Reclast - taking IV for 1st time - did Forteo already

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peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/2/2007 1:38 AM (GMT -7)   
Hello -
 
I usually do most of my posting under the Ostomies, since I have one, but it is because of CD.  So I thought I would check in with all of you for the first time!
 
I am going to have an IV of Reclast done for the first time today and was curious if anyone else Here has had this IV drug? 
 
I went thru the 2 yr Forteo injection therapy and had absolutely wonderful results.  So much so that they had to cut back a bit on my dosage because of the discomfort of the bones becoming denser so quick.  Forteo took me from osteoporosis back to nearly normal bone density in under 2 yrs.  I was really fortunate and feel blessed, & thought  I was outta the woods, so to speak!
 
Anyway, long story short, I now am finding out now that I have an absorption issue with Vit D, even on large doses of supplements.  So I'm now on RX - 50,000 IU once a week for 3 months, then lab recheck.  Right after the dose each week, I get pretty nauseous - I guess I'm just pretty suseptible to this nausea thing anyway.
 
Meanwhile, the doc is addressing this osteo issue with Reclast.  I cannot tolerate the oral Boniva, Fosomax, Actonel due to stomach irritation.  (just got gastric ulcer healed last year after many, many years living with it!)
 
Do any of you know of anyone that has taken Reclast or have you taken it?  Did you have any side effects immediately following the IV?  One of the side effects is nausea.  I'm concerned that I might want to pre-med before I have the IV....
 
Thanks everyone in advance for any light you can shed on this topic......  this HW.com forum is the best!!!
 
 

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


sly
New Member


Date Joined Sep 2008
Total Posts : 1
   Posted 9/10/2008 9:56 AM (GMT -7)   

Dear Peggy

My name is laura I had the reclast injection on Monday afternoon.

Tuesday had 101.4 fever and terrible bone aches taking tylenol, today is wednesday feeling somewhat better.  I found that doing some reading before you take this helps, like taking tylenol few days before, drinking lots of water.

 

I am very senstive to meds so my medical doctor thought yesterday that is why my symptoms might be bad.  Hoping this feeling is worth it.

 

You can email me at ldb1237@aol.com and I will keep u updated.  Do find that the docs dont know too much about this as it is so new...

 

laura


allyn
New Member


Date Joined Oct 2008
Total Posts : 1
   Posted 10/8/2008 6:07 PM (GMT -7)   
For me, Reclast has been EVIL.  I am still recovering from an infusion nearly a week ago. I had fever, chills, racing heart, horrible bone and muscle pain, headache, constant cramping, etc.  Felt like I had been pounded with a 2 x 4.  I would barely get out of bed or take more than a few steps.  I had done the recommended liquids and Tylenol before the infusion.  My doctor, when I finally reached her, said take more Tylenol.  I could have taken a bottle of Tylenol and it would not have helped.  I finally got something for the cramping and something stronger for the pain.  I missed a family wedding, church, and work.  Went back to work too early (didn't have an option).  I am exhausted, still coping with muscle pain.  I have serious, serious reservations about ever taking this stuff again.
It is NASTY.  I certainly hope you have a better experience. 

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/9/2008 3:59 AM (GMT -7)   
Hi Peggy Hope you have good results and perhaps try to get some sunshine in to help with your viamin D .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

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