Remicade reaction

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Regular Member

Date Joined May 2007
Total Posts : 89
   Posted 11/2/2007 6:07 PM (GMT -6)   
   Well went for my infusion the 4 week time slot and mid way thru the infusion , my face became hot and flushed, my chest tightened and then i had severe stomach pains.  So they stopped it gave me a serious dosage of Benedryl ( so much I could not form sentences nor lift my head) and a steroid to help ease the stomach pain.  
   They are wanting me to go again next week for the remaining dosage and they are going to give me the shots prior to going again.
  Just curious to know if anyone else has had this or the likes?
  The other 2 prior infusions I had were while I was hospitalized for the pyoderma mess on my calf and there seemed to be no reactions there.  Any ideas?

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/2/2007 6:28 PM (GMT -6)   
Hi I always got the dteriod IV first and never had too many problems. Sure hope your feeling better. How is your pyoderma responding on the Rem.? Sure hope things work out better for you. Keep in touch. lol gail

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 11/2/2007 7:02 PM (GMT -6)   
I had the same reactions but was able to keep taking Remicade because of premeds (steroids and benedryl). Over time though, my side effects became worse, effecting my joints which was the most painful thing I've ever gone through. I found out that my antibody level was very high, and that meant that the drug wasn't working well anymore anyway because my body was fighting it hard, so I finally quit taking it. Up until I had to quit, it worked well for my CD though.

I know these side effects can be scary, at least you're at an infusion center where they know how to deal with it. My first reaction happened in a doctors office with no doctor available (I was a little miffed to say the least) so I left and never finished that one, then my doctor decided I needed to have them done in an infusion center. Even though it was quite a drive I was happy to have professionals who knew what they were doing.

Oh yeah, they also slowed my infusion rate way down.  I upped the dosage 10 mL every 10-15 minutes (I had an egg timer and did it myself) instead of doubling the dose every 15 minutes which was standard.  It took longer, about 4+ hours, but it was worth it.

49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 

Post Edited (JudyK89) : 11/2/2007 6:05:32 PM (GMT-6)

Regular Member

Date Joined May 2007
Total Posts : 89
   Posted 11/2/2007 7:56 PM (GMT -6)   
hey all thanks for replies....
   the infusion was at a drs office ,,,,dr was avail but he was stumped on the stomach pains no one had ever had those.
 Hoping the best for you

Regular Member

Date Joined Nov 2007
Total Posts : 30
   Posted 11/4/2007 8:06 AM (GMT -6)   
I have had stomach pain and cramping and my docs are just as confused.  I am a little worried about my infusions after reading the other posts.  The last time that I had my infusion the nurse had no clue what rate to even infuse my pre meds nor my remicade.  I had no idea that the rates could be changed.  The docs also have never given any info on the side effects of remicade. They make me feel like I am crazy when I tell them about the different things that are happening to me.  I am so happy to have found this site.  This has helped me so much already! :-)
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