Help with diagnosis

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

bcstressed
New Member


Date Joined Aug 2007
Total Posts : 9
   Posted 11/1/2007 10:53 AM (GMT -7)   
My GI doc. is sending me for tests and I'm nervous so I was hoping someone could help me understand if this sounds like Crohn's or what else it might be?Below are my symptoms and when they occurred, so if you could help me understand if this might be Crohns?
 
Late June I had several mouth sores that lasted about 1.5 weeks. They went away and then came back about a week later. I didn't think much of it at first until for some reason an STD came to mind. I got tested for STD/HIV and everything was negative. I was relieved but my mouth sores continued so I was still a little nervous about what was going on. I started feeling run down quite a bit (thought it was stress) then early Sept. I started getting pain in the middle abdomen right below my breast bone area and my throat started getting sore along with the mouth sores. My regular doc. sent me to an ENT and thought it was acid reflux so I took prilosec for a month and it seemed to go away but haven't taken it since and mid Sept. I started getting severe lower back pain moving into my hips and mild lower right abdomen pain. My abdomen pain is much more painful now and quite sharp at times for the last few weeks. I almost forgot. Over the last 3 months my stool has been very watery and thin (ribbon like) mostly. Noticed small patches of blood three times but not bad. My CBC, CMP and SED rate tests came back normal so far. They are doing more blood tests and abdominal/pelvic scan tomorrow and GI doc. said most likely a colon test. No wait loss.
 
Sorry to ramble but I'm nevous and curious if this sounds like Crohn's or if anyone knows what else this might be?
 
Thanks for all your help!

sweettea
Regular Member


Date Joined Sep 2007
Total Posts : 32
   Posted 11/2/2007 8:30 AM (GMT -7)   
This sounds like it could be Crohn's, but you know there's no way to be sure without the tests. You are doing the right thing, following up with the doctors. I'm sorry you're having so much pain and difficulty. I hope you will soon have an answer, and be on your way to feeling better.

Vic

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/3/2007 8:52 AM (GMT -7)   
Hi you seem to have some good stuff going on with your test and hope you do well with your other test. Let us know how your doing hope you feel better soon. lol gail

Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 11/3/2007 11:25 PM (GMT -7)   
Hang in there, Unfortunately the only way to diagnose crohns disease can be a endless battery of unpleasant tests....but it will be worth it in the end, when they find what is wrong and can start treating you properly. It does sound like it may be CD.
Be strong...have courage....come to us whenever you have questions or need support. we are always here to listen and be there for you.
Mary
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 11/4/2007 6:47 AM (GMT -7)   
Sorry that you are in such physical distress, sounds like you have a whole myriad of things going on. The other members are right, without more tests there's no way to diagnose CD, it could be something else causing the symptoms. Good luck with your testing and your Dr's...stay strong!
Marci, 38 years old, Rockledge, FL
Dx with Crohn's disease March 2006, currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor, plus 3x per day heavy iron supplements for anemia


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/4/2007 8:47 AM (GMT -7)   
Hi, and welcome. Most of the testing they do are painless and fairly easy to cope with. I wish you luck.
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


bcstressed
New Member


Date Joined Aug 2007
Total Posts : 9
   Posted 11/5/2007 6:26 AM (GMT -7)   
Thanks a ton for the replys! My other blood tests came back normal. I don't recall exactly what they all were but two of them were the P-ANCA and ASCA and they were normal. I had a CT scan on Friday and hope to have the results today. Is it rare for these tests to come back normal and still have CD? Thanks again and I know I'm reaching but it helps me to talk and ask.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/5/2007 6:53 AM (GMT -7)   
Hi It does help to talk and ask questions I would think a scope and biotopies might help with DX. It takes a little time to look into different areas of our system. Let us know how you make out on your scan.lol gail

rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 11/5/2007 9:32 AM (GMT -7)   
All of my tests are normal except for slightly elevated pANCA which no one thinks is significant. CT Scan, SBFT, 3 colonoscopies, rectal and colon biopsies, and an EGD (that took care of the stomach and beginning of the small intestine, it was a workup for celiac) over a 10 year period. I didn't even have any gi symptoms (Pain was my complaint) until about 3 years ago. Over the years I have had other symptoms such as mouth ulcers and inflammatory arthritis. My gi is calling it CD unspecified and treating me with Pentasa based on symptoms and response to the medication
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


bcstressed
New Member


Date Joined Aug 2007
Total Posts : 9
   Posted 11/8/2007 11:55 AM (GMT -7)   
My CT scan came back normal. When my doc. called me he mentioned that there's a possibility of Behcet's. Lately my stool has been worse and my knees and wrists seem to hurt....I'm hoping this is just stress. My colonoscopy is scheduled for Monday. Couple questions:

Will the colonoscopy give me a good indication if it's Crohns?
If not what other tests should I suggest or look forward too?
Is anyone familiar with Behcet's? From what I see it's pretty rare.

