Intestinal Migraines

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KayDee
New Member


Date Joined Nov 2007
Total Posts : 12
   Posted 11/2/2007 8:04 PM (GMT -7)   
Just wondering if anyone has intestinal migraines, what their symptoms are, and what they do for it.   I have had almost monthly, sometimes bimonthly migraines, accompanied with vomiting, for the past 18 months.  I become exceptionally tired and unwell 3 days before, then continue to suffer with a nauseating headache and fatigue days after.  Some were associated with excruitating "labourlike" pain.  Tests showed a stricture, and nothing helped (tried various procedures + drugs for a year) I was sick all the time. So I Had resection surgery in Aug. , 42cm removed, thinking this was the cause of all my nausea and headache. Anyway, the migraines are still there,as well as vomiting, but no labour pain. The first one was one month after surgery. I just can't seem to get back to feeling well. Seems like there's more going on here. Dr. said maybe I have intestinal migraines or another stricture.  Waiting to hear back on another colonoscopy.  Just wondering if anyone has information related to these migraines.  Also, in the meantime, have removed gluten, dairy, egss, sugar, all of the well known allergens from my diet because I'm desperate and have been reading a lot here about gluten and dairy! Could those of you with trouble with these foods tell me what symptoms you have.  Much appreciated!

april07
Regular Member


Date Joined Nov 2007
Total Posts : 30
   Posted 11/4/2007 8:47 AM (GMT -7)   
Eggs casue me cramping and some nausea, sugars make me poop and some abd discomfort happens with it, dairy has to be the worst by far. I get intense pain and nausea I never vomit but i can't get to the bathroom fast enough for the other end. From what i have read is that most people with Crohn's are lactose intolerent. I can do yougut in small amount but that is because it is cultured. I guess that it is the sugar in milk and milk products that causes the problem. This is what I have been told anyway. I don't usually vomit from anything but sure wish I could sometimes. I also get a real full and bloated feeling when I get eggs or dairy.
I read that you had a stricture. What kind of drugs did they put you on? the GI that i see didn't seem to have too much good to say abput helping a stricture. Do you know if most people end up having to have surgery? I am on Remicade but according to my GI this will not help much with the stricture. What other procedures did you have done? Also what kind of thing did you stay away from to help with the stricture?
thanks!

KayDee
New Member


Date Joined Nov 2007
Total Posts : 12
   Posted 11/4/2007 10:08 AM (GMT -7)   
Thanks for the info. I've had crohn's for 30 years. The past 5 the worst, symptoms got progressively worse to where the last two were quite bad. I worked, but felt bad, came home and slept all night and weekends. Tried all three tiers of drugs and when I broke through the highest tier the GI put me on remicade, which did not have any benefit. I had also been on an experimental drug called natalizimulab (not sure of the sp. right now) that worked quite well. Noted quite an improvement on that, but after a year they suspended the study (that was 3 yrs ago). I do hear that it will soon be authorized for use in Canada. After 5 colonoscopies last year, a balloon dialition of the stricture, and a barium swallow they concluded that my best alternative would be the surgery. It should have been very straight forward, according to them. I do know people that have had successful resection surgery.

KayDee
New Member


Date Joined Nov 2007
Total Posts : 12
   Posted 11/4/2007 10:15 AM (GMT -7)   
Forgot to add the part about the low fibre diet. Whenever I ate salad, nachos, corn etc. I would get really sick. Eventually ate an almost no fibre diet, not good, but the alternative was worse.

april07
Regular Member


Date Joined Nov 2007
Total Posts : 30
   Posted 11/4/2007 10:40 AM (GMT -7)   
Thanks for the info!! Sounds like you have had a long rough battle with this fun fillled disease! Hope that you can resolve you new issuse. Best of luck!

Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 11/4/2007 5:34 PM (GMT -7)   
KayDee, I've had migraines for almost 30 years now. I've never heard of an intestinal migraine, but after giving it some though, I suppose it is possible. After all, a true migraine is usally caused by vascular infalammtion in the brain. The intestines are often referred to as the "enteric brain" and contain all of the same neurotransmitters as the brain, so why couldn't a migraine affect the gut? I know there are occular migraines and neck migraines. However, in all my years of migraines, I've never noticed an exacerbation of gut problems during one.

I suspect that your labor-like pains were really the result of the stricture, espcecially since they haven't returned since the surgery. Nausea and vomitting are very common with migraines though and can occur with any type of migraine.

What are you using to treat or prevent the migraines? Are you using diet alone? Haven't any of your Docs tried treating you with meds to prevent or at least abort the migraines?

1998 was the year of the sinuses for me and I had a nightmare sinus surgery which created the need for 2 more to fix the problems that one left behind. My Docs were all certain that allergy shots would help me and so I started them. Within 6 motnhs, I was experiencing a huge increase in migraines. They got so bad that the Fioricet I had used for many years was no longer effective and I had to self inject Imitrex. It wasn't long before I was injecting up to twice a week and still having constant migraines. I tried all sorts of preventive meds too and nothing was helping. Then, a co-worker mentioned that her nephew had to stop his allergy shots because of the headaches he had. Wow! I had never thought of the shots as the cause and rushed over to the allergist to discuss this.

I was then started on steroids the morning of my shots and then later that night. The headaches eased slightly, but didn't go away. Finally, I stopped them. It took approx 6 months before the migraines began to lessen. Now I am back to my regular routine and still get a monthly migraine, but they are much less severe and managable with my trusty ole Fioricet.

So, it's been a long time for me since playing with the new meds, but I understand there are many out there which cn be very effective. I think it's time you find a Doc who is willing to work with you to find an effective treatment. This may require an evaluation from a Neurologist, but if it gets you relief, it will be well worth it.

Best wishes.
Keah a.k.a. Wormy
 God helps those who help themselves.
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irish63
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 11/4/2007 5:52 PM (GMT -7)   
I too suffer from Migranes as of about 6 months ago. I was finally put on "preventative" medication as of last month. I was having a migrane about once every other week. They were so bad that nothing helped but a shot of Phenegran for the nausea and Nubane for pain. I would have my husband take me in to the doc, and once I had to go in for three days straight to get a shot. I get so Nauseous and vomit till I had nothing but dry heeves (sp?). I too have Fioricet and if I can catch the Migrane on time it helps. i too have often wondered if it has anything to do with the Crohn's. I personally think it does. My docs on the other hand say NO. I have wondered if it has anything to do with Remicade. Who knows???
Dx: 10/04 IBD (unclassifiable but most likely Crohn's so they tell me), GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 11/4/2007 8:56 PM (GMT -7)   
I have migraines, some sinus ones, some tension, but mostly related to hormonal issues. Mine are around the time of ovulation and 3 days before my period through about the 4th day of bleeding. This has always occured in my life even though I am peri-menopausal now. Also, on the sinus thing...CD affects the muscous lining of your stomach & intestines. It seems logical to me, when your sinuses are screwed up, so is your stomach (that way for me anyway). I believe you labor pain mostly came from the stricture and the D & vomiting from the migraine/stricture combo. You might want to discuss your preventative options on the migraines with your DR. or go see a ENT doctor as well. I have chosen not to take the preventative Rx's for the migraines. I'm too scared of that class of drugs/side effects. Percocet is my pain reliever of choice for the CD & migraines. If I catch the migraine when the "auras" occur at onset with the Percocet, it usually doesn't go into the whole D & vomiting issue with me. I also use hot, steamy rags for the sinuses & tension ones. And like most migraine sufferers...I live in the dark when I have one. I also stay away from chocolate, cheese, nuts, caffeine and processed meats which are my migraine & some of my CD triggers.
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.

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