they are a possibility.  I have had very rare issues before, including a stone in my salavary gland that took 4 doctors to diagnose.  I don't want to rule this out simply because it is rare.  But the only way to test for it would be this placebo test which I feel I have already done on my own.  I broke out at my in laws and we looked at the ingrediants of our dinner and sure enough, it inadvertantly had red dye.  That is a double blind test.  What stumps me though is the products that don't have red dye that are causing the same reaction but are typically red.  I guess that part could just be in my head, because as I eat red things I expect a reaction.
 
I admitted to the doctor that keeping a food journal is hard because I feel that is encouraging the placebo effect.  One can think themselves itchy.  He seemed to imply that the placebo effect is the cause of ALL my allergy problems.
 
So I called my husband after and laughed about what a waste of time it is.  My husband has joked with me forever that all my medical problems are in my head.  Expecting him to enjoy this "diagnosis" he surprised me.  He just flatly said, "the guys obviously wrong."  He has seen first hand how things with dye effect me especially when I didn't know it was there.  Those four little words meant so much.
 
I guess Im just back to avoiding all things red, orange and purple... at least artificially.  I just wish he could have admitted that this *could* be my problem instead of acting like there is *no* way it is. 


25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
 
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!

Post Edited (FitzyK23) : 11/1/2007 9:13:57 AM (GMT-6)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/1/2007 8:23 AM (GMT -7)   
bummer fitzy sorry this happened to you! I am so glad your husband responded well. So are you going to try and find a new allergy person ?
Forum Moderator 
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century) 
Make sure your suffering has meaning...


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/1/2007 8:40 AM (GMT -7)   
Navy- Im going to hold off for now. Im just going to eat things w/o red dye and when I do have reactions anyway write down what it was I had that day. Changing my laundry detergent helped a lot too. The doc said I could treat the symptoms w/ claritan but I would still like to find out what was causing it. Ill just be my own doctor :)

Forgot to add: After the doctor determined that I would get hives from a strong scratch... the nurse used pen to mark what tests she was doing where on me.  I politely asked if the pen alone could cause a reaction and she was like "yeah it could."  I decided not to suggest that she should be charting my back on a piece of paper or something then instead of WRITING ALL OVER ME GRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR.  I dont rant much but when I do watch out!!

Broomhilda- I might need to borrow that broom.


25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
 
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!

Post Edited (FitzyK23) : 11/1/2007 9:50:17 AM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/1/2007 8:57 AM (GMT -7)   
Man what a crock of s*&t. Sorry you had to go thru all that for literally NOTHING. I do think you need to borrow Broomhilda's broom and beat the poop out that doctor. I especially hate when they do that "sure honey" smirk. Grrrr!!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/1/2007 10:39 AM (GMT -7)   
And another point- I had to lay on my stomach for 15 minutes and there was no pillow on the bed. I used my sweathshirt. You would think they would try to make it remotly comfortable.
25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
 
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/1/2007 6:54 PM (GMT -7)   
Fitzy,
I hope you find some resolution in that (as in I hope it all disappears), but I have to say I am concerned because as you know allergies can get better or get much worse. If it does not get better I hope you find someone who is a much better doctor to help you before it gets worse.
Good Luck (fingers crossed for allergy remission),
Navy


Forum Moderator 
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century) 
Make sure your suffering has meaning...

Post Edited (MMMNAVY) : 11/1/2007 7:57:48 PM (GMT-6)

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