Any suggestions would be great.

Thanks!!!!!!!!!

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4095
   Posted 11/8/2007 12:25 PM (GMT -7)   
To get my diagnosis of Crohn's I had the camera swallow test, which showed an ulcer in my small intestine, a Prometheus lab blood test (I don't know specifically what the blood test is called) which was positive for Crohn's, an EGD which was negative, a CT scan which showed thickening in the illeum, and a colonoscopy which on biopsy was positive for Crohns in the illeum. A year ago, I was hospitalized with a hematocrit of 7. At that time I had a colonoscopy, an EGD and barium swallow, all which were completely negative for disease. So they gave me iron by IV with no diagnosis. I think sometimes it takes awhile for things to show up on tests. In the summer I had horrenduous mouth ulcers which my internist misdiagnosed as a throat infection. She put me on three rounds of antibiotics, which I am convinced made my Crohn's flare and I got much worse. Keep at it with your doctor. If you don't find an answer, keep looking. Good luck with everything. Hope this helps
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007


clavman
Regular Member


Date Joined Sep 2007
Total Posts : 39
   Posted 11/8/2007 12:46 PM (GMT -7)   
I also had some mouth sores before I had a positive diagnosis of Crohn's. I also had a constant dull aching pain in my lower right quandrant by my appendix. (Still do almost constantly ) My Crohn's was confirmed with a colonoscopy and biopsy of the ulcers he found in my terminal ileum. My GI said that was a possible symptom of Crohn's I read on this forum that listerine would help and so I tried it.a day and it went away within a day or two. It helped make the next one go away shortly after it started(unlike the first few that I didn't know what to do about) It stings a little, but I just swirled it around for 15-30 seconds and spit it out a few times Hope this helps.
Bob
47 years old
Dx 3/07 Moderate Crohn's in terminal ileum-Probably had it for years earlier
Rx Prednisone initially for 8 weeks-40mg/day then tapered down to 0
    Currently on Pentasa-2000mg/day


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 11/8/2007 1:16 PM (GMT -7)   
If it weren't for my classical proctitis/colitis symptoms & signs in the early 90's I might still not know.
Dxing this DD can be very difficult..
But yes what you are describing does sound like CD in the stomach & upper GI tract. Get a GI ASAP..

Matthew
Welcome to HealingWell, by the way.

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 11/8/2007 1:18 PM (GMT -7)   
Oops, well you already have one. Just be patient & see what this round of tests show..

Matthew

bcstressed
New Member


Date Joined Aug 2007
Total Posts : 9
   Posted 11/9/2007 5:31 AM (GMT -7)   
Thanks for everyones support and comments. I've never been so nervous and I know I'm reaching but I have to ask.

I read that CD is manageable and most people live full productive lives. Is this true for most?
Also does anyone have experience with my type of symptoms and it's something else like stress or just ulcers or anything else they've heard of?

bcstressed
New Member


Date Joined Aug 2007
Total Posts : 9
   Posted 11/13/2007 8:44 AM (GMT -7)   
I had my colonoscopy yesterday and the gi dr. was pretty optomistic about the results. I had some polyps and one sign of diverticulosis. He did a biopsy of the terminal ileum but he said it looked normal.
 
With my blood tests, ct scan, colonoscopy (mostly normal) all being normal does this pretty much rule out Crohns?
 
Does anyone have any other suggestions on what test I should suggest?
 
I continue to have sores in my mouth with the sides of my tongue irritated.
 
Thanks for any advice!
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 9:50 PM (GMT -7)
There are a total of 2,731,950 posts in 300,977 threads.
View Active Threads


Who's Online
This forum has 151137 registered members. Please welcome our newest member, Country girl2.
275 Guest(s), 2 Registered Member(s) are currently online.  Details
cilly, Fairwind


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